About the Foundation for Prader-Willi Research (FPWR)

The Foundation for Prader-Willi Research (FPWR) is composed of parents, families, researchers, and others interested in addressing the issues that come with Prader-Willi syndrome and childhood obesity.

FPWR was founded in 2003 by parents of children with Prader-Willi syndrome (PWS). FPWR's mission is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. All proceeds go toward the support of Prader-Willi research. Members of FPWR believe that, through research, treatments can be found that will lessen the restrictions placed on individuals with PWS and their families. These advancements will provide those with the syndrome an opportunity to lead more independent lives.

How The Foundation for Prader-Willi Research Operates

Through a professionally managed grant process, FPWR selects research projects based on the collaborative input of researchers and parents, choosing projects that are both scientifically worthy and highly relevant for individuals with PWS and their families.

To date, the FPWR has committed more than $750,000 to support PWS-related research.

Twenty research projects have been funded since 2003, covering:
  • genetics and pathophysiology of PWS
  • mouse models of PWS
  • hunger and obesity
  • development of new therapeutic approaches
  • sleep disturbances in PWS
  • improving academic and learning skills for children with PWS

Research funded by FPWR has been published in top medical journals, including Nature, Neuroscience, Endocrinology, and International Journal of Molecular Medicine.

Join the Foundation for Prader-Willi Research and help find a cure for Prader-Willi syndrome!

Membership is only $50 a year and the dues to go help the FPWR operate and allocate more of its fundraising dollars to program services. Go here to learn more about how to become a member.

If you are not interested in membership, but wish to help, please consider supporting our cause by donating to the FPWR. Any amount helps our children. Thank you for your support!