FPWR Blog

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Saniona Receives U.S. FDA Orphan Drug Designation for Tesomet in Prader-Willi Syndrome
Saniona has received an orphan drug designation for their drug, Tesomet, for the treatment of PWS.... Read more >
Source: FPWR Blog | Published: March 3 2021 - 07:22 AM
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Tonix Pharmaceuticals Licenses Technology for Treating Prader-Willi Syndrome
Tonix Pharmaceuticals has licensed technology using oxytocin-based therapeutics from the French... Read more >
Source: FPWR Blog | Published: February 2 2021 - 01:20 PM
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Why I Will Always Celebrate the Beauty of My Son’s Rare Disease
The last day of February is Rare Disease Day. This special guest blog by Rebecca was originally... Read more >
Source: FPWR Blog | Published: February 2 2021 - 08:43 AM
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Soleno Therapeutics and Vanderbilt University Announce Collaboration to Develop New K(ATP) Channel Activators
Soleno Therapeutics and Vanderbilt University announce a new collaboration which aims to discover... Read more >
Source: FPWR Blog | Published: February 2 2021 - 11:31 AM
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Moving Barriers for Improved Behavior in PWS [2020 CONFERENCE VIDEO]
In this 60‑minute video, Patrice Carroll, director of PWS services at Latham Centers in... Read more >
Source: FPWR Blog | Published: February 2 2021 - 08:00 AM
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Navigating Your Insurance Coverage with PWS [2020 CONFERENCE VIDEO]
Brian Kalasek is both a father of a young son with PWS and VP of Special Risk for Mutual of Omaha... Read more >
Source: FPWR Blog | Published: February 2 2021 - 11:00 AM
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Deconstructing Anxiety in PWS [2020 CONFERENCE VIDEO]
In this 88‑minute video, Dr. Deepan Singh discusses what anxiety looks like in PWS, what leads to... Read more >
Source: FPWR Blog | Published: February 2 2021 - 08:00 AM
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Take Action for PWS Research: 4 FUN and EASY Ideas To Help You Get Started
There has never been a more critical time to keep research pushing forward. We need your help to... Read more >
Source: FPWR Blog | Published: February 2 2021 - 12:14 PM
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PWS Clinical Trials Alert
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: January 1 2021 - 07:00 AM
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Paving the Way for Treatments for PWS
In the last 5 years, more than 15 human clinical trials have taken place evaluating possible... Read more >
Source: FPWR Blog | Published: January 1 2021 - 08:00 AM
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IMPACT 2020
In 2020, more than 9,500 donors supported PWS research and our mission to eliminate the challenges... Read more >
Source: FPWR Blog | Published: January 1 2021 - 09:14 AM
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PWS Probiotics Research Addresses Constipation, Abdominal Fat and More
Two recently released studies represent good first steps to identifying possible uses of probiotic... Read more >
Source: FPWR Blog | Published: January 1 2021 - 08:00 AM
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Inversago Pharma Receives Rare Pediatric Disease Designation for INV-101 for the Treatment of PWS
Source: FPWR Blog | Published: January 1 2021 - 11:39 AM
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The Global PWS Registry Needs YOU to Update Your Surveys!
2021 brings new opportunities to learn even more about PWS and improve the health of those living... Read more >
Source: FPWR Blog | Published: January 1 2021 - 11:50 AM
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