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New Diagnosis of Prader-Willi syndrome?

FPWR was founded by parents of children with Prader-Willi syndrome (PWS). We know what you are experiencing! Please know that much progress in research is being made to help children with PWS.

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Rachel's Corner

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June 2008

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Sun	Mon	Tue	Wed	Thu	Fri	Sat
1	2	3	4	5 Key 1 One Little Mouse....One Big Dream (Updated:) 16:18	6 Key 2 What is Prader-Willi Syndrome? (Updated:) 16:27	7
8	9	10 Key 2 2008 FPWR Conference Agenda (Updated:) 09:25	11	12	13	14
15	16	17	18	19	20 Key 2 2008 FPWR Conference: CAMP FPWR Information (Updated:) 17:40	21
22	23	24	25 Key 1 Cicada Power (Updated:) 23:55	26 Key 3 Foundation for Prader-Willi Research Partners with the Salk Institute on Prader-Willi Syndrome Research (Updated:) 10:07 Key 3 The Foundation for Prader-Willi Research Awards Research Grant (Updated:) 10:14	27	28
29 Key 4 An improved mouse model of Prader-Willi syndrome (Updated:) 23:50 Key 4 The risk of early onset Alzheimer's disease in Prader-Willi syndrome (Updated:) 23:58	30 Key 4 Exploring the potential mitochondrial dysfunction in mouse models of Prader-Willi syndrome (Updated:) 00:04 Key 4 Activation of the maternal allele at the PWS/AS domain as a potential therapeutic approach (year 2) (Updated:) 00:14 Key 4 R-Loop structures maintain epigenetic imprints at the Prader-Willi imprinting center (Updated:) 00:15 Key 4 Behavioral treatment of obsessive-compulsive symptoms in youth with Prader-Willi syndrome: A pilot project (Updated:) 00:21

Advocate for FPWR!

Our Annual Conference and our first ever Hike the Hill events were a success, but there is much more to be done!.

We need you to act now to help us get enough co-sponosors for HR 1386 to bring it up for a VOTE! support FPWR's prader-willi advocacy efforts today!

Look here for an update on our conference!

Upcoming Events

Sat Nov 1 2008
ROCHESTER HILLS, MI Brody's Ball 2008

Sun Nov 2 2008
NEW YORK CITY New York City Marathon

Sat Nov 15 2008
PHILADELPHIA, PA 3rd Annual Beef n Beer

Sun Nov 16 2008
Mar Vista Walk

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Join FPWR

Learn about the FPWR and how you can help further our cause. We are a dynamic group of individuals with a focus on helping children with Prader-Willi syndrome.

» JOIN US TODAY!