FPWR Blog

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What's Happening in PWS Research [2020 CONFERENCE VIDEO]
Join Dr. Theresa Strong and the FPWR Research Team to learn more about what is happening in PWS... Read more >
Source: FPWR Blog | Published: November 11 2020 - 08:00 AM
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PWS Clinical Trials Panel [2020 CONFERENCE VIDEO]
PWS clinical trials are taking place around the world to help us understand Prader-Willi syndrome... Read more >
Source: FPWR Blog | Published: November 11 2020 - 08:00 AM
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'The Growth Was Within Myself': A PWS Mom Counts Blessings
A special contribution by guest blogger Joni Augustine. Joni shared her story via our Stories of... Read more >
Source: FPWR Blog | Published: November 11 2020 - 08:00 AM
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PWS Clinical Trials Alert
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: October 10 2020 - 09:56 AM
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Adenotonsillectomy as a Treatment for Obstructive Sleep Apnea in PWS
High quality sleep is essential to a child’s growth and development. Obstructive sleep apnea (OSA)... Read more >
Source: FPWR Blog | Published: October 10 2020 - 08:00 AM
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I’ve Spent My Life Preparing For This: PWS Mom Shares Sources of Strength
— A special contribution by guest blogger Jacquelyn Kotar. Jacquelyn shared her story via our... Read more >
Source: FPWR Blog | Published: October 10 2020 - 08:00 AM
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November 15th Is International 15q Day
Together, the Foundation for Prader-Willi Research, Angelman Syndrome Foundation and Dup15q... Read more >
Source: FPWR Blog | Published: October 10 2020 - 04:05 AM
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With PWS Research, There Is Renewed Hope for Peyton
On April 18th, 2012, our beautiful daughter, Peyton, was born. At 5lbs, 7oz, she was little, but... Read more >
Source: FPWR Blog | Published: October 10 2020 - 10:30 AM
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Looking for a fun and safe way to get your supporters involved?
There has never been a more critical time to keep research pushing forward and we need your help!... Read more >
Source: FPWR Blog | Published: October 10 2020 - 10:51 AM
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Changes In Weight and BMI In Adolescents and Adults with PWS
In this 6-minute video, Drs. Theresa Strong and Caroline Vrana-Diaz review data and findings from... Read more >
Source: FPWR Blog | Published: September 9 2020 - 09:00 AM
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Top 10 Reasons to Attend the 2020 Virtual PWS Family Conference
The FPWR Family Conference takes place October 6-9, and this year, it's virtual and free. Here are... Read more >
Source: FPWR Blog | Published: September 9 2020 - 09:00 AM
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FPWR and PWSA-USA Partner for Telehealth Needs Assessment
FPWR and the Prader-Willi Syndrome Association | USA (PWSA | USA) have partnered to conduct a study... Read more >
Source: FPWR Blog | Published: August 8 2020 - 07:02 AM
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We Celebrate Our Life with PWS
A special contribution by guest blogger Jennifer Lee Three little words changed our lives forever:... Read more >
Source: FPWR Blog | Published: August 8 2020 - 09:00 AM
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Carbetocin for PWS: Phase 3 Clinical Trial Results Announced
Today, Levo Therapeutics announced the promising results of their Phase 3 Clinical Trial of... Read more >
Source: FPWR Blog | Published: August 8 2020 - 05:40 AM
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