About the Event

Our annual Schaaf-Yang Family Conference is held in conjunction with our annual PWS Family Conference.  Join us for 2 days of Schaaf-Yang-specific programming and community-building.

We are currently working on our 2026 conference programs, but sample topics from previous years have included:

• Caring for Your Loved One With SYS
• Updates from the Schaaf Lab
• Behavior Roundtable: Supporting Your Loved One with SYS
• Supporting Siblings of People with Schaaf-Yang
• SYS Research Deep-Dive
• Findings From The Global SYS Registry
• Take Action for Schaaf-Yang!

Registration Details

Schaaf-Yang Family Conference Registration:

• $275 per person
  • $325 after August 1

Childcare is not currently available. Children are welcome to attend with their parents. 

Deadline for Registration: September 18th

Refund Policy: Tickets may be refunded up to 30 days prior to the conference, less a $25 processing fee.

Limited financial assistance is available:

• Need assistance with registration?
  • Financial assistance is available for families who otherwise cannot attend the conference. Apply here for a discounted conference ticket.
• FPWR 2026 Family Conference Scholarship
  • To support broader and more diverse participation, the FPWR Travel Scholarship is open to any caregiver facing financial hardship, as well as caregivers from underrepresented or historically marginalized communities, who wish to attend the 2026 FPWR Family Conference.  Apply for the scholarship here.

Questions? Please email melissa.demand@fpwr.org.