Home Page - Foundation for Prader-Willi Research

Double Your Impact

Donate Today!
Art Auction Benefiting PWS Research

Place Your Bid
Donate Today

and help eliminate the challenges of Prader-Willi syndrome

Donate Now
Help Raise Funds

for critical PWS research

GET STARTED
Stay Up to Date

with the Latest in PWS Research

Read our Blog
Join the Global PWS Registry

Learn More!

Dr. Elisabeth Dykens Receives Rare Impact Award From National Organization for Rare Disorders
FPWR congratulates Dr. Elisabeth Dykens, who was awarded last night with a Rare Impact Award by the National Organization for Rare Disorders. Dr. Dykens may best be known in the Prader-Willi syndrome (PWS) community for developing the Dykens Hyperphagia Questionnaire, an... Read more »
Source: FPWR Blog | Published: May 17, 2018 - 4:00 pm
First Study Site Announced: DCCR for PWS Hyperphagia, Phase 3
Soleno has announced the opening of their first clinical trial site for a Phase 3 study of DCCR to measure the drug's efficacy for treating hyperphagia in PWS. That site is Seattle Children’s Hospital. ... Read more »
Source: FPWR Blog | Published: May 17, 2018 - 4:00 pm
Phase 2 Study on Oxytocin for PWS Now Recruiting
A Phase 2 Study of intranasal oxytocin (IN-OXT) is now recruiting patients for an 8-week double blind study to evaluate the safety and efficacy in pediatric patients with Prader-Willi syndrome. Data from the study will add to the current knowledge that intranasal... Read more »
Source: FPWR Blog | Published: May 15, 2018 - 4:00 pm

2018 FPWR Conference