Foundation for Prader-Willi Research

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"Finding My People"

One mother's FPWR conference experience.

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Family Stories

Learn how other families just like yours have dealt with a diagnosis of PWS and have taken action to change their loved ones' futures!

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PWS Clinical Trials Alert - September 2016
For more information on the opportunities below, as well as others, please visit our PWS Clinical Trials Opportunities page or clinicaltrials.gov (and search for "prader-willi"). We encourage members of the PWS community to seek out information that will help them decide... Read more »
Published: September 28, 2016 - 9:00 am
FPWR Receives $30,000 PCORI Award for Real World Data Workshop
The Patient-Centered Outcomes Research Institute (PCORI) has awarded FPWR $30,000 to support real world data research readiness in the Prader-Willi syndrome community! This support was awarded to FPWR as a Eugene Washington PCORI Engagement Award. ... Read more »
Published: September 26, 2016 - 10:20 am
Elizabeth Roof To Discuss Social Functioning in PWS At Oct. Conference
Individuals with PWS want to be included in social gatherings and are interested in participating in social activities. Often times, however, deficits in social communication and other social skills, combined with the need for food security, can make socializing a challenge,... Read more »
Published: September 21, 2016 - 9:00 am

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