First Steps - A Parent's Guide to Schaaf-Yang Syndrome

Helpful SYS Information For Parents, By Parents.

SYS For Parents, By Parents

As parents of children with SYS, we know what it's like to feel overwhelmed and isolated – especially in the days and weeks after your child's diagnosis.

We're here to tell you there is hope!

While it can be challenging to find information on Schaaf-Yang syndrome, we are here to help you! We have put together First Steps: a Parent's Guide to Schaaf-Yang Syndrome that along with basic information about the syndrome, also shares treatments and strategies that are working for other families.

We highly recommend every new parent of a loved one with SYS download and read our guide.


First Steps: A Parent's Guide to Schaaf-Yang Syndrome

We've written a guide, First Steps: A Parent's Guide to Schaaf-Yang Syndrome, that you can download for free. It includes:

  • Insights and strategies for coping and thriving with SYS that have worked for other families
  • Information about symptoms and treatments that many general practitioners don't know
  • Links to resources to support you now and in the coming weeks, months, and years
It's the information many of us wish we'd had when we started our SYS journey. We hope you find it helpful!

SYS Research