Mel Levine/UNC PWS Research Supported by FPWR

Friends, Please read the following post from researchers at UNC working with Dr. Mel Levine. This study is funded by FPWR and we support this work proudly. Enjoy! Rachel ************** Researchers at the Clinical Center for Development and Learning (CDL) atthe University of North Carolina at Chapel Hill are conducting a study onlearning profiles of children with Prader-Willi Syndrome (PWS). Theresults of this study will be used to develop a tool for developinglearning plans specific for children with PWS.We are seeking 100 families of children ages 3-17 with PWS toparticipate in a questionnaire study. This study will involve parents andteachers completing a questionnaire designed to explore the educationaland cognitive strengths and needs of children with PWS. Parents will alsobe asked to complete three additional short questionnaires about theirchild¹s behavior and food preferences. Participation in this portion ofthe study will take approximately 30 minutes for teachers and 1 hour forparents. Parents will receive a letter outlining their child¹s strengthsand needs, with recommendations based on their child¹s profile.In addition, we are seeking 50 families to complete the above study; inaddition their child would participate in an assessment ofneuropsychological and educational abilities. The assessment at the CDLwill take approximately 3 hours. Families will receive a thank you giftand a full report of their child¹s neuropsychological and educationalstrengths and needs, with recommendations based on their child¹s profile.