Our partners at Prader-Willi Syndrome Association Vic established the Go Orange for PWS day to help spread the word about PWS awareness month. In 2017 we teamed up and now sell orange t-shirts with the logo helping the day go global!
Vicki Almond, board member of the FPWR UK and director of the Stockport based pub company, established the connection in 2013. Almond Family Pubs now dedicates its entire fundraising to the FPWR UK, holding events during the year, including their OSS Pub Walk.
The Foundation for Prader-Willi Research was established in America 2003 by a small group of parents who saw the need to foster research that would help their children with Prader-Willi syndrome lead healthier and more fulfilling lives.
The Foundation for Prader-Willi Research welcomed its first international affiliate, FPWR Canada, in 2007. Founded by families of people with PWS, FPWR Canada now serves as Canada’s sole national PWS organization.