SEE YOU NEXT YEAR!

FPWR RESEARCH SYMPOSIUM AND FAMILY CONFERENCE
OCTOBER 3-5, 2019
NEW ORLEANS, LA

Featured 2018 Presentations

Watch the rest on our YouTube conference playlist.

FPWR Research Town Hall
PWS Behavior Panel
PWS Clinical Trial Session
Melanie Silverman Interview: Nutrition for PWS

About The Event

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FPWR's Annual Family Conference, held in conjunction with our PWS Research Symposium, is a powerful experience combining education, networking and community-building. Learn the latest in PWS research from experts in the field and have the opportunity to engage one-on-one with the researchers that have a deep interest in finding treatments for our loved ones with PWS.  In addition to presentations by PWS clinical experts, you will learn the latest in clinical trials and updates from the most promising research studies.

Featured 2018 Speakers

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Kolby Kail
Speech Pathalogist
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Kate Woodcock
Behavioral Psychologist
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Tony Chambers
Behavior Analyst
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Cindy Szapacs
Behavior Analyst
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Melanie Silverman
Registered Dietician
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A. Dimitropoulos
Professor of Psychology
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Elizabeth Roof
Sr. Research Specialist
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Christian Schaaf
Professor of Clinical Genomics

Family Conference Day 1 - Friday, October 5, 2018

09:00
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11:00
New Parent Session *
01:00
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01:15
Welcome to the FPWR Family Conference!
01:15
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02:30
FPWR Research Town Hall
02:45
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03:45
Breakout Session
Select from: PWS Behavior Panel, What have we learned about SYS?
04:00
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05:00
Breakout Session
Select from: Behavior Session with Kate Woodcock, Molecular Science Fireside Chat, Parents-to-Parents for Newly Diagnosed, Parents-to-Parents SYS Families
07:30
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10:30
Conference Welcome Reception

Family Conference Day 2 - Saturday, October 6, 2018

07:30
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09:00
Age Group Breakfast
09:00
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10:00
Breakout Session
Select from: PWS Clinical Trials Panel, USP7 Phenotyping Study, SYS & Sleep
10:10
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10:30
Interview with Melanie Silverman, Pediatric Registered Dietician
11:00
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12:15
Breakout Session
Select from: Multi-Stakeholder Collaboration: How the PWS Clinical Trials Consortium is Advancing Trials for PWS, Optimal Nutrition in Prader-Willi Syndrome, ABA (Part 1): Applied Behavior Analysis and PWS: Dispelling Myths and Changing Behavior
12:15
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01:45
Lunch and Round Table Topics
01:45
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03:00
Breakout Session
Select from: Improving Social Functioning in Children and Adults with PWS, Improving Clarity of Speech, ABA (Part II): Applied Behavior Analysis in the Education Setting: What to know and how to advocate.
03:30
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04:415
Breakout Session
Select from: Highlights from the FPWR Research Symposium, USP7 Research Update, SYS Family Session
04:15
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05:00
The Growth Mindset

Highlighted Sessions From the 2018 Program

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Join us for a special session just for new parents
This special pre-conference session the morning of Friday, October 5th is for parents who have received the PWS diagnosis within the last 24 months. Meet other new families and learn from parents who are on this same journey. Space is limited, please RSVP during ticket purchase.

 

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You won't want to miss our Clinical Trials Panel
There are more PWS clinical trials investigating treatments for PWS than ever! Stay up to date and learn the latest in current and upcoming clinical trials directly from trial representatives.

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Behavior, Behavior, Behavior!
Never before has there been this level of PWS behavior expertise together in one room! What have we learned about PWS behavior in recent trials and what is being done to help us overcome behavior challenges? Hear from the world's most relevant PWS behavior experts during our Behavior Panel then deep dive further during one of our behavior sessions!

 
Can't Get Enough of the Science?
 

Join us for the PWS Research Symposium 

Thursday, October 4th, 2018, from 9:00am-5:00pm

An exciting day of the latest breakthroughs in Prader-Willi syndrome research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience (researchers an academics). Parents are welcome to attend.

Research Symposium Registration $225

Learn more.

 

08:00
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09:00
Networking Breakfast
09:00
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05:00
Abstract Presentations
05:00
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07:00
Scientific Reception and Poster Sharing

Registration Details

Registration is now closed. 

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The Venue

DOUBLE TREE

300 Canal St, New Orleans LA‎

Accommodations

 For your convenience, a room block has been established for FPWR conference guests at the Double Tree, New Orleans.
Reservation details will be posted soon. 
OCTOBER 3 - 5, 2019
NEW ORLEANS, LA

Sign-up for Conference Updates

Our 2018 Sponsors

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