![PWS Registry Data: Skin Picking in PWS [INFOGRAPHIC]](https://www.fpwr.org/hubfs/Skin%20Picking%20Registry%20Infographic%20-%20March%202024-1.png)
Individuals with PWS often exhibit a variety of self-injurious behaviors, and one of the most common of these is skin picking. Individuals typically start with a fixation on some imperfection in the skin. This can be a rough or dry patch of skin, an insect bite, scab or a scratch. Picking at this...
Source: FPWR Blog
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Published: April 4 2024 - 08:45 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely. Some trials are testing new drugs while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: April 4 2024 - 08:18 AM
![Sleep and Schaaf-Yang Syndrome [2023 CONFERENCE VIDEO]](https://www.fpwr.org/hubfs/sleep%20and%20SYS.jpeg)
In this 74‑minute video, Dr. Joanna Wrede, a pediatric sleep neurologist at Seattle Children’s Hospital, explains how sleep disorders are identified and treated in children with Schaaf-Yang syndrome.
Source: FPWR Blog
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Published: April 4 2024 - 08:45 AM
![Behavior and Mental Health - Age 5 and Up [2023 CONFERENCE VIDEO]](https://www.fpwr.org/hubfs/Blog%20Post%20-%20conference%20video%20-%20Behavior%20and%20Mental%20Health%20-%20Age%205%20and%20Up.png)
In this 30‑minute video, Patrice Carroll, Elizabeth Roof, and Dr. Deepan Singh discuss strategies for addressing behavioral and mental health challenges in children aged 5 and up with Prader-Willi syndrome.
Source: FPWR Blog
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Published: March 3 2024 - 08:30 AM
The PWS-Clinical Investigation Collaborative (PWS-CLIC) is a network of PWS clinical experts, formally established in 2021. The work of the PWS-CLIC is supported by FPWR. This network has expanded over the past two years and now includes 25 clinical sites in the United States and 3 clinical sites...
Source: FPWR Blog
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Published: March 3 2024 - 08:45 AM
