Chantilly Tennis Bash

17 August 2019
11 AM - 5 PM
Chantilly VA,



person with PWSPrader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. It affects males and females as well as all races and ethnicities equally. PWS is recognized as the most common genetic cause of life-threatening childhood obesity. Common characteristics of PWS include small stature, very low lean body mass, hypotonia (weak muscles), insatiable hunger, and intellectual disability. Currently there is no cure for PWS.

Our Foundation's research is critical to the acceleration of therapies that will ultimately lead to new ways of treating PWS. Your donation to this event will help fund the partnerships, grants, educational initiatives and resources that place our work at the center of scientific progress.

FPWR is a 501(c)3 nonprofit corporation. Tax ID 31-1763110