FPWR Blog

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‘The Small Stuff Doesn’t Matter’: A Story of Hope from Sheri Mills
A special blog contribution from Sheri Mills. Sheri shared her story via our Stories of Hope... Read more >
Source: FPWR Blog | Published: January 1 2023 - 09:00 AM
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What's Happening in PWS Research [2022 Conference Video]
In this one hour and 17-minutevideo, Dr. Theresa Strong and the FPWR research team explore recent... Read more >
Source: FPWR Blog | Published: January 1 2023 - 09:00 AM
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Watching for Mental Health Issues
Lauren Schwartz-Roth, clinical psychologist and mom to a young adult with PWS, shares how to... Read more >
Source: FPWR Blog | Published: January 1 2023 - 09:15 AM
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Standards of Care for People with PWS [2022 Conference Video]
In this one-hour video, Dr. Diane Stafford, Pediatric Endocrinologist at Stanford University,... Read more >
Source: FPWR Blog | Published: December 12 2022 - 09:00 AM
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New Gene Therapy Approach Improves Metabolic Function and Behavior in Mouse Model of PWS
A recently published paper explores a novel gene therapy approach for PWS, delivering a ‘growth... Read more >
Source: FPWR Blog | Published: December 12 2022 - 08:00 AM
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PWS Registry Data: Living Situations for People With PWS Change As They Get Older [INFOGRAPHIC]
As individuals with PWS grow up into young adulthood and age into mid-life years, some continue to... Read more >
Source: FPWR Blog | Published: December 12 2022 - 12:19 PM
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A Message From FPWR's Newest Research Team Member: Lisa Burnett
Hello FPWR friends! I’m Lisa Burnett and I am thrilled to share that I’ve recently joined the FPWR... Read more >
Source: FPWR Blog | Published: December 12 2022 - 09:00 AM
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Advancing Hope: New Therapies for PWS [2022 Conference Video]
In this 50‑minute video, Dr. Tony Holland, Dr. Lauren Schwartz, and Dr. Deepan Singh discuss two... Read more >
Source: FPWR Blog | Published: November 11 2022 - 09:00 AM
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PWS Early Interventions: 5 Therapies for Prader-Willi Syndrome
The time immediately following a diagnosis of PWS can be very difficult, and parents typically are... Read more >
Source: FPWR Blog | Published: November 11 2022 - 10:00 AM
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Harmony Biosciences Announces Topline Results From Phase 2 Pitolisant Study
Today, Harmony Biosciences announced topline data on the primary outcome, excessive daytime... Read more >
Source: FPWR Blog | Published: November 11 2022 - 10:49 AM
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FPWR Announces Funding of $1.8M for Research Grants
The Foundation for Prader-Willi Research announces our second round of Research Awards in... Read more >
Source: FPWR Blog | Published: October 10 2022 - 08:00 AM
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Introducing PADQ: a New PWS-Specific Measure for Anxiousness & Distress
Thanks to almost 900 PWS families who completed multiple surveys in the Global PWS Registry, a new... Read more >
Source: FPWR Blog | Published: October 10 2022 - 07:00 AM
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Sleep Apnea in People with PWS
Is your loved one getting a good night’s sleep? Sleep apnea is a major concern for people with... Read more >
Source: FPWR Blog | Published: October 10 2022 - 10:11 AM
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Harvesting Hope Distance Challenge Returns
Back by popular demand is FPWR's Harvesting Hope Distance Challenge! Nearly 100 virtual trotters... Read more >
Source: FPWR Blog | Published: September 9 2022 - 08:30 AM
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