Research Blog

This guest blog was contributed by researchers Elisabeth Dykens and Elizabeth Roof of Vanderbilt University  Does your loved one with PWS have hyperphagia? The answer isn't as simple as yes or no. Even if your loved one does not display the hallmark hunger, there are likely other aspects of...
Source: FPWR Blog | Published: December 12 2018 - 11:30 AM
This blog is based on the Research Town Hall presented by the FPWR Research team at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've summarized each presentation below.
Source: FPWR Blog | Published: November 11 2018 - 09:00 AM
Our FPWR funded researchers are working hard to eliminate the challenges of PWS. How about spreading some cheer this season by sending a holiday card thanking them for their work? Mailing addresses for FPWR's currently funded researchers are below or can be downloaded here. 
Source: FPWR Blog | Published: November 11 2018 - 07:34 AM
The Foundation for Prader-Willi Research and the Angelman Syndrome Foundation are funding the world’s largest newborn screening study for four rare genetic disorders: Angelman, Prader-Willi, Fragile X and Dup15q syndromes. The Victorian Medical Research Acceleration Fund this year also contributed...
Source: FPWR Blog | Published: November 11 2018 - 09:03 AM
On Wednesday, October 10th, the inaugural Live Life Full DC took place at Army Navy Country Club in Arlington, VA. The event raised nearly $300,000 for PWS research and included guest speakers President Bill Clinton, Special Olympic Chairman, Tim Shriver, and Gold Medalist Special Olympic Swimmer,...
Source: FPWR Blog | Published: October 10 2018 - 11:06 AM