The Other Shoe

One of the things that really stinks about PWS early on is that, as parents, we're always in the "waiting for the other shoe to drop" mode. (I wonder where that phrase came from. It's quite odd, isn't...

NQTF!

Sometimes, it seems like learning to live with this diagnosis involves mastering abbreviations. PWS...FPWR...GH...PT...OT...IEP...Etc. When we talk among ourselves, we understand each other easily, but those outside of our circles would have to take a crash course in...

Enlarged Adenoids

We were in a research project a couple of years back at the University of Louisville Sleep Center that studied children w/enlarged adenoids, like Erin's. They compared the results of six weeks of treatment w/Rhinocort (a prescription nasal...

Balancing Food and Exercise

Both girls are in camp this summer. The only problem we've had is the heat. We're just working around the hottest times of the day and enjoying all else. Erin is the Queen of the yoga class. Her...

Website Launch!

Friends,
For your viewing pleasure, FPWR's new website is now officially launched. Many, many thanks to Jeff and Kari Porter, Carol Craig, Theresa Strong and everyone else who helped make this the excellent work that it is....

New Website!!!

Thanks, everybody, for all the good feedback about the website. I can speak for all of us involved by saying that it was a labor of love and we are proud to present it as the face of...