FPWR Blog

Gillian Segall Inspires PWS Community With Message of Hope  [2019 CONFERENCE VIDEO]
Gillian Segall is an 18-year-old high school senior from Chicago, who loves to swim and take care of animals and also happens to have PWS. In this inspiring 15-minute interview, Gillian kicks off the 2019 FPWR Family Conference in New Orleans. Click below to watch the video, and scroll down for a...
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Source: FPWR Blog | Published: November 11 2019 - 07:30 AM
Levo Therapeutics Receives Fast Track Designation From FDA for Intranasal Carbetocin for the Treatment of Prader-Willi Syndrome
Levo Therapeutics Receives Fast Track Designation From FDA for Intranasal Carbetocin for the Treatment of Prader-Willi Syndrome
Levo Therapeutics has received a Fast Track designation from the FDA for intranasal carbetocin for the treatment of PWS. A Fast Track designation will expedite the review of carbetocin so that, if shown to be effective, the product will get to market faster. This is very important for PWS as...
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Source: FPWR Blog | Published: November 11 2019 - 08:48 AM
IEPs and PWS — Advocating for Your Child  [2019 CONFERENCE VIDEO]
IEPs and PWS — Advocating for Your Child  [2019 CONFERENCE VIDEO]
In this 51-minute video, Dr. Katy Chambers helps understand the IEP (Individualized Education Plan) process and succeed in the IEP journey. Katy Chambers is a school principal of nine years and mom to Daniel (age 7), who lives with PWS. She shares her journey maneuvering the educational system from...
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Source: FPWR Blog | Published: November 11 2019 - 07:34 AM