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A community is only as strong as its members make it. Our community is made up of amazing specialists, dedicated researchers, and determined parents who strive to eliminate the challenges of PWS. FPWR celebrates these individuals. Do you know someone who should be highlighted in our PWS People Section? Submit your nomination here.

Meet Gwyn Spearman!

Gwyn’s daughter Ellie was the first baby of the New Year 2012 in Spartanburg County, South Carolina.  She stayed in the NICU for 30 days, and was diagnosed with Prader-Willi syndrome (deletion) at eight weeks of age. In honor...

cindy thompson

Cindy Thomson Knows No Limits!

Battling PWS entails pushing through many trials and tribulations. Smooth sailing is hardly ever the case when it comes to raising a child with PWS. However, some families are presented with more challenges than others. Cindy and Glen Thomson,...

Rachel Hansen (left) is hosting her third One SMALL Step walk in Paris this year with co-host Caroline Richard (bottom)

Rachel Hansen: Breaking Barriers

It’s no secret that FPWR is an organization that is recognized internationally. This doesn’t happen without the efforts of amazing parents around the world who choose to be proactive and spread awareness; parents like Rachel Hansen. Rachel who is...

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Jeannine Kowal: Pushing the Limits

Having a child with Prader-Willi Syndrome can push you to do many things you never imagined yourself doing. Many have started eating healthier, exercising more, counting calories, cutting out foods that used to be a part of our daily...