FPWR Blog

Results have now been published on a study looking at eye tracking and hyperphagia in younger... Read more >
Source: FPWR Blog | Published: July 7 2020 - 11:47 AM
When it comes to dermatological or skin issues in PWS, the first things that may come to mind are... Read more >
Source: FPWR Blog | Published: June 6 2020 - 12:00 PM
Soleno Therapeutics has announced top-line results from the company’s phase 3 trial, DESTINY PWS... Read more >
Source: FPWR Blog | Published: June 6 2020 - 07:21 AM
A special contribution by guest blogger Alice Shapley Our beautiful and amazing 7‑year‑old daughter... Read more >
Source: FPWR Blog | Published: May 5 2020 - 08:00 AM
  The Foundation for Prader-Willi Research announces our first round of Research Awards in 2020... Read more >
Source: FPWR Blog | Published: May 5 2020 - 08:25 AM
COVID-19 has made all of our homes feel a bit smaller these days... Living together 24/7 has surely... Read more >
Source: FPWR Blog | Published: April 4 2020 - 10:44 AM
On May 1 we are kicking off Prader-Willi Syndrome Awareness Month! Since 2010, PWS Awareness month... Read more >
Source: FPWR Blog | Published: April 4 2020 - 12:17 PM
With COVID-19 keeping many of us indoors and isolated from our friends and family, we are all... Read more >
Source: FPWR Blog | Published: April 4 2020 - 08:10 AM
A new pilot project is seeking funding to map the genomes of 50 people with PWS and integrate that... Read more >
Source: FPWR Blog | Published: April 4 2020 - 09:52 AM
COVID-19 has made all of our homes feel a bit smaller these days... Living together 24/7 has surely... Read more >
Source: FPWR Blog | Published: April 4 2020 - 10:40 AM
Although many symptoms of PWS are difficult to treat, impaired vision is a place where corrective... Read more >
Source: FPWR Blog | Published: April 4 2020 - 12:00 PM
Most of us are not trained educators, yet with COVID-19 closing schools around the country and many... Read more >
Source: FPWR Blog | Published: April 4 2020 - 01:02 PM
In addition to our regular clinical trial updates below, we have two clinical trial announcements... Read more >
Source: FPWR Blog | Published: April 4 2020 - 09:00 AM
  An Update to the Prader-Willi community from Harmony Biosciences: As you may know, the team at... Read more >
Source: FPWR Blog | Published: April 4 2020 - 12:32 PM