FPWR Blog

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PWS Clinical Trials Alert
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:12 AM
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FDA Advisory Committee to Review Carbetocin (LV101) as PWS Treatment
Levo Therapeutic’s New Drug Application (NDA) for carbetocin as a treatment for PWS has been... Read more >
Source: FPWR Blog | Published: September 9 2021 - 11:30 AM
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Unique MAGEL2 Findings Point to Potential PWS and SYS Genetic Therapy
Dr. Rachel Wevrick and her team have just published a new paper looking at the function of the... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:00 AM
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PWS Registry Added 208 Participants In Past Year [INFOGRAPHIC]
The Global PWS Registry continues to grow and strengthen as a valuable resource and research tool... Read more >
Source: FPWR Blog | Published: September 9 2021 - 01:00 PM
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Grandma Takes One SMALL Step for PWS Research
A special contribution by guest blogger Diane Schantin When Austin was born, our whole family was... Read more >
Source: FPWR Blog | Published: August 8 2021 - 12:00 PM
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New Paper Provides Data on Vision Problems in People with PWS
Thanks to the participation of so many in our community, our team was able to share the largest... Read more >
Source: FPWR Blog | Published: August 8 2021 - 10:36 AM
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Dispelling the Myths Of Our Life With PWS
A special contribution by guest blogger Lisa Matesevac Our youngest child, Evan, was born in 2006.... Read more >
Source: FPWR Blog | Published: August 8 2021 - 10:45 AM
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PWS Clinical Trial Opportunity: Pitolisant
A phase 2 study of Pitolisant is enrolling patients ages 6 to 65  years old to evaluate the safety... Read more >
Source: FPWR Blog | Published: August 8 2021 - 11:05 AM
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FPWR and PWSA | USA Engage FDA in Patient Listening Session
On June 17, 2021, FPWR and PWSA | USA engaged the FDA in a Patient-Led Listening Session to share... Read more >
Source: FPWR Blog | Published: July 7 2021 - 05:45 AM
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Radius Health Announces Pivotal Study for Prader-Willi Syndrome
Radius Health announced today their plans for a Pivotal Study for RAD011 for the treatment of... Read more >
Source: FPWR Blog | Published: July 7 2021 - 10:34 AM
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Unique Art Auction Benefits PWS Research
  More than 30 unique paintings are available to the highest bidders in a unique art auction... Read more >
Source: FPWR Blog | Published: July 7 2021 - 06:01 AM
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New Paper Provides Definitions of Common PWS Behavioral Features
As any parent of loved ones with PWS can attest, defining the spectrum of symptoms of PWS can be a... Read more >
Source: FPWR Blog | Published: July 7 2021 - 11:00 AM
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New PWS Research Compares Mini-Brains In A Dish
Dr. Gua-Li Ming from the University of Pennsylvania has developed a new cellular model of PWS: a 3D... Read more >
Source: FPWR Blog | Published: July 7 2021 - 11:00 AM
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FDA Encourages Submission of Additional Data for DCCR
Soleno Therapeutics has announced that the FDA will accept additional data from their DESTINY PWS... Read more >
Source: FPWR Blog | Published: July 7 2021 - 08:34 AM
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