Research Blog

In our latest podcast, Lauren Schwartz-Roth, clinical psychologist and mom to a young adult with PWS, shares tips on how to stay calm and manage anxiety during COVID-19. To listen, just click above, or read below for a list of tips to start using today.
Source: FPWR Blog | Published: March 3 2020 - 03:32 PM
You won’t want to miss these speakers at the 2020 FPWR Family Conference this October in Chicago, Illinois. Inspiration, hope, people who get it — that’s the 2020 FPWR Family Conference! You don’t want to miss joining like-minded game-changers with direct access to the people, knowledge, and...
Source: FPWR Blog | Published: March 3 2020 - 09:00 AM
The FPWR Family Conference takes place October 1-3, in Chicago, IL. Here are the top 10 reasons you need to be there! 10. Chicago! Nightlife, live music, culture, and great food are all at your convenience! Shop and explore the Millennium Park and the Chicago Riverwalk; go on a tour of the city...
Source: FPWR Blog | Published: March 3 2020 - 09:00 AM
Soleno therapeutics recently completed enrollment of their ongoing Phase III Clinical trial, DESTINY PWS, and is expecting to announce top-line data the first half of 2020. The study is evaluating once-daily Diazoxide Choline Controlled-Release (DCCR) tablets for patients with Prader Willi Syndrome...
Source: FPWR Blog | Published: March 3 2020 - 10:30 AM
  For parents of an infant with PWS, one of the first major challenges they face is feeding difficulties and having their baby consume enough nutrition and calories. Data from the Global PWS Registry shows that more than 75% of registry participants required a feeding tube in infancy. 
Source: FPWR Blog | Published: February 2 2020 - 12:20 PM