FPWR Blog

PWS Clinical Trial Consortium and FDA Hold Key Meeting This November
PWS Clinical Trial Consortium and FDA Hold Key Meeting This November
The PWS Clinical Trial Consortium has recently been granted the unique chance to have a Critical Path Innovation Meeting with representatives of the FDA. The meeting will take place in November in Silver Spring, Maryland. This is a unique opportunity for the consortium and the PWS community to...
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Source: FPWR Blog | Published: September 9 2018 - 09:00 AM
Progress on 10 Recommendations from PWS Mental Health Research Workshop
Progress on 10 Recommendations from PWS Mental Health Research Workshop
Mental health and behavioral problems are a major challenge for individuals with Prader-Willi syndrome (PWS), with significant impacts on quality of life and independence for both the person with PWS and their family. In 2015, FPWR conducted a two-day workshop bringing together approximately 45 top...
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Source: FPWR Blog | Published: September 9 2018 - 07:21 AM
FPWR Conference Spotlight: You!
FPWR Conference Spotlight: You!
We’re in the home stretch before the 2018 FPWR Family Conference, and the only thing missing is you! From Oct. 4-6 in Las Vegas, we’ll bring together families, caregivers, researchers and PWS experts for education, networking and community-building. We’re also excited to welcome parents of...
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Source: FPWR Blog | Published: August 8 2018 - 10:00 AM