• Share your photo with FPWR!

    Share your photo with FPWR!

    Our loved ones with PWS are beautiful. Share your photo with us!

  • "Finding My People"

    One mother's FPWR conference experience.

  • Create a fundraising page to help fund additional PWS research.

  • Family Stories

    Family Stories

    Learn how other families just like yours have dealt with a diagnosis of PWS and have taken action to change their loved ones' futures!

News

Prader-Will Syndrome Awareness Month

Prader-Willi Awareness Month

The month of May, nationally recognized as Prader-Willi Awareness Month, holds a special place in the hearts of PWS families. But do you know how PWS Awareness Month came to be? We will forever be thankful to Amy Porter,...

Kimber with Daddy

Making the Future Brighter

How can we make the future a bit brighter for our loved ones with Prader-Willi syndrome?   It Starts with US! 5 potential drug treatments for Prader-Willi syndrome are currently in clinical trials and more are coming down the...

Get the Latest FPWR and PWS News!

You will receive our newsletter and email blasts about upcoming events and PWS-related issues.

Our Partners