FPWR Blog

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RareCAP: A New Resource Bringing Expert PWS Care Within Reach
Finding a doctor who understands Prader-Willi syndrome (PWS) isn’t always easy—especially in urgent... Read more >
Source: FPWR Blog | Published: May 5 2025 - 10:00 AM
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Clinical Trials Matter: Three PWS Families Share Their Views
Harmony Biosciences recently met with three families impacted by Prader-Willi syndrome (PWS) to... Read more >
Source: FPWR Blog | Published: May 5 2025 - 05:00 AM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: May 5 2025 - 02:43 PM
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Can We Treat Circadian Rhythm Disruption in PWS? New Research Offers Hope
Human beings have adapted to our planet's 24-hour days. The body goes through daily cycles that... Read more >
Source: FPWR Blog | Published: May 5 2025 - 09:00 AM
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We Need 15 Minutes of Your Time: Help Advance PWS Treatments by Joining the MY-HQ Project
We’re excited to share an important opportunity for families in the Prader-Willi syndrome (PWS)... Read more >
Source: FPWR Blog | Published: May 5 2025 - 09:00 AM
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Summary From the PWS Community Town Hall: Sharing Experiences with VYKAT XR
On Tuesday, April 22, PWSA | USA and FPWR offered a PWS Community Town Hall for caregivers and... Read more >
Source: FPWR Blog | Published: April 4 2025 - 05:30 AM
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The FPWR Therapeutic Accelerator Program: Bridging Research and Development
Much of the research supported by FPWR is considered “basic science” or “discovery” research. The... Read more >
Source: FPWR Blog | Published: April 4 2025 - 09:00 AM
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May is #PWSAwareness Month!
Each May, our community comes together to shine a light on Prader-Willi syndrome and accelerate the... Read more >
Source: FPWR Blog | Published: April 4 2025 - 05:35 AM
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Growing Up Alongside PWS: The Hidden Struggles and Strengths of Siblings
Lauren Schwartz-Roth, clinical psychologist and mom to a young adult with PWS, shares insights on... Read more >
Source: FPWR Blog | Published: April 4 2025 - 04:30 AM
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DCCR (VYKAT XR) Approved for Treating Hyperphagia in Prader-Willi Syndrome
We are thrilled to share that the FDA has approved the first treatment for hyperphagia (excessive... Read more >
Source: FPWR Blog | Published: March 3 2025 - 02:29 PM
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Announcing the Launch of the Global Schaaf-Yang Syndrome Registry
FPWR is pleased to announce the launch of the Global Schaaf-Yang Syndrome Registry, an online... Read more >
Source: FPWR Blog | Published: March 3 2025 - 12:29 PM
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Your Impact 2024
Everything we do is made possible by you—our dedicated supporters and partners on this journey.... Read more >
Source: FPWR Blog | Published: March 3 2025 - 06:35 AM
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School Interrupted: Three Families Share their Experiences with PWS and Excessive Daytime Sleepiness at School
Harmony Biosciences recently interviewed three families about their experiences with Prader-Willi... Read more >
Source: FPWR Blog | Published: March 3 2025 - 06:30 AM
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The Power of Representation in the PWS Community
When Karine’s son, Olivier, was diagnosed with Prader-Willi Syndrome (PWS), she searched for... Read more >
Source: FPWR Blog | Published: March 3 2025 - 06:42 AM
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