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PWS Research Webinars

FPWR is pleased to offer research webinars throughout the year to present you with the latest in Prader-Willi syndrome research! A list of recorded webinars are below. For a full collection of recordings, please visit our YouTube Channel.

The Global PWS Registry Webinar, Spring 2020

Drs Theresa Strong and Jessica Bohonowych discuss the Global PWS Registry, what we have learned from the registry and how you can get started participating in the Registry.  Watch Webinar >>

Research Grants Webinar, Spring 2020

Learn more about the projects recently funded through the FPWR Grants Program. Theresa Strong, FPWR Director of Research Programs, shares details on each project, as well as outcomes from previously funded projects and new opportunities in PWS research. Watch Webinar >>

Research Grants Webinar, Fall 2019

Learn more about the projects recently funded through the FPWR Grants Program. Theresa Strong, FPWR Director of Research Programs, shares details on each project, as well as outcomes from previously funded projects and new opportunities in PWS research. Watch Webinar >>

Research Grants Webinar, Spring 2019

Learn more about the projects recently funded through the FPWR Grants Program. Theresa Strong, FPWR Director of Research Programs, shares details on each project, as well as outcomes from previously funded projects and new opportunities in PWS research. Watch Webinar >>

Research Grants Webinar, Fall 2018

Learn more about the projects recently funded through the FPWR Grants Program. Theresa Strong, FPWR Director of Research Programs, shares details on each project, as well as outcomes from previously funded projects and new opportunities in PWS research. Watch Webinar >>

PATH for PWS Webinar, Fall 2018

Learn more about a new study that will help us better understand serious medical events in PWS. PATH for PWS is a 4-year non-interventional study that is intended to inform the development and clinical trial design of potential new treatments. 500 caregivers of people with PWS are needed and we hope you will consider participation! Learn more about the study and participation in this short webinar!
Watch Webinar >>

Patient Voices Survey Summary

A summary of over 700 responses from the PWS community weighing in on our greatest challenges. Patient Voices Webinar Slides