FPWR Blog

Children and adults with PWS frequently show impairments in their social interactions. New research... Read more >
Source: FPWR Blog | Published: July 7 2020 - 09:00 AM
During a time when much feels uncertain, one constant that we can count on is the never ending... Read more >
Source: FPWR Blog | Published: July 7 2020 - 07:17 AM
Parents may want to download and keep a copy of a newly available review on scoliosis in PWS. The... Read more >
Source: FPWR Blog | Published: July 7 2020 - 09:00 AM
Results have now been published on a study looking at eye tracking and hyperphagia in younger... Read more >
Source: FPWR Blog | Published: July 7 2020 - 11:47 AM
Two recent papers address an area that has received very limited attention to date, aging in... Read more >
Source: FPWR Blog | Published: June 6 2020 - 09:00 AM
When it comes to dermatological or skin issues in PWS, the first things that may come to mind are... Read more >
Source: FPWR Blog | Published: June 6 2020 - 12:00 PM
Soleno Therapeutics has announced top-line results from the company’s phase 3 trial, DESTINY PWS... Read more >
Source: FPWR Blog | Published: June 6 2020 - 07:21 AM
A special contribution by guest blogger Alice Shapley Our beautiful and amazing 7‑year‑old daughter... Read more >
Source: FPWR Blog | Published: May 5 2020 - 08:00 AM
  The Foundation for Prader-Willi Research announces our first round of Research Awards in 2020... Read more >
Source: FPWR Blog | Published: May 5 2020 - 08:25 AM
COVID-19 has made all of our homes feel a bit smaller these days... Living together 24/7 has surely... Read more >
Source: FPWR Blog | Published: April 4 2020 - 10:44 AM
On May 1 we are kicking off Prader-Willi Syndrome Awareness Month! Since 2010, PWS Awareness month... Read more >
Source: FPWR Blog | Published: April 4 2020 - 12:17 PM
With COVID-19 keeping many of us indoors and isolated from our friends and family, we are all... Read more >
Source: FPWR Blog | Published: April 4 2020 - 08:10 AM
A new pilot project is seeking funding to map the genomes of 50 people with PWS and integrate that... Read more >
Source: FPWR Blog | Published: April 4 2020 - 09:52 AM
COVID-19 has made all of our homes feel a bit smaller these days... Living together 24/7 has surely... Read more >
Source: FPWR Blog | Published: April 4 2020 - 10:40 AM