Research Blog

The Foundation for Prader-Willi Research (FPWR) and Zafgen are pleased to announce that enrollment is now open for PATH for PWS, a natural history study intended to better understand serious medical events in Prader-Willi syndrome (PWS) and evaluate how PWS-related behaviors change over time. The...
Source: FPWR Blog | Published: October 10 2018 - 10:24 AM
Several NEW PWS trial opportunities are now available. FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely. Some trials are testing new drugs while others are...
Source: FPWR Blog | Published: September 9 2018 - 09:00 AM
The PWS Clinical Trial Consortium has recently been granted the unique chance to have a Critical Path Innovation Meeting with representatives of the FDA. The meeting will take place in November in Silver Spring, Maryland. This is a unique opportunity for the consortium and the PWS community to...
Source: FPWR Blog | Published: September 9 2018 - 09:00 AM
Mental health and behavioral problems are a major challenge for individuals with Prader-Willi syndrome (PWS), with significant impacts on quality of life and independence for both the person with PWS and their family. In 2015, FPWR conducted a two-day workshop bringing together approximately 45 top...
Source: FPWR Blog | Published: September 9 2018 - 07:21 AM
We’re in the home stretch before the 2018 FPWR Family Conference, and the only thing missing is you! From Oct. 4-6 in Las Vegas, we’ll bring together families, caregivers, researchers and PWS experts for education, networking and community-building. We’re also excited to welcome parents of...
Source: FPWR Blog | Published: August 8 2018 - 10:00 AM