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Spring Cleaning? Put Your Efforts Towards Supporting PWS Research!
Looking for a quick FUNdraiser this spring? Grab a few friends and de-clutter for donations! Here's how to host a spring cleaning fundraiser for PWS research in 4 easy steps: 1. Ask supporters to donate items to your “garage sale” that... Read more »
Source: FPWR Blog | Published: May 24, 2018 - 4:00 pm
How Patients Can Partner to Speed Treatments for PWS [WEBINAR]
On May 15, PWSA-USA and FPWR jointly presented the webinar How Patients Can Partner to Speed Treatments for PWS. The webinar provided important information about PWS clinical trials including: what to expect when participating in a trial, what questions you should... Read more »
Source: FPWR Blog | Published: May 22, 2018 - 7:00 pm
Dr. Elisabeth Dykens Receives Rare Impact Award From National Organization for Rare Disorders
FPWR congratulates Dr. Elisabeth Dykens, who was awarded last night with a Rare Impact Award by the National Organization for Rare Disorders. Dr. Dykens may best be known in the Prader-Willi syndrome (PWS) community for developing the Dykens Hyperphagia Questionnaire, an... Read more »
Source: FPWR Blog | Published: May 17, 2018 - 4:00 pm

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