FPWR Blog

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Harmony Biosciences releases a statement to the PWS Community
A recent report from Scorpion Capital, a financial research group that specializes in 'activist... Read more >
Source: FPWR Blog | Published: March 3 2023 - 03:15 PM
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A Link Between Exercise Motivation and the Gut Microbiome
Do you ever wonder why you’re so strongly motivated to exercise while it seems that some others... Read more >
Source: FPWR Blog | Published: March 3 2023 - 08:29 AM
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PWS Registry Data: Mental Health Therapies [INFOGRAPHIC]
As a rare disorder, PWS is most well-known to the medical community and general population for... Read more >
Source: FPWR Blog | Published: March 3 2023 - 08:53 AM
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“She Is Tough, She Is a Fighter” Says PWS Mom Inspired by Daughter
A special blog contribution from Krysten Leighty. Krysten shared her story via our Stories of Hope... Read more >
Source: FPWR Blog | Published: March 3 2023 - 09:00 AM
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Medical Devices Offer New Opportunities to Alleviate Symptoms of PWS
FPWR is investigating several devices that have been proven effective in treating a myriad of... Read more >
Source: FPWR Blog | Published: February 2 2023 - 12:10 PM
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Orthopedic Challenges and Treatments in PWS [2022 CONFERENCE VIDEO]
In this 2-hour and 2-minute video, Dr. Harold van Bosse, a pediatric orthopedic surgeon at SSM... Read more >
Source: FPWR Blog | Published: February 2 2023 - 09:00 AM
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Exciting New Treatment May Reduce Disruptive Behaviors in PWS
UPDATE, FEBRUARY 2023: FPWR is preparing to launch our VNS4PWS clinical trial. Details of the study... Read more >
Source: FPWR Blog | Published: February 2 2023 - 07:45 AM
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Top 10 Reasons to Attend the 2023 PWS Family Conference
Join us October 6-October 7 for our annual gathering of movers, shakers, thinkers, and doers at... Read more >
Source: FPWR Blog | Published: February 2 2023 - 09:00 AM
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Global PWS Registry Advisory Board Changes
The Global PWS Registry launched in 2015 as a central repository of caregiver and patient entered... Read more >
Source: FPWR Blog | Published: February 2 2023 - 09:00 AM
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Can Breakthrough Obesity Drugs Wegovy and Tirzapatide Deliver in PWS?
You’re probably seen at least one headline heralding the remarkable successes of Novo Nordisk’s... Read more >
Source: FPWR Blog | Published: February 2 2023 - 09:00 AM
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‘The Small Stuff Doesn’t Matter’: A Story of Hope from Sheri Mills
A special blog contribution from Sheri Mills. Sheri shared her story via our Stories of Hope... Read more >
Source: FPWR Blog | Published: January 1 2023 - 09:00 AM
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Demographics and Comorbidities Among Hospitalized Patients With PWS
Dr. James Luccarelli, a researcher at Massachusetts General Hospital, recently published a... Read more >
Source: FPWR Blog | Published: January 1 2023 - 09:00 AM
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What's Happening in PWS Research [2022 Conference Video]
In this one hour and 17-minutevideo, Dr. Theresa Strong and the FPWR research team explore recent... Read more >
Source: FPWR Blog | Published: January 1 2023 - 09:00 AM
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Watching for Mental Health Issues
Lauren Schwartz-Roth, clinical psychologist and mom to a young adult with PWS, shares how to... Read more >
Source: FPWR Blog | Published: January 1 2023 - 09:15 AM
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