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Dr. Jennifer Miller: Standards of Care for PWS [VIDEO]
This blog provides a brief summary of Standards of Care for PWS, a presentation given by Dr. Jennifer Miller at the FPWR 2017 conference. Dr. Jennifer Miller, a pediatrician and researcher at the University of Florida, has studied hundreds of people living... Read more »
Published: September 18, 2017 - 4:00 pm
Results of Beloranib Clinical Trial In PWS Published
The results of Zafgen's phase 3 study evaluating the use of the drug beloranib to curb hunger and induce weight loss in individuals with PWS has been published. The study was conducted by McCandless, et al; an abstract is here. Those familiar with this... Read more »
Published: September 15, 2017 - 4:00 pm
Mom Urges Parents to 'Build Our Village' By Joining the PWS Registry
I'm thrilled to announce the Global PWS Registry, launched in 2015, now has more than 1,100 participants enrolled! If you haven't enrolled, please visit the registry website today to get started. If you have enrolled, please update your information in the registry. It's... Read more »
Published: September 13, 2017 - 4:00 pm

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