FPWR Blog

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People With PWS Share Their Hopes and Struggles In New Study
A tremendous amount of work has been done by The PWS Clinical Trials Consortium to understand and... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
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Insights Into the Sleep, Seizures, and Psychiatric Behaviors in PWS
A newly published paper examines sleep disorders, seizures, and psychiatric concerns in PWS. Thanks... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
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IPWSO Survey Finds Most COVID-Positive People With PWS Had Mild Cases
COVID-19 infections may be particularly worrisome for our loved ones with PWS, since many of the... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
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Sleep Disorders and PWS [2021 CONFERENCE VIDEO]
In this 1 hour and 19‑minute video, Dr. Aaron Chidekel, a pediatric sleep specialist, and Cindy... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
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"It's a Decade of Declan!" Says PWS Hero and Mom
A special contribution by guest blogger Allison Shelton On the occasion of Declan’s tenth birthday... Read more >
Source: FPWR Blog | Published: June 6 2022 - 09:00 AM
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Strategies for Managing Behavior in PWS [2021 CONFERENCE VIDEO]
In this one hour and 17‑minute video, Dr. Tony Holland, Emeritus Professor of Psychology, Cambridge... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
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PWS Clinical Trials Alert
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: May 5 2022 - 09:12 AM
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Exciting New Treatment May Reduce Disruptive Behaviors in PWS
Recent evidence from FPWR-supported studies show that Vagus Nerve Stimulation (VNS) may reduce... Read more >
Source: FPWR Blog | Published: May 5 2022 - 07:45 AM
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Baby Teeth Cells Give Insight on the Molecular Basis of Autism in PWS
In Prader‑Willi syndrome (PWS), the two main genetic subtypes are PWS by deletion (a small part of... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
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‘Most exceptional human being that I know’: PWS Mom Inspired by Son
A special contribution by guest blogger Rebecca Krylow. Rebecca shared her story via our Stories of... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
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FPWR Announces 1st Round of 2022 Grants of Over $1M in Funding [VIDEO]
The Foundation for Prader-Willi Research announces our first round of Research Awards in 2022... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
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A Photo of Your Loved One May Help Another Family Receive a Diagnosis
Rare genetic disorders can often be challenging to diagnose, resulting in a long diagnostic... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM
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Feeding Techniques for Children Ages 0-2 [2021 CONFERENCE VIDEO]
In this 59‑minute video, Sara Parker, MA, a pediatric speech pathologist, discusses feeding... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM
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Ghrelin drug shows no impact on hyperphagia in PWS in a clinical trial
Ghrelin is a small hormone produced in the stomach that stimulates increased appetite. Although it... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM
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