FPWR Blog

It is well known that individuals with Prader-Willi syndrome (PWS) display muscle weakness,... Read more >
Source: FPWR Blog | Published: September 9 2023 - 09:15 AM
Being a mom and a psychologist, I have often wondered about the impact of growing up with a person... Read more >
Source: FPWR Blog | Published: August 8 2023 - 09:00 AM
A special blog contribution from our 2023 FPWR Art Auction Participants! Our 2023 Artist of the... Read more >
Source: FPWR Blog | Published: August 8 2023 - 08:30 AM
Aardvark Therapeutics, a clinical stage biopharmaceutical company, has reported receipt of a Rare... Read more >
Source: FPWR Blog | Published: August 8 2023 - 02:21 PM
Recently, a matching donor came forward, igniting the $25,000 Challenge. Today, we want to... Read more >
Source: FPWR Blog | Published: August 8 2023 - 08:00 AM
Sugar glucose is the body’s primary source of energy. Maintaining a healthy level of glucose in... Read more >
Source: FPWR Blog | Published: July 7 2023 - 09:00 AM
UPDATE, July 2023: We are currently contracting with potential trial sites across the US and will... Read more >
Source: FPWR Blog | Published: July 7 2023 - 07:36 AM
Harmony Biosciences has announced plans to begin a Phase 3 study of Pitolisant for individuals with... Read more >
Source: FPWR Blog | Published: July 7 2023 - 08:52 AM
The Foundation for Prader-Willi Research has partnered with COMBINEDBrain to establish a... Read more >
Source: FPWR Blog | Published: July 7 2023 - 07:20 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: July 7 2023 - 12:21 PM
A special blog contribution from Roya Malaekeh. People often ask what it was like getting a... Read more >
Source: FPWR Blog | Published: July 7 2023 - 09:30 AM
You won’t want to miss these speakers at the 2023 FPWR Family Conference this October in Denver,... Read more >
Source: FPWR Blog | Published: July 7 2023 - 09:30 AM
In this 1-hour and 7-minute video, FPWR Executive Director Susan Hedstrom presents an overview of... Read more >
Source: FPWR Blog | Published: July 7 2023 - 09:00 AM
Dental issues in PWS can result from symptoms directly related to PWS, such as low saliva... Read more >
Source: FPWR Blog | Published: June 6 2023 - 11:00 AM