FPWR Blog

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What's Happening In PWS Research? [2021 CONFERENCE VIDEO]
In this 67‑minute video, Dr. Theresa Strong and the FPWR Research Team share highlights of projects... Read more >
Source: FPWR Blog | Published: January 1 2022 - 12:00 PM
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Encouraging Update from Soleno Therapeutics Regarding DCCR
Soleno Therapeutics has provided an update following recent interactions with the U.S. Food and... Read more >
Source: FPWR Blog | Published: January 1 2022 - 08:47 AM
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Levo Therapeutics Receives Complete Response from FDA Regarding Carbetocin NDA
Levo Therapeutics, announced today that it has received a Complete Response Letter (CRL) from the... Read more >
Source: FPWR Blog | Published: January 1 2022 - 06:51 AM
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Saniona Initiates Phase 2b Clinical Trial of Tesomet for PWS
Saniona, a clinical-stage biopharmaceutical company focused on rare diseases, has announced the... Read more >
Source: FPWR Blog | Published: January 1 2022 - 12:00 PM
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Pushing Beyond Her Comfort Zone, PWS Mom Advocates for Child's Future
A special contribution by guest blogger Charlotte Kellar. Charlotte shared her story via our... Read more >
Source: FPWR Blog | Published: December 12 2021 - 12:00 PM
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Standards of Care for Children and Adults with PWS [2021 CONFERENCE VIDEO]
In this 1-hour video, Dr. Jessica Duis, Clinical Geneticist from  Children's Hospital Colorado... Read more >
Source: FPWR Blog | Published: December 12 2021 - 01:03 PM
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PWS Clinical Trials Alert
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: December 12 2021 - 09:12 AM
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Standards of Care for Children Ages 0-2 With PWS [2021 CONFERENCE VIDEO]
In this 1-hour video, Dr. Jessica Duis, Clinical Geneticist from  Children's Hospital Colorado... Read more >
Source: FPWR Blog | Published: December 12 2021 - 01:38 PM
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FPWR Welcomes Natalie Brenneman to the Team!
Natalie is a veteran to our community of dedicated movers and shakers and has been involved with... Read more >
Source: FPWR Blog | Published: November 11 2021 - 01:00 PM
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FDA Committee Indicates Substantial Evidence Has Not Been Provided For the Effectiveness of Carbetocin as a Treatment for PWS
In a disappointing decision, a panel of independent advisers to the Food and Drug Administration... Read more >
Source: FPWR Blog | Published: November 11 2021 - 04:02 PM
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FPWR, FAST, ASF, and Dup15q Unite to Fund Newborn Screening Grant
The Foundation for Prader-Willi Research (FPWR), Foundation for Angelman Syndrome Therapeutics... Read more >
Source: FPWR Blog | Published: November 11 2021 - 09:00 AM
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How to Identify Mental Health Challenges in Your Loved One with PWS
October is Mental Health Screening Month, and we're encouraging our PWS community to learn more... Read more >
Source: FPWR Blog | Published: October 10 2021 - 12:00 PM
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Carbetocin Approval: Your Comment Could Make the Difference
Would you like to be part of our community-wide effort to advocate for new treatments for PWS? The... Read more >
Source: FPWR Blog | Published: October 10 2021 - 06:45 AM
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Hyponatremia In PWS Is Rare But Fluid Intake Should Still Be Monitored
Hyponatremia is a condition where the sodium (salt) levels in the body are too low. If sodium... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:00 AM
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