Emma Roth

In the summer of 1999, Mark Roth and Lauren Schwartz-Roth of Seattle, WA were expecting their first child with great anticipation. However, during the pregnancy, Lauren noticed decreased fetal movement, and when the doctor confirmed that the baby was...

Dante Johnson

“Happy 30th Birthday to you, Keegan Johnson, and, by the way, your son has Prader-Willi syndrome!” Although the news wasn’t delivered in song, that was what was presented to Keegan and Tanya Johnson on the day they planned to...

FPWR Canada

The Foundation for Prader-Willi Research welcomed its first international affiliate, FPWR Canada, in 2007. Founded by families of people with PWS, FPWR Canada now serves as Canada’s sole national PWS organization.