SYS Family Conference
Save the Date!
October 9 & 10, 2026
Philadelphia, PA
Registration for this event will open this fall. Questions? Please email melissa.demand@fpwr.org.
About the Event
Our annual Schaaf-Yang Family Conference is held in conjunction with our annual PWS Family Conference. Join us for 2 days of Schaaf-Yang-specific programming and community-building.
We are currently working on our 2026 conference programs, but sample topics from previous years have included:
- Caring for Your Loved One With SYS
- Updates from the Schaaf Lab
- Behavior Roundtable: Supporting Your Loved One with SYS
- Supporting Siblings of People with Schaaf-Yang
- SYS Research Deep-Dive
- Findings From The Global SYS Registry
- Take Action for Schaaf-Yang!
Registration Details
Schaaf-Yang Family Conference Registration: $300 per person
Childcare is not currently available. Children are welcome to attend with their parents.
Registration Closes September 30, 2026. On-site registration will not be available.
Refund Policy: Tickets may be refunded before September 30, 2026. A $50 processing fee will be deducted for all refunds.
Register for the Conference

Program
Our 2026 conference program is currently under development.
Pease come back soon!
Accommodations
The 2026 conference will take place in Philadelphia, PA, at the Marriott Philadelphia Downtown.
A limited room block is available at the discounted rate of $221/night until September 15, 2026.
Details for our room block will be shared after tickets are purchased in our confirmation email.
