FPWR Blog
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Saniona has received an orphan drug designation for their drug, Tesomet, for the treatment of PWS.... Read more >
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Published: March 3 2021 - 07:22 AM
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A special contribution by guest blogger Lindsey Larson Elliot earned the nickname “hero” before he... Read more >
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Published: March 3 2021 - 08:44 AM
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Tonix Pharmaceuticals has licensed technology using oxytocin-based therapeutics from the French... Read more >
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Published: February 2 2021 - 01:20 PM
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The last day of February is Rare Disease Day. This special guest blog by Rebecca was originally... Read more >
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Published: February 2 2021 - 08:43 AM
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Soleno Therapeutics and Vanderbilt University announce a new collaboration which aims to discover... Read more >
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Published: February 2 2021 - 11:31 AM
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In this 60‑minute video, Patrice Carroll, director of PWS services at Latham Centers in... Read more >
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Published: February 2 2021 - 08:00 AM
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Brian Kalasek is both a father of a young son with PWS and VP of Special Risk for Mutual of Omaha... Read more >
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Published: February 2 2021 - 11:00 AM
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In this 88‑minute video, Dr. Deepan Singh discusses what anxiety looks like in PWS, what leads to... Read more >
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Published: February 2 2021 - 08:00 AM
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There has never been a more critical time to keep research pushing forward. We need your help to... Read more >
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Published: February 2 2021 - 12:14 PM
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FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
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Published: January 1 2021 - 07:00 AM
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In the last 5 years, more than 15 human clinical trials have taken place evaluating possible... Read more >
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Published: January 1 2021 - 08:00 AM
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In 2020, more than 9,500 donors supported PWS research and our mission to eliminate the challenges... Read more >
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Published: January 1 2021 - 09:14 AM
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Two recently released studies represent good first steps to identifying possible uses of probiotic... Read more >
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Published: January 1 2021 - 08:00 AM
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2021 brings new opportunities to learn even more about PWS and improve the health of those living... Read more >
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Published: January 1 2021 - 11:50 AM