FPWR Blog

In this 30‑minute video, Patrice Carroll, Elizabeth Roof, and Dr. Deepan Singh discuss strategies... Read more >
Source: FPWR Blog | Published: March 3 2024 - 08:30 AM
The PWS-Clinical Investigation Collaborative (PWS-CLIC) is a network of PWS clinical experts,... Read more >
Source: FPWR Blog | Published: March 3 2024 - 08:45 AM
In this 10‑minute video, Caroline Vrana-Diaz, FPWR Research Project Coordinator, explains how the... Read more >
Source: FPWR Blog | Published: March 3 2024 - 08:30 AM
Schaaf-Yang syndrome (SYS) is an ultra-rare disorder that was first identified in 2013. It is... Read more >
Source: FPWR Blog | Published: February 2 2024 - 08:30 AM
As Rare Disease Day approaches on February 29, we want to spotlight the extraordinary qualities of... Read more >
Source: FPWR Blog | Published: February 2 2024 - 08:30 AM
In this 85‑minute video, Dr. Christian Schaaf, medical director and department chair at the... Read more >
Source: FPWR Blog | Published: February 2 2024 - 09:30 AM
A paper has just been published that provides new insight into the use of feeding tubes in babies... Read more >
Source: FPWR Blog | Published: February 2 2024 - 12:45 PM
It is well established in science as well as culture that the smell of food is linked to appetite,... Read more >
Source: FPWR Blog | Published: January 1 2024 - 09:15 AM
In this one-hour and 2‑minute video, Dr. Parisa Salehi, a Pediatric Endocrinologist at Seattle... Read more >
Source: FPWR Blog | Published: January 1 2024 - 11:00 AM
2023 marks yet another record-breaking year in our pursuit of treatments for Prader-Willi (PWS) and... Read more >
Source: FPWR Blog | Published: January 1 2024 - 09:21 AM
The Hyperphagia Questionnaire for Clinical Trials (HQ-CT) is typically completed by caregivers for... Read more >
Source: FPWR Blog | Published: January 1 2024 - 09:00 AM
The Foundation for Prader-Willi Research is pleased to announce our VNS4PWS clinical trial is now... Read more >
Source: FPWR Blog | Published: January 1 2024 - 06:35 AM
In this 1 hour and 2‑minute video, Dr. Jessica Duis, an Associate Professor of Pediatrics and... Read more >
Source: FPWR Blog | Published: December 12 2023 - 09:00 AM
Many of the symptoms of Prader-Willi syndrome (PWS) are well known, including problems with the... Read more >
Source: FPWR Blog | Published: December 12 2023 - 09:00 AM