New York City Gala to Honor Extraordinary Contributions to Prader Willi Syndrome

The Foundation for Prader-Willi Research will honor the contributions of New York philanthropists Irina and Leon Shaulov. On November 13, 2014 the Foundation for Prader-Willi Research (FPWR) will hold its 2nd annual New York City Live Life FULL Gala event at Stage 48 in New York City. 

The event will raise funds for the foundation’s international research programs and honor the incredible contributions of the Happy Baby Foundation and their founders, Irina and Leon Shaulov of Manhattan. “We are thrilled to partner with the Foundation for Prader-Willi syndrome and look forward to a sensational evening of entertainment, education and celebration.

This cause is very close to our hearts and we are so grateful that many of our friends have agreed to support our efforts,” shared Irina Shaulov, event Co-Chair and honoree. Among the event’s confirmed guests are television personality Donny Deutsch and American Ballet Theater principal dancer Misty Copeland along with a veritable who’s who list of New York’s financial sector elite.

The evening will feature a high-end cocktail reception with entertainment by New York-based Eturnity Band Orchestra and DJ Enicay as well as live and silent auctions featuring goods from New York’s top retailers.  One of the most noteworthy auction items of the evening comes from luxury timepiece & diamond jewelry house, Jacob&Co. who has donated an elegant timepiece from their Brilliant collection to benefit the cause.  

The exquisite watch, valued at $22,500, features pave treatments totaling 3.95 carats of white brilliant diamonds on the bezel, crown and pave dial, complementing the center band of mother of pearl. Jacob&Co. Founder, Jacob Arabov, who will be attending the event with wife, Angela Arabo, says of the brand’s participation in the auction,“My wife and I deeply admire the work of both The Foundation for Prader-Willi Research, and the Shaulov family, and are honored to support such a wonderful event.”

All funds raised will be invested in cutting-edge research projects addressing the characteristics of Prader-Willi syndrome. Prader-Willi syndrome is a rare, genetic disorder affecting approximately 1 in 15,000 people globally. Nearly every system in the body is impacted by a PWS diagnosis but the hallmark symptom is extreme hunger.

A person with PWS never feels full. To make matters worse, this is coupled with a slow metabolism where the person with PWS only needs about 60% of the calories of their typical peers. Other common symptoms include behavioral challenges, Obsessive Compulsive Disorder, anxiety, sleep problems, scoliosis, and much more.

If you would like more information about this event, please contact Hannah Berger at Hannah.Berger@fpwr.org.

Topics: Research

Hannah Berger

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Hannah joined the FPWR family in July 2014. With more than 12 years of non-profit fundraising experience, Hannah will provide PR and Communications support and lead all resource development efforts nationally including special campaigns, donor recognition, major gifts philanthropy and volunteer fundraiser support. Hannah is a graduate of the University of California, Irvine and holds a Master’s degree in Public Administration with an emphasis in non-profit sector management.

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