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New PWS Explainer Video Describes Prader-Willi Syndrome In 3 Minutes
In just 3 minutes, FPWR's new video, What Is Prader-Willi Syndrome?, explains the basics of PWS — how it occurs, some of the challenges of PWS, and promising research into treatments. Narrated by Susan Hedstrom, Executive Director of FPWR and the... Read more »
Source: FPWR Blog | Published: May 31, 2018 - 6:00 pm
Spring Cleaning? Put Your Efforts Towards Supporting PWS Research!
Looking for a quick FUNdraiser this spring? Grab a few friends and de-clutter for donations! Here's how to host a spring cleaning fundraiser for PWS research in 4 easy steps: 1. Ask supporters to donate items to your “garage sale” that... Read more »
Source: FPWR Blog | Published: May 24, 2018 - 4:00 pm
How Patients Can Partner to Speed Treatments for PWS [WEBINAR]
On May 15, PWSA-USA and FPWR jointly presented the webinar How Patients Can Partner to Speed Treatments for PWS. The webinar provided important information about PWS clinical trials including: what to expect when participating in a trial, what questions you should... Read more »
Source: FPWR Blog | Published: May 22, 2018 - 7:00 pm

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