Monday, April 14 2008
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Key 1
Working Together to Fund Prader-Willi Syndrome Research!
Friends,
[ Read more . . . ] Submitted by Rachel Tugon on Wed, 2008-03-26 18:56.
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New Diagnosis of Prader-Willi syndrome?
FPWR was founded by parents of children with Prader-Willi syndrome (PWS). We know what you are experiencing! Please know that much progress in research is being made to help children with PWS.
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Rachel's Corner
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Advocate for FPWR!
Our Annual Conference and our first ever Hike the Hill events were a success, but there is much more to be done!.
We need you to act now to help us get enough co-sponosors for HR 1386 to bring it up for a VOTE! support FPWR's prader-willi advocacy efforts today!
Look here for an update on our conference!
Upcoming Events
Sat Nov 1 2008
ROCHESTER HILLS, MI Brody's Ball 2008
Sun Nov 2 2008
NEW YORK CITY New York City Marathon
Sat Nov 15 2008
PHILADELPHIA, PA 3rd Annual Beef n Beer
Sun Nov 16 2008
Mar Vista Walk
VIEW THE CALENDAR
FPWR Photo Gallery
Golf Signs
Join FPWR
Learn about the FPWR and how you can help further our cause. We are a dynamic group of individuals with a focus on helping children with Prader-Willi syndrome.
» JOIN US TODAY!
» JOIN US TODAY!