Memorial Donations

We have gotten several memorial gifts lately, donations from family and friends in honor of different ones of our chidren with PWS. In a note that accompanied a check from the cousin of "Young George", she writes

Ghrelin and seizures

Here’s an intriguing new study about ghrelin and seizures (go figure…), showing that people with epilepsy have significantly higher serum ghrelin levels than healthy individuals. The authors propose that high ghrelin levels may indicate a predisposition to seizure...

100th FPWR Family!!!

Jennifer and Justin,
We are all so glad to have you join our group and celebrate your being the 100th family! This is so exciting and a real landmark for our organization. We all look forward to...

2006 Kentucky Walk

Let's make this a banner year for the walk! It's so much more than a fundraiser. It's the one time of the year when we all get together, renew friendships, catch up on our children, discuss our challenges,...