FPWR Blog

FPWR is pleased to announce the launch of an exciting new research study: the PWS Genome Project.... Read more >
Source: FPWR Blog | Published: May 5 2021 - 09:00 AM
In this 60‑minute workshop, Dr. Van Bosse discusses the diagnosis and treatment of orthopedic... Read more >
Source: FPWR Blog | Published: May 5 2021 - 09:00 AM
Since Soleno's announcement that the FDA will require an additional clinical trial before accepting... Read more >
Source: FPWR Blog | Published: April 4 2021 - 09:45 AM
Let's be frank: our loved ones, like all of us, are spending more and more time online. Some PWS... Read more >
Source: FPWR Blog | Published: April 4 2021 - 08:00 AM
Dear members of the PWS community, We at Soleno Therapeutics would like to provide an update on the... Read more >
Source: FPWR Blog | Published: April 4 2021 - 04:26 PM
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: April 4 2021 - 07:00 AM
Where are we with respect to new treatments for PWS? What are our next steps and how can the... Read more >
Source: FPWR Blog | Published: April 4 2021 - 07:37 AM
FPWR and PWSA|USA have submitted a petition letter to the FDA requesting them to apply regulatory... Read more >
Source: FPWR Blog | Published: April 4 2021 - 06:45 AM
In this 90‑minute workshop, Drs. Janice Forster and Stuart Libman provide Acceptance and Commitment... Read more >
Source: FPWR Blog | Published: April 4 2021 - 08:00 AM
There has never been a more critical time to keep research pushing forward. We need your help to... Read more >
Source: FPWR Blog | Published: March 3 2021 - 10:20 AM
When it comes to hormone imbalances in Prader-Willi syndrome (PWS), growth hormone deficiency and... Read more >
Source: FPWR Blog | Published: March 3 2021 - 08:21 AM
Harmony Biosciences has published a white paper sharing outcomes from a Summit on Sleep Disruption... Read more >
Source: FPWR Blog | Published: March 3 2021 - 08:34 AM
In this 75-minute video experts Elizabeth Roof, Anastasia Dimitropoulos, Louise Gallagher, and... Read more >
Source: FPWR Blog | Published: March 3 2021 - 09:00 AM
Neuren Pharmaceuticals has added Prader-Willi syndrome to their development pipeline for compound... Read more >
Source: FPWR Blog | Published: March 3 2021 - 10:25 AM