FPWR Blog

NEW Tool to Help Measure Anxiety and Distress in PWS
NEW Tool to Help Measure Anxiety and Distress in PWS
Please help us measure anxiety in PWS!
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Source: FPWR Blog | Published: July 7 2018 - 08:15 AM
PWS Registry Data: 88% Have Received Speech Therapy [INFOGRAPHIC]
PWS Registry Data: 88% Have Received Speech Therapy [INFOGRAPHIC]
Speech requires a complex combination of cognitive processing to quickly find and combine the right words, paired with the physical process of producing sounds. Since PWS impacts a variety of pathways that contribute to speech and sound development, it is not surprising that 88% of individuals...
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Source: FPWR Blog | Published: July 7 2018 - 11:32 AM
FPWR Conference Spotlight: PWS Behavior Experts
FPWR Conference Spotlight: PWS Behavior Experts
For every FPWR Family Conference, we introduce new panels, topics or activities, and this year I’m excited to announce our first-ever panel with three of the world’s most relevant PWS behavior experts. Moderator Lauren Roth will lead panelists Elizabeth Roof, Kate Anne Woodcock and Anastasia...
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Source: FPWR Blog | Published: July 7 2018 - 09:00 AM