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FPWR Blog

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Accelerating the Development of Treatments for PWS

While genetic therapy has the potential to be transformative for Prader-Willi syndrome, the fact is genetic therapy technology is still in its early stages and it could be many years before it’s viable for PWS. While FPWR continues to move genetic ap...
July 26, 2017 Read More

Topics: Research

Dr. Dimitropoulos: Boosting Social Cognition in PWS With Pretend Play

Imaginative play has an important role in child development. Scientific evidence suggests that the ability to engage in "pretend play" may translate into increased abilities in social interactions and social-cognitive function. However, children with...
July 24, 2017 Read More

Topics: Research

Brain Stimulation (tDCS) Research Shows Promise for Hyperphagia in PWS

Many of the clinical trials for therapies in PWS involve a drug treatment of some sort. However, there is also ongoing work exploring other ways to improve behaviors and possibly hyperphagia (excessive appetite) in PWS. One such approach is transcran...
July 19, 2017 Read More

Topics: Research

Human Growth Hormone for Adults with PWS

This article is adapted from a presentation by Jennifer Miller, Ph.D. Both children and adults who have been diagnosed with PWS will show symptoms of growth hormone deficiency including low muscle mass and poor cognitive development. Human growth hor...
July 17, 2017 Read More

Topics: Research

Human Growth Hormone Dosing for PWS

This article is adapted from a presentation by Jennifer Miller, Ph.D. Human growth hormone therapy for PWS been proven to improve characteristic delays in physical and social development, and the cognitive benefits of human growth hormone for PWS are...
July 10, 2017 Read More

Topics: Research

Your Child With PWS Can Have a Beautiful Life

A special contribution by guest blogger Loraine Hernandez Loraine shared her story via our Stories of Hope questionnaire. How has your child exceeded your expectations? With the horrible scenario at the hospital when she was born, I really didn't hav...
July 7, 2017 Read More

Topics: Stories of Hope

Reiter Studies PWS Genetics With Dental Pulp Stem Cells

You may have seen requests for parents to donate the lost baby teeth of their children with PWS for research. What can these baby teeth do for Prader-Willi research? The answer is that Dr. Lawrence Reiter has implemented a novel technique for studyin...
July 6, 2017 Read More

Topics: Research

Incidence of Autism In People With PWS Lower Than Previously Thought

The potential overlap between PWS and symptoms of autism spectrum disorder (ASD) has been the subject of discussion and research for some time now. In the past, research found estimates of autism in people with PWS to be as high as 41%. But on June 5...
July 5, 2017 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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440 N Barranca Ave #3620
Covina, CA 91723

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