FPWR Blog

It has been an exciting time for PWS research and clinical trials. The field has been working hard... Read more >
Source: FPWR Blog | Published: November 11 2023 - 09:00 AM
A special blog contribution from Karla Leighty. Prior to Lana's birth, our daughter-in-law,... Read more >
Source: FPWR Blog | Published: November 11 2023 - 09:15 AM
We are pleased to announce the recipients of the second round of grants for 2023, totaling... Read more >
Source: FPWR Blog | Published: November 11 2023 - 09:15 AM
Did you know that by simply sending a card, you have the power to make a difference in the lives of... Read more >
Source: FPWR Blog | Published: November 11 2023 - 09:00 AM
Soleno Therapeutics recently shared data from their DESTINY PWS study, an international,... Read more >
Source: FPWR Blog | Published: October 10 2023 - 09:00 AM
The Harvesting Hope Distance Challenge is back, and it's your chance to join a heartwarming... Read more >
Source: FPWR Blog | Published: October 10 2023 - 09:00 AM
PWSA | USA (Prader-Willi Syndrome Association | USA) and FPWR (Foundation for Prader-Willi... Read more >
Source: FPWR Blog | Published: September 9 2023 - 05:35 AM
We are excited to share the news that Soleno has announced positive, statistically significant... Read more >
Source: FPWR Blog | Published: September 9 2023 - 07:40 AM
It is well known that individuals with Prader-Willi syndrome (PWS) display muscle weakness,... Read more >
Source: FPWR Blog | Published: September 9 2023 - 09:15 AM
Attending a conference means being around people who get it—they understand the journey you have... Read more >
Source: FPWR Blog | Published: August 8 2023 - 09:00 AM
Being a mom and a psychologist, I have often wondered about the impact of growing up with a person... Read more >
Source: FPWR Blog | Published: August 8 2023 - 09:00 AM
A special blog contribution from our 2023 FPWR Art Auction Participants! Our 2023 Artist of the... Read more >
Source: FPWR Blog | Published: August 8 2023 - 08:30 AM
Aardvark Therapeutics, a clinical stage biopharmaceutical company, has reported receipt of a Rare... Read more >
Source: FPWR Blog | Published: August 8 2023 - 02:21 PM
Recently, a matching donor came forward, igniting the $25,000 Challenge. Today, we want to... Read more >
Source: FPWR Blog | Published: August 8 2023 - 08:00 AM