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Friends,

Get out your calendars and sharpen your pencils! I've got a list of dates of upcoming FPWR fundraising events that will give you writer's cramp. :) No matter where you live, there will be an event not so far from you sometime during this year. Check out this list and make your plans to join with one or more of these fundraisers, all designed to support PWS research through FPWR. Thanks so much to all of you who are giving sacrificially of your time and energy to make these events happen. You're the best!

 

April 30-May 1

West Virginia: Jennifer and Justin Cabel are hosting a giant yard sale to benefit FPWR in Barbourville, West Virginia. She has solicited items from friends and family and will hold a bake sale and hot dog roast as well. Jennifer and Justin are the parents of Rilen 4 1/2 months, w/PWS.

May 20, 2006


Pennsylvania
: Tiffany and Matt McCauley are holding an elegant fundraiser called "Fight For Quinn's Future" on May 20 at their home in Doylestown. The event will include a dance w/DJ, refreshments and a silent auction with many exciting auction items. I will be posting more information very soon about a special auction item that is sure to be a hit. Keep an eye out for upcoming news!

June 11, 2006


Ohio
: Stephanie and Marc Arnold, parents of Jake, 2, with PWS are hosting their second annual golf scramble, "Fore Jake's Sake" at Crooked Tree Golf Course in Mason, Ohio. They will also be having games, a silent auction, door prizes, and split-the-pot. This event is sponsored by the Forresters, a financial services company in the area.

August 20, 2006


Ontario, Canada
: Tanya and Keegan Johnson are holding their second annual walk-a-thon and a portion of the proceeds will go to support research through FPWR. Last year, the Johnsons raised $50,000 in their first year and hope to surpass that total this year! More details to come…

SEPTEMBER 2006: "FPWR MONTH"

Coast-to-Coast events will mark the month of September as we hold our first "FPWR MONTH." All during September, FPWR families will be hosting events in support of PWS research through FPWR. Look over the list and see which events interest you so you can make plans now to join in on the fun and support these all-important efforts to support PWS research! Other events may be added as time goes on. More information will be posted about these events as it is available.


CALIFORNIA
: Walk-a-Thon in Los Angeles


WASHINGTON
: Walk-a-Thon in Seattle

 


TEXAS
: Dragon Dash in Dallas (second annual)

 


PENNSYLVANIA
: Hangar Dance in Lancaster (second annual)


FLORIDA
: Tennis Tournament in Merritt Island

…and if that weren't enough…

 


OCTOBER 6-8, 2006 Kentucky:

As a final event to wrap up FPWR month, we will hold our

FIFTH ANNUAL WALK-A-THON for RESEARCH and ANNUAL FPWR MEETING

in Louisville, Kentucky October 6-8, 2006. Prader-Willi Friends (Kentucky) will again host the FPWR walk-a-thon and annual meeting. The walk will be on Saturday morning at the Louisville Zoo, Oct. 7, and we will announce the TOTAL amount that was raised through the various events held during FPWR month.

The weekend will be filled with workshops and social times scheduled from Friday evening until Sunday noon. This is a wonderful weekend to spend with like-minded families, ones who faithfully support research and intend to change the future for their children with PWS. Make your plans to join with us for an event that will inspire and strengthen your commitment to research. A complete schedule and registration packet will be available soon so be watching for more news about this important date! Our calendar is full of wonderful events this year, and there are more proposed events yet to be added. If you are interested in holding an event and need ideas or support, it is not too late and we would be glad to help. Please feel free to contact FPWR and let us know how we can help. Thanks for all of your encouragement and support for FPWR. Together, we are doing great things for our children with PWS. The future looks bright!

Rachel

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