FPWR Blog

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Improving the PWS Clinical Trial Experience for Families and Clinical Study Site Staff
It has been an exciting time for PWS research and clinical trials. The field has been working hard... Read more >
Source: FPWR Blog | Published: November 11 2023 - 09:00 AM
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Grandma Runs the NYC Marathon in Honor of Grandchild
A special blog contribution from Karla Leighty. Prior to Lana's birth, our daughter-in-law,... Read more >
Source: FPWR Blog | Published: November 11 2023 - 09:15 AM
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FPWR Announces 2nd Round of 2023 Grants
We are pleased to announce the recipients of the second round of grants for 2023, totaling... Read more >
Source: FPWR Blog | Published: November 11 2023 - 09:15 AM
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From Holidays to Baby Showers: Your Custom Card Can Make A Difference
Did you know that by simply sending a card, you have the power to make a difference in the lives of... Read more >
Source: FPWR Blog | Published: November 11 2023 - 09:00 AM
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Recordings from FPWR’s Annual Family Conference: What’s Next for DCCR?
Soleno Therapeutics recently shared data from their DESTINY PWS study, an international,... Read more >
Source: FPWR Blog | Published: October 10 2023 - 09:00 AM
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2023 Harvesting Hope Distance Challenge: Make a Real Difference
The Harvesting Hope Distance Challenge is back, and it's your chance to join a heartwarming... Read more >
Source: FPWR Blog | Published: October 10 2023 - 09:00 AM
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FPWR Partners with PWSA | USA to Provide BOSS Social Skills Groups for Teens and Adults with PWS
PWSA | USA (Prader-Willi Syndrome Association | USA) and FPWR (Foundation for Prader-Willi... Read more >
Source: FPWR Blog | Published: September 9 2023 - 05:35 AM
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Soleno Therapeutics Announces Positive Statistically Significant Top-line Results from Randomized Withdrawal Period of Study C602 of DCCR for Prader-Willi Syndrome
We are excited to share the news that Soleno has announced positive, statistically significant... Read more >
Source: FPWR Blog | Published: September 9 2023 - 07:40 AM
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Progressive Resistance Training in Young People With PWS: Protocol for a Randomized Trial (PRESTO)
It is well known that individuals with Prader-Willi syndrome (PWS) display muscle weakness,... Read more >
Source: FPWR Blog | Published: September 9 2023 - 09:15 AM
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Life-Changing Connections: Families Share Why They Love the FPWR Conference
Attending a conference means being around people who get it—they understand the journey you have... Read more >
Source: FPWR Blog | Published: August 8 2023 - 09:00 AM
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Growing Up Alongside Prader-Willi Syndrome
Being a mom and a psychologist, I have often wondered about the impact of growing up with a person... Read more >
Source: FPWR Blog | Published: August 8 2023 - 09:00 AM
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Artist of the Year 2023 Winners
A special blog contribution from our 2023 FPWR Art Auction Participants! Our 2023 Artist of the... Read more >
Source: FPWR Blog | Published: August 8 2023 - 08:30 AM
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Aardvark Announces Rare Disease Designation and Expands Ongoing Phase 2 Trial
Aardvark Therapeutics, a clinical stage biopharmaceutical company, has reported receipt of a Rare... Read more >
Source: FPWR Blog | Published: August 8 2023 - 02:21 PM
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Generous Donor Ignites the $25,000 Challenge
Recently, a matching donor came forward, igniting the $25,000 Challenge. Today, we want to... Read more >
Source: FPWR Blog | Published: August 8 2023 - 08:00 AM
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