FPWR Blog

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Study Supports Eye Tracking to Measure Hyperphagia in PWS
Results have now been published on a study looking at eye tracking and hyperphagia in younger... Read more >
Source: FPWR Blog | Published: July 7 2020 - 11:47 AM
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PWS Registry Data: Dermatology [INFOGRAPHIC]
When it comes to dermatological or skin issues in PWS, the first things that may come to mind are... Read more >
Source: FPWR Blog | Published: June 6 2020 - 12:00 PM
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Top-line Results Announced for Phase 3 Trial Evaluating DCCR for PWS
Soleno Therapeutics has announced top-line results from the company’s phase 3 trial, DESTINY PWS... Read more >
Source: FPWR Blog | Published: June 6 2020 - 07:21 AM
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Once She Sets Her Mind to Something, Nothing Can Stop Her!
A special contribution by guest blogger Alice Shapley Our beautiful and amazing 7‑year‑old daughter... Read more >
Source: FPWR Blog | Published: May 5 2020 - 08:00 AM
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FPWR Announces First Round of 2020 Grant Awards for PWS Research
  The Foundation for Prader-Willi Research announces our first round of Research Awards in 2020... Read more >
Source: FPWR Blog | Published: May 5 2020 - 08:25 AM
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Practical Tips for Behavior Intervention At Home
COVID-19 has made all of our homes feel a bit smaller these days... Living together 24/7 has surely... Read more >
Source: FPWR Blog | Published: April 4 2020 - 10:44 AM
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May is #PWSAwareness Month | We Have Your PWS Awareness Resources
On May 1 we are kicking off Prader-Willi Syndrome Awareness Month! Since 2010, PWS Awareness month... Read more >
Source: FPWR Blog | Published: April 4 2020 - 12:17 PM
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Bringing Joy During COVID-19 With Interactive Activities
With COVID-19 keeping many of us indoors and isolated from our friends and family, we are all... Read more >
Source: FPWR Blog | Published: April 4 2020 - 08:10 AM
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PWS Genome Project Needs Crowdfunding
A new pilot project is seeking funding to map the genomes of 50 people with PWS and integrate that... Read more >
Source: FPWR Blog | Published: April 4 2020 - 09:52 AM
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Strategies for Managing PWS Related Behaviors During COVID-19
COVID-19 has made all of our homes feel a bit smaller these days... Living together 24/7 has surely... Read more >
Source: FPWR Blog | Published: April 4 2020 - 10:40 AM
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Vision and Prader-Willi Syndrome
Although many symptoms of PWS are difficult to treat, impaired vision is a place where corrective... Read more >
Source: FPWR Blog | Published: April 4 2020 - 12:00 PM
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At-Home Learning Strategies for Students with PWS During COVID-19
Most of us are not trained educators, yet with COVID-19 closing schools around the country and many... Read more >
Source: FPWR Blog | Published: April 4 2020 - 01:02 PM
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PWS Clinical Trials Alert
In addition to our regular clinical trial updates below, we have two clinical trial announcements... Read more >
Source: FPWR Blog | Published: April 4 2020 - 09:00 AM
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Harmony postpones enrollment for phase 2 study of Pitolisant in PWS
  An Update to the Prader-Willi community from Harmony Biosciences: As you may know, the team at... Read more >
Source: FPWR Blog | Published: April 4 2020 - 12:32 PM
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