FPWR Blog

  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:12 AM
Levo Therapeutic’s New Drug Application (NDA) for carbetocin as a treatment for PWS has been... Read more >
Source: FPWR Blog | Published: September 9 2021 - 11:30 AM
Dr. Rachel Wevrick and her team have just published a new paper looking at the function of the... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:00 AM
The Global PWS Registry continues to grow and strengthen as a valuable resource and research tool... Read more >
Source: FPWR Blog | Published: September 9 2021 - 01:00 PM
A special contribution by guest blogger Diane Schantin When Austin was born, our whole family was... Read more >
Source: FPWR Blog | Published: August 8 2021 - 12:00 PM
Thanks to the participation of so many in our community, our team was able to share the largest... Read more >
Source: FPWR Blog | Published: August 8 2021 - 10:36 AM
A special contribution by guest blogger Lisa Matesevac Our youngest child, Evan, was born in 2006.... Read more >
Source: FPWR Blog | Published: August 8 2021 - 10:45 AM
A phase 2 study of Pitolisant is enrolling patients ages 6 to 65  years old to evaluate the safety... Read more >
Source: FPWR Blog | Published: August 8 2021 - 11:05 AM
On June 17, 2021, FPWR and PWSA | USA engaged the FDA in a Patient-Led Listening Session to share... Read more >
Source: FPWR Blog | Published: July 7 2021 - 05:45 AM
Radius Health announced today their plans for a Pivotal Study for RAD011 for the treatment of... Read more >
Source: FPWR Blog | Published: July 7 2021 - 10:34 AM
  More than 30 unique paintings are available to the highest bidders in a unique art auction... Read more >
Source: FPWR Blog | Published: July 7 2021 - 06:01 AM
As any parent of loved ones with PWS can attest, defining the spectrum of symptoms of PWS can be a... Read more >
Source: FPWR Blog | Published: July 7 2021 - 11:00 AM
Dr. Gua-Li Ming from the University of Pennsylvania has developed a new cellular model of PWS: a 3D... Read more >
Source: FPWR Blog | Published: July 7 2021 - 11:00 AM
Soleno Therapeutics has announced that the FDA will accept additional data from their DESTINY PWS... Read more >
Source: FPWR Blog | Published: July 7 2021 - 08:34 AM