FPWR Blog

Schaaf-Yang syndrome (SYS) is an ultra-rare disorder that was first identified in 2013. It is... Read more >
Source: FPWR Blog | Published: February 2 2024 - 08:30 AM
In this 85‑minute video, Dr. Christian Schaaf, medical director and department chair at the... Read more >
Source: FPWR Blog | Published: February 2 2024 - 09:30 AM
A paper has just been published that provides new insight into the use of feeding tubes in babies... Read more >
Source: FPWR Blog | Published: February 2 2024 - 12:45 PM
It is well established in science as well as culture that the smell of food is linked to appetite,... Read more >
Source: FPWR Blog | Published: January 1 2024 - 09:15 AM
In this one-hour and 2‑minute video, Dr. Parisa Salehi, a Pediatric Endocrinologist at Seattle... Read more >
Source: FPWR Blog | Published: January 1 2024 - 11:00 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: January 1 2024 - 04:41 PM
2023 marks yet another record-breaking year in our pursuit of treatments for Prader-Willi (PWS) and... Read more >
Source: FPWR Blog | Published: January 1 2024 - 09:21 AM
The Hyperphagia Questionnaire for Clinical Trials (HQ-CT) is typically completed by caregivers for... Read more >
Source: FPWR Blog | Published: January 1 2024 - 09:00 AM
The Foundation for Prader-Willi Research is pleased to announce our VNS4PWS clinical trial is now... Read more >
Source: FPWR Blog | Published: January 1 2024 - 06:35 AM
In this 1 hour and 2‑minute video, Dr. Jessica Duis, an Associate Professor of Pediatrics and... Read more >
Source: FPWR Blog | Published: December 12 2023 - 09:00 AM
Many of the symptoms of Prader-Willi syndrome (PWS) are well known, including problems with the... Read more >
Source: FPWR Blog | Published: December 12 2023 - 09:00 AM
For individuals with PWS, when it comes to food there is a lot of focus on hyperphagia (excessive... Read more >
Source: FPWR Blog | Published: December 12 2023 - 10:15 AM
In this one hour and 25-minute video, Dr. Diane Stafford, Endocrinologist at Stanford University... Read more >
Source: FPWR Blog | Published: December 12 2023 - 09:00 AM
Acadia Pharmaceuticals has initiated its pivotal Phase 3 COMPASS PWS study of carbetocin nasal... Read more >
Source: FPWR Blog | Published: December 12 2023 - 02:39 PM