SYS Family Conference 


 

Save the Date!
October 9 & 10, 2026

Philadelphia, PA

About the Event

Our annual Schaaf-Yang Family Conference is held in conjunction with our annual PWS Family Conference.  Join us for 2 days of Schaaf-Yang-specific programming and community-building.

We are currently working on our 2026 conference programs, but sample topics from previous years have included:

  • Caring for Your Loved One With SYS
  • Updates from the Schaaf Lab
  • Behavior Roundtable: Supporting Your Loved One with SYS
  • Supporting Siblings of People with Schaaf-Yang
  • SYS Research Deep-Dive
  • Findings From The Global SYS Registry
  • Take Action for Schaaf-Yang!

 

Registration Details

Schaaf-Yang Family Conference Registration: $275 per person

Childcare is not currently available. Children are welcome to attend with their parents. 

Registration Closes September 18, 2026. On-site registration will not be available. 
Refund Policy: Tickets may be refunded up to 30 days prior to the conference, less a $25 processing fee.

Questions? Please email melissa.demand@fpwr.org.

Limited financial assistance is available for families who otherwise cannot attend the conference. Email Melissa.Demand@fpwr.org for details.

Register for the Conference

BOLD PHL 26 Logo  SYS FAMILY

 

Program


Our 2026 conference program is currently under development.
Pease come back soon!

 

Accommodations


The 2026 conference will take place in Philadelphia, PA, at the Marriott Philadelphia Downtown.

A limited room block is available at the discounted rate of $221/night until September 15, 2026.

Details for our room block will be shared after tickets are purchased in our confirmation email.

SYS Families Unite!

Register for the Conference

Live Life Full Philadelphia

 

Live Life FULL!


Join us for a night of impact and celebration! We’re raising funds for Prader-Willi and Schaaf-Yang syndrome research, Philly-style, with great music, bold backdrops, and even bigger heart.

Dress it up, but keep it real: cocktail attire, statement kicks, bold color, big heart.  This is how Philly shows up.

Tickets for this memorable event are available for purchase when you register for the SYS Family Conference. Get your tickets today!