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Singing, Dancing, Changing the World: Our Mighty Girl With PWS
A special contribution by Noelle Scalzo Our story started out as so many others do with the dream of a "perfect" and "healthy" baby. We wanted to bring just one more tiny human into our world, a sibling for our now... Read more »
Published: September 22, 2017 - 4:00 pm
Hyperphagia Biomarkers in Children With PWS: Elizabeth Roof [VIDEO]
This blog contains excerpts from Hyperphagia Biomarkers in Children With PWS, a presentation given by Elizabeth Roof at the FPWR 2017 conference. You can watch the full presentation by clicking on the embedded video below. Elizabeth Roof, a senior research specialist... Read more »
Published: September 21, 2017 - 4:00 pm
Dr. Jennifer Miller: Standards of Care for PWS [VIDEO]
This blog provides a brief summary of Standards of Care for PWS, a presentation given by Dr. Jennifer Miller at the FPWR 2017 conference. Dr. Jennifer Miller, a pediatrician and researcher at the University of Florida, has studied hundreds of people living... Read more »
Published: September 18, 2017 - 4:00 pm

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