FPWR Blog

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Progressive Resistance Training in Young People With PWS: Protocol for a Randomized Trial (PRESTO)
It is well known that individuals with Prader-Willi syndrome (PWS) display muscle weakness,... Read more >
Source: FPWR Blog | Published: September 9 2023 - 09:15 AM
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Growing Up Alongside Prader-Willi Syndrome
Being a mom and a psychologist, I have often wondered about the impact of growing up with a person... Read more >
Source: FPWR Blog | Published: August 8 2023 - 09:00 AM
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Artist of the Year 2023 Winners
A special blog contribution from our 2023 FPWR Art Auction Participants! Our 2023 Artist of the... Read more >
Source: FPWR Blog | Published: August 8 2023 - 08:30 AM
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Aardvark Announces Rare Disease Designation and Expands Ongoing Phase 2 Trial
Aardvark Therapeutics, a clinical stage biopharmaceutical company, has reported receipt of a Rare... Read more >
Source: FPWR Blog | Published: August 8 2023 - 02:21 PM
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Generous Donor Ignites the $25,000 Challenge
Recently, a matching donor came forward, igniting the $25,000 Challenge. Today, we want to... Read more >
Source: FPWR Blog | Published: August 8 2023 - 08:00 AM
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New PWS β-Cell Model Reveals Details Underlying Insulin Secretion Defects
Sugar glucose is the body’s primary source of energy. Maintaining a healthy level of glucose in... Read more >
Source: FPWR Blog | Published: July 7 2023 - 09:00 AM
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Exciting New Treatment May Reduce Disruptive Behaviors in PWS
UPDATE, July 2023: We are currently contracting with potential trial sites across the US and will... Read more >
Source: FPWR Blog | Published: July 7 2023 - 07:36 AM
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Harmony Biosciences Announces Phase 3 Study of Pitolisant
Harmony Biosciences has announced plans to begin a Phase 3 study of Pitolisant for individuals with... Read more >
Source: FPWR Blog | Published: July 7 2023 - 08:52 AM
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Partnership with CombinedBrain Will Establish Biorepository for PWS & SYS
The Foundation for Prader-Willi Research has partnered with COMBINEDBrain to establish a... Read more >
Source: FPWR Blog | Published: July 7 2023 - 07:20 AM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: July 7 2023 - 12:21 PM
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'It’s a Beautiful Gift I Never Expected' Says SYS Hero and Mom
A special blog contribution from Roya Malaekeh. People often ask what it was like getting a... Read more >
Source: FPWR Blog | Published: July 7 2023 - 09:30 AM
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FPWR 2023 Family Conference - Deep Dive Workshops
You won’t want to miss these speakers at the 2023 FPWR Family Conference this October in Denver,... Read more >
Source: FPWR Blog | Published: July 7 2023 - 09:30 AM
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PWS Clinical Trials Panel [2022 CONFERENCE VIDEO]
In this 1-hour and 7-minute video, FPWR Executive Director Susan Hedstrom presents an overview of... Read more >
Source: FPWR Blog | Published: July 7 2023 - 09:00 AM
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PWS Registry Data: Dental Issues [INFOGRAPHIC]
Dental issues in PWS can result from symptoms directly related to PWS, such as low saliva... Read more >
Source: FPWR Blog | Published: June 6 2023 - 11:00 AM
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