FPWR Blog

In this 67‑minute video, Dr. Theresa Strong and the FPWR Research Team share highlights of projects... Read more >
Source: FPWR Blog | Published: January 1 2022 - 12:00 PM
Soleno Therapeutics has provided an update following recent interactions with the U.S. Food and... Read more >
Source: FPWR Blog | Published: January 1 2022 - 08:47 AM
Levo Therapeutics, announced today that it has received a Complete Response Letter (CRL) from the... Read more >
Source: FPWR Blog | Published: January 1 2022 - 06:51 AM
Saniona, a clinical-stage biopharmaceutical company focused on rare diseases, has announced the... Read more >
Source: FPWR Blog | Published: January 1 2022 - 12:00 PM
A special contribution by guest blogger Charlotte Kellar. Charlotte shared her story via our... Read more >
Source: FPWR Blog | Published: December 12 2021 - 12:00 PM
In this 1-hour video, Dr. Jessica Duis, Clinical Geneticist from  Children's Hospital Colorado... Read more >
Source: FPWR Blog | Published: December 12 2021 - 01:03 PM
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: December 12 2021 - 09:12 AM
In this 1-hour video, Dr. Jessica Duis, Clinical Geneticist from  Children's Hospital Colorado... Read more >
Source: FPWR Blog | Published: December 12 2021 - 01:38 PM
Natalie is a veteran to our community of dedicated movers and shakers and has been involved with... Read more >
Source: FPWR Blog | Published: November 11 2021 - 01:00 PM
In a disappointing decision, a panel of independent advisers to the Food and Drug Administration... Read more >
Source: FPWR Blog | Published: November 11 2021 - 04:02 PM
The Foundation for Prader-Willi Research (FPWR), Foundation for Angelman Syndrome Therapeutics... Read more >
Source: FPWR Blog | Published: November 11 2021 - 09:00 AM
October is Mental Health Screening Month, and we're encouraging our PWS community to learn more... Read more >
Source: FPWR Blog | Published: October 10 2021 - 12:00 PM
Would you like to be part of our community-wide effort to advocate for new treatments for PWS? The... Read more >
Source: FPWR Blog | Published: October 10 2021 - 06:45 AM
Hyponatremia is a condition where the sodium (salt) levels in the body are too low. If sodium... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:00 AM