FPWR Blog

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Strategies for Managing Behavior in PWS [2021 CONFERENCE VIDEO]
In this one hour and 17‑minute video, Dr. Tony Holland, Emeritus Professor of Psychology, Cambridge... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
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Exciting New Treatment May Reduce Disruptive Behaviors in PWS
Recent evidence from FPWR-supported studies show that Vagus Nerve Stimulation (VNS) may reduce... Read more >
Source: FPWR Blog | Published: May 5 2022 - 07:45 AM
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Baby Teeth Cells Give Insight on the Molecular Basis of Autism in PWS
In Prader‑Willi syndrome (PWS), the two main genetic subtypes are PWS by deletion (a small part of... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
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‘Most exceptional human being that I know’: PWS Mom Inspired by Son
A special contribution by guest blogger Rebecca Krylow. Rebecca shared her story via our Stories of... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
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FPWR Announces 1st Round of 2022 Grants of Over $1M in Funding [VIDEO]
The Foundation for Prader-Willi Research announces our first round of Research Awards in 2022... Read more >
Source: FPWR Blog | Published: May 5 2022 - 12:00 PM
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A Photo of Your Loved One May Help Another Family Receive a Diagnosis
Rare genetic disorders can often be challenging to diagnose, resulting in a long diagnostic... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM
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Feeding Techniques for Children Ages 0-2 [2021 CONFERENCE VIDEO]
In this 59‑minute video, Sara Parker, MA, a pediatric speech pathologist, discusses feeding... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM
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Ghrelin drug shows no impact on hyperphagia in PWS in a clinical trial
Ghrelin is a small hormone produced in the stomach that stimulates increased appetite. Although it... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM
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Schaaf-Yang Syndrome Heroes Say, 'You Can do Hard Things!'
A special contribution by guest blogger Leslie Born “No degree, or training, or book, or... Read more >
Source: FPWR Blog | Published: April 4 2022 - 10:00 AM
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DCCR Clinical Trial Update [2021 CONFERENCE VIDEO]
In this one hour and 3‑minute video, several investigators discuss a Phase 3 Clinical Trial of... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM
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Partnering for a Successful IEP [2021 CONFERENCE VIDEO]
In this 1 hour and 12‑minute video, Dr. Katy Chambers, former high school principal, teacher, and... Read more >
Source: FPWR Blog | Published: April 4 2022 - 12:00 PM
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Early Investments Lead to 3 New Potential Drug Treatments for PWS
To ensure that new treatments for PWS are advanced as quickly as possible, FPWR collaborates with... Read more >
Source: FPWR Blog | Published: March 3 2022 - 12:00 PM
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PWS Registry Data: Scoliosis in PWS
Physical activity and exercise are an important part of care for individuals with PWS. However,... Read more >
Source: FPWR Blog | Published: March 3 2022 - 12:00 PM
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Highlights from the PWS Research Symposium [2021 CONFERENCE VIDEO]
In this 1 hour and 2‑minute video, Dr. Theresa Strong, FWPR’s director of research programs, shares... Read more >
Source: FPWR Blog | Published: March 3 2022 - 12:00 PM
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