Rare Disease Day 2020

29 February 2020
All Day
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Show Your Stripes!

The Zebra, known for its distinctive black and white stripes, has become the official symbol of rare disease. The unique stripes of the Zebra are what make each individual distinct. Despite there being more than 7,000 unique rare diseases, there are many commonalities that unite us.

On the rarest day of the year, Feb 29th, 2020, we are coming together in unity to celebrate rare disease day.

What can you do to participate?

  1. 3Send us a photo by Feb 25th with you, your loved one and/or your family proudly wearing your stripes and we will share it on our FB and Instagram pages!
  2. Spread awareness with our facebook profile frame.
  3. Set up a virtual fundraiser and share your rare story!
  4. Wear stripes on Feb 29th - take a photo and share on social media with hashtags: #showyourstripes #rarediseaseday2020 #PWSresearch #FPWR

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