PWS Patient Voices Survey Report

PWS-Patient-Voices-Survey-510x660-4The PWS Patient Voices Survey was developed by patient advocacy groups and was completed by 750 parents and caregivers of people with PWS.

This 28-page summary compiles the results of the survey. It is an excellent source of information on parents' and caregivers' views on:

  • The symptoms associated with PWS that affect day‑to‑day living
  • Unmet medical needs of people with PWS
  • The effectiveness of current medications
  • Drug development priorities
  • Clinical trials

This report is a product of the PWS Clinical Trial Consortium, which is facilitating the development and approval of safe and effective therapies for PWS.

To download this free resource, just fill out the form!