FPWR Blog

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Changes In Weight and BMI In Adolescents and Adults with PWS
In this 6-minute video, Drs. Theresa Strong and Caroline Vrana-Diaz review data and findings from... Read more >
Source: FPWR Blog | Published: September 9 2020 - 09:00 AM
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PWS Registry Data: Impact of COVID-19 on PWS Families [INFOGRAPHIC]
The Global PWS Registry recently launched a survey to capture the impact of COVID-19 on PWS... Read more >
Source: FPWR Blog | Published: August 8 2020 - 07:26 AM
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FPWR and PWSA-USA Partner for Telehealth Needs Assessment
FPWR and the Prader-Willi Syndrome Association | USA (PWSA | USA) have partnered to conduct a study... Read more >
Source: FPWR Blog | Published: August 8 2020 - 07:02 AM
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We Celebrate Our Life with PWS
A special contribution by guest blogger Jennifer Lee Three little words changed our lives forever:... Read more >
Source: FPWR Blog | Published: August 8 2020 - 09:00 AM
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Carbetocin for PWS: Phase 3 Clinical Trial Results Announced
Today, Levo Therapeutics announced the promising results of their Phase 3 Clinical Trial of... Read more >
Source: FPWR Blog | Published: August 8 2020 - 05:40 AM
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Facial and Voice Processing Issues Affect Social Interactions in PWS
Children and adults with PWS frequently show impairments in their social interactions. New research... Read more >
Source: FPWR Blog | Published: July 7 2020 - 09:00 AM
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Hip Dysplasia in Babies with PWS May Not Need Aggressive Treatment
A new study looking at the long-term consequences of early hip dysplasia does not support an... Read more >
Source: FPWR Blog | Published: July 7 2020 - 09:15 AM
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Car-aoke, Other Creative Fundraisers Fueled By Social Distance
During a time when much feels uncertain, one constant that we can count on is the never ending... Read more >
Source: FPWR Blog | Published: July 7 2020 - 07:17 AM
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Scoliosis In PWS Covered In New Publication
Parents may want to download and keep a copy of a newly available review on scoliosis in PWS. The... Read more >
Source: FPWR Blog | Published: July 7 2020 - 09:00 AM
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Study Supports Eye Tracking to Measure Hyperphagia in PWS
Results have now been published on a study looking at eye tracking and hyperphagia in younger... Read more >
Source: FPWR Blog | Published: July 7 2020 - 11:47 AM
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Evidence For Accelerated Aging In Young Adults with PWS
Two recent papers address an area that has received very limited attention to date, aging in... Read more >
Source: FPWR Blog | Published: June 6 2020 - 09:00 AM
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PWS Registry Data: Dermatology [INFOGRAPHIC]
When it comes to dermatological or skin issues in PWS, the first things that may come to mind are... Read more >
Source: FPWR Blog | Published: June 6 2020 - 12:00 PM
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Top-line Results Announced for Phase 3 Trial Evaluating DCCR for PWS
Soleno Therapeutics has announced top-line results from the company’s phase 3 trial, DESTINY PWS... Read more >
Source: FPWR Blog | Published: June 6 2020 - 07:21 AM
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Once She Sets Her Mind to Something, Nothing Can Stop Her!
A special contribution by guest blogger Alice Shapley Our beautiful and amazing 7‑year‑old daughter... Read more >
Source: FPWR Blog | Published: May 5 2020 - 08:00 AM
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