Research Blog

We are pleased to announce the recipients of our second round of grants for 2025, totaling $925,117 in awards, as part of the Foundation for Prader-Willi Research’s (FPWR) ongoing commitment to advancing innovative research and bold initiatives in Prader-Willi syndrome (PWS) and Schaaf-Yang...
Source: FPWR Blog | Published: November 11 2025 - 04:45 AM
Understanding the endocrine system is essential for managing Prader-Willi syndrome (PWS). From infancy through adulthood, hormone-related challenges shape growth, development, metabolism, and overall health. In this 2025 FPWR Conference presentation, Dr. Jennifer Miller, one of the world’s leading...
Source: FPWR Blog | Published: November 11 2025 - 09:00 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits, while others can be completed remotely. Some trials are testing new drugs, while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog | Published: November 11 2025 - 07:33 AM
Clinical trials are the bridge between discovery and real-world treatments, and families in the Prader-Willi syndrome (PWS) community play a critical role in making them possible.
Source: FPWR Blog | Published: October 10 2025 - 10:00 AM
Welcome to an inside look at some of the impactful research taking place to improve the lives of individuals with Prader–Willi syndrome (PWS). In this interview, four FPWR research team members—Theresa Strong, Lauren Schwartz-Roth, Marc Ridilla, and Lisa Matesevac—and IPWSO Board of Trustees...
Source: FPWR Blog | Published: August 8 2025 - 09:00 AM
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