Foundation for Prader-Willi Blog

My Child is My Inspiration: If He Can Do It, So Can I

A special contribution by guest blogger Karina O'brien Karina shared her story via our Stories of Hope questionnaire.

December 30, 2016 Read More

Molecular Insights and a New Target for Drug Development in PWS [VIDEO]

Columbia University Medical Center (CUMC) researchers have discovered that a deficiency of the enzyme prohormone covertase (PC1) in the brain may be linked to most of the neuro-hormonal abnormalities in Prader-Willi syndrome (PWS), a genetic conditio...

December 27, 2016 Read More

Topics: Research

I Learned from My Daughter That Life is About Love

A special contribution by guest blogger Chelsea Balumas Chelsea shared her story via our Stories of Hope questionnaire.

December 23, 2016 Read More

Topics: Stories of Hope

PWS Grants & Discoveries, Message to FDA on Drug Development [Webinar]

On December 14, FPWR gave its quarterly webinar reporting on our PWS grants, and on recent research discoveries. In the webinar, which you can watch below, I recapped a recent meeting at the FDA, shared information on the new grants we've funded, and...

December 21, 2016 Read More

Topics: Research

You Can Help FPWR Better Understand Mental Wellness in PWS

We know that mental health is a critical part of quality of life for all individuals with PWS, and something every family wants to improve for their loved one with PWS. Two exciting projects below offer opportunities to contribute to PWS mental welll...

December 19, 2016 Read More

Topics: Research

Look for What is Good, Not What is Wrong

A special contribution by guest blogger Jeanne Huffman Jeanne shared her story via our Stories of Hope questionnaire.

December 16, 2016 Read More

Topics: Stories of Hope

Announcing our Second Round of PWS Research Grants from 2016!

The Foundation for Prader-Willi Research (FPWR), in collaboration with FPWR-Canada and FPWR-UK, is thrilled to announce our second round of PWS research recipients for 2016! Eight outstanding projects were selected for funding, totaling $746,200 in s...

December 12, 2016 Read More

Topics: Research

My Son Is More Than PWS: He Is A Miracle

A special contribution by guest blogger Heather Osterman Heather shared her story via our Stories of Hope questionnaire.

December 9, 2016 Read More

Topics: Stories of Hope

Language Delays and Success in the Classroom: Presentation by Ellen Brigger, M.Ed [VIDEO]

Many children with PWS are affected by early language delays. If those delays aren't addressed, the affects can be far-reaching, not just in school, but beyond. Research on these delays shows a number of therapies to be very effective, but it isn't r...

December 7, 2016 Read More

Topics: Research

Believe in Yourself and Believe in Your Child

A special contribution by guest blogger Lisa Miller Lisa shared her story via our Stories of Hope questionnaire.

December 2, 2016 Read More

Topics: Stories of Hope

Can Brain Stimulation Devices Modify Behavior or Hyperphagia in PWS?

Many of the symptoms of PWS, including hyperphagia and behavior issues, likely originate in atypical structure and/or function of neurons in the brain. This presents an additional challenge to designing drug therapies for PWS, because drugs targeted ...

December 1, 2016 Read More

Topics: Research

FPWR Blog

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My Child is My Inspiration: If He Can Do It, So Can I

Molecular Insights and a New Target for Drug Development in PWS [VIDEO]

I Learned from My Daughter That Life is About Love

PWS Grants & Discoveries, Message to FDA on Drug Development [Webinar]

You Can Help FPWR Better Understand Mental Wellness in PWS

Look for What is Good, Not What is Wrong

Announcing our Second Round of PWS Research Grants from 2016!

My Son Is More Than PWS: He Is A Miracle

Language Delays and Success in the Classroom: Presentation by Ellen Brigger, M.Ed [VIDEO]

Believe in Yourself and Believe in Your Child

Can Brain Stimulation Devices Modify Behavior or Hyperphagia in PWS?

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