PWS and Talk TV

After every PWS-related TV talk show comes on, it takes me some time to detox from the viewing. I have to remind myself that those stories do exist, but that's not our reality with Erin. Moreover, in FPWR,...

End-of-the-Year Letters

I was talking to Theresa today and the proposals are starting to come in. The deadline is December 1, so by Thursday we'll have all the news that is news. We were both so excited about the possibilities...

Our Sense of Urgency!

I think it is our realization of the sense of urgency in finding treatment/cure that sets us apart. Although it is important to contribute to an eventual answer, we are all parents of children who need help NOW!...

Thank You!

Everybody,
I am so thankful for all of the hard work that so many of you have done to raise money for PWS research through FPWR. We all have very busy lives and wonder how we will...

The Minority Report

Having grown up as a PK (preacher's kid), my childhood was full of stories from the Bible. This ones seems relevant to our conversation here.

When the tribes of Israel were getting ready to cross into the...

Gifts of FPWR Membership

Please take a minute to think of family members and friends who would benefit from membership in FPWR. How helpful it would be if more people understood PWS and the necessity of the work of FPWR. What better...