• Share your photo with FPWR!

    Share your photo with FPWR!

    Our loved ones with PWS are beautiful. Share your photo with us!

  • "Finding My People"

    One mother's FPWR conference experience.

  • Create a fundraising page to help fund additional PWS research.

  • Family Stories

    Family Stories

    Learn how other families just like yours have dealt with a diagnosis of PWS and have taken action to change their loved ones' futures!


Now Hiring: Development Assistant

Job Title: Development Assistant Reports to:  Director of Development   The Foundation for Prader-Willi Research is looking for a hard working, self-motivated, passionate individual to join our team. Position Summary The Development Assistant will support the development (fundraising) efforts...

Prader-Will Syndrome Awareness Month

Prader-Willi Awareness Month

The month of May, nationally recognized as Prader-Willi Awareness Month, holds a special place in the hearts of PWS families. But do you know how PWS Awareness Month came to be? We will forever be thankful to Amy Porter,...

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