FPWR Blog

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Our First 2021 Venture Philanthropy Investment: Aardvark Therapeutics
In support of our mission to advance the development of new treatments for Prader-Willi syndrome... Read more >
Source: FPWR Blog | Published: June 6 2021 - 10:00 AM
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PWS Clinical Trials Alert
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: June 6 2021 - 10:53 AM
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Pitolisant for Excessive Daytime Sleepiness in PWS [2020 CONFERENCE VIDEO]
In this 30‑minute video, Albena Patroneva from Harmony Biosciences explains what pitolisant is and... Read more >
Source: FPWR Blog | Published: June 6 2021 - 10:00 AM
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Next Steps In PWS Advocacy
For more than a decade, FPWR has partnered with families and other PWS groups (PWSA|USA, IPWSO) to... Read more >
Source: FPWR Blog | Published: June 6 2021 - 09:00 AM
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FPWR and PWSA|USA Request Regulatory Flexibility & Review of NDA for Intranasal Carbetocin
In a continuation of our joint advocacy efforts supporting the full review of potential drugs for... Read more >
Source: FPWR Blog | Published: June 6 2021 - 04:15 AM
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FPWR Announces First Round of 2021 Grant Awards for PWS Research [VIDEO]
The Foundation for Prader-Willi Research announces our first round of Research Awards in 2021... Read more >
Source: FPWR Blog | Published: June 6 2021 - 09:00 AM
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FPWR and PWSA | USA Announce Upcoming Meeting with FDA
With your support, FPWR and PWSA | USA have been granted a meeting with the FDA, which will take... Read more >
Source: FPWR Blog | Published: June 6 2021 - 07:45 AM
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Hyperphagia Leads to Increased Caregiver Burden Across the Lifespan
Hyperphagia is a life-long concern for individuals with PWS and their caregivers. In a recently... Read more >
Source: FPWR Blog | Published: May 5 2021 - 12:00 PM
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Optimal Nutrition for People With PWS [2020 CONFERENCE VIDEO]
In this 60‑minute workshop, Melanie Silverman explains optimal nutrition for children and adults... Read more >
Source: FPWR Blog | Published: May 5 2021 - 09:00 AM
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FPWR Launches First of Kind PWS Genome Project
FPWR is pleased to announce the launch of an exciting new research study: the PWS Genome Project.... Read more >
Source: FPWR Blog | Published: May 5 2021 - 09:00 AM
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What Does Effective PWS Treatment Advocacy Look Like?
Last fall, the PWS community was excited to see two drugs complete Phase III clinical trials: both... Read more >
Source: FPWR Blog | Published: May 5 2021 - 12:00 PM
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Orthopedic Challenges in Prader‑Willi Syndrome [2020 CONFERENCE VIDEO]
In this 60‑minute workshop, Dr. Van Bosse discusses the diagnosis and treatment of orthopedic... Read more >
Source: FPWR Blog | Published: May 5 2021 - 09:00 AM
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FAQ: DCCR, Drug Development, and Advocacy
Since Soleno's announcement that the FDA will require an additional clinical trial before accepting... Read more >
Source: FPWR Blog | Published: April 4 2021 - 09:45 AM
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Keeping Your Loved One With PWS Safe On The Internet
Let's be frank: our loved ones, like all of us, are spending more and more time online. Some PWS... Read more >
Source: FPWR Blog | Published: April 4 2021 - 08:00 AM
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