Vagus Nerve Stimulation in PWS
In a small pilot study, Dr. Holland applied VNS to 3 adults with Prader-Willi syndrome and reported remarkable improvements in behavior, a major challenge for many with PWS. Since the initial pilot study, VNS technology has improved so that VNS can now be applied with an external device, eliminating the need for an invasive surgery. Dr. Holland is currently working to complete a proof of concept study of VNS using an external device. He has already collected 6 months of baseline data from patients enrolled in the study and will spend the next year measuring how VNS impacts behavior.
FPWR is thrilled to see the progress that Dr. Holland and his team have made, and we want to fully support their continued efforts to determine whether VNS can help those with PWS. This critical research has the potential to be transformative in the lives of our loved ones with PWS and we hope you will consider helping us support Dr. Holland’s work.
We have the potential to help our loved ones lead FULL and independent lives but we can only do this with your help! Thank you for your dedication to our mission and helping us find transformative treatments for our children!
We that our supporters whose generous donations are making this project possible!
Jane and David Cabie
The Pelzer Family
Mary and Tom Smith
Neil and Christine Currie
Robert and Christine Marusza
Linda and Mickey Mattingly
We would like to publicly acknowledge our donors who support Dr. Holland and the investigation of VNS for PWS! When you give $100 or more your name (or the name of your honoree) will be included on our donor list and shared via email at the end of the campaign. Give $500 or more and you (or your honoree) will be publicly acknowledged on our FPWR Facebook page! Please send a photo for your Facebook acknowledgement to firstname.lastname@example.org.