Lin’s grandson William was born in 2014 and diagnosed very quickly with PWS. She decided that she wanted to do something positive to help the charity and to give her something to focus on.

In 2016 Lin and her family attended a OSS walk which motivated her to start more fundraising and her involvement with the charity has grown over the years. As a retired teacher Lin gives up her free time to help with admin and fundraising.

You can contact Lin for all of your fundraising enquiries –

Catherine founded the UK charity in 2010 after receiving the diagnosis of her daughter Eleanor with PWS. Initially contacting the FPWR in America for help organising a One Small Step Walk, she has since worked tirelessly to grow the charity and its fundraising.

In 2014 Vicki joined the FPWR UK board when she contacted the charity for help organising her One Small Step Walk. Mum to Bella, 3, with PWS she is passionate about fundraising and hopes that through continued advancement of research to make the lives of those living with the syndrome more manageable. As director to her own pub company in Stockport, Cheshire, Vicki has a business background which is helping the FPWR UK to expand and develop.

Tim is father to Leo, who was diagnosed with PWS when he was 10 weeks old (now 4 yrs old). Tim came from a science background and was intrigued by what research was currently being done. After getting in touch with Catherine he discovered that the FPWR UK was still in its very early stages and volunteered to help in any way he could. Tim runs a hotel marketing company and his experience has helped FPWR-UK setup as a strong charity organisation. He truly believes that research holds the hope for a more positive future for Leo and all those with PWS.

Kate joined the charity in April 2016 through her connection with Vicki and Bella. With a marketing background she is hoping to broaden the charity’s fundraising channels through increased publicity and exposure.