FPWR Blog
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It has been an exciting time for PWS research and clinical trials. The field has been working hard... Read more >
Source: FPWR Blog
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Published: November 11 2023 - 09:00 AM
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One of the most important roles FPWR serves is that of a ‘convener’, bringing together those with... Read more >
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Published: November 11 2023 - 10:15 AM
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A special blog contribution from Karla Leighty. Prior to Lana's birth, our daughter-in-law,... Read more >
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Published: November 11 2023 - 09:15 AM
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We are pleased to announce the recipients of the second round of grants for 2023, totaling... Read more >
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Published: November 11 2023 - 09:15 AM
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Did you know that by simply sending a card, you have the power to make a difference in the lives of... Read more >
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Published: November 11 2023 - 09:00 AM
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Soleno Therapeutics recently shared data from their DESTINY PWS study, an international,... Read more >
Source: FPWR Blog
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Published: October 10 2023 - 09:00 AM
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The Harvesting Hope Distance Challenge is back, and it's your chance to join a heartwarming... Read more >
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Published: October 10 2023 - 09:00 AM
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PWSA | USA (Prader-Willi Syndrome Association | USA) and FPWR (Foundation for Prader-Willi... Read more >
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Published: September 9 2023 - 05:35 AM
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We are excited to share the news that Soleno has announced positive, statistically significant... Read more >
Source: FPWR Blog
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Published: September 9 2023 - 07:40 AM
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It is well known that individuals with Prader-Willi syndrome (PWS) display muscle weakness,... Read more >
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Published: September 9 2023 - 09:15 AM
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Attending a conference means being around people who get it—they understand the journey you have... Read more >
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Published: August 8 2023 - 09:00 AM
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Being a mom and a psychologist, I have often wondered about the impact of growing up with a person... Read more >
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Published: August 8 2023 - 09:00 AM
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A special blog contribution from our 2023 FPWR Art Auction Participants! Our 2023 Artist of the... Read more >
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Published: August 8 2023 - 08:30 AM
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Aardvark Therapeutics, a clinical stage biopharmaceutical company, has reported receipt of a Rare... Read more >
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Published: August 8 2023 - 02:21 PM
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Recently, a matching donor came forward, igniting the $25,000 Challenge. Today, we want to... Read more >
Source: FPWR Blog
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Published: August 8 2023 - 08:00 AM