FPWR Blog

Natalie is a veteran to our community of dedicated movers and shakers and has been involved with... Read more >
Source: FPWR Blog | Published: November 11 2021 - 01:00 PM
The Foundation for Prader-Willi Research (FPWR), Foundation for Angelman Syndrome Therapeutics... Read more >
Source: FPWR Blog | Published: November 11 2021 - 09:00 AM
October is Mental Health Screening Month, and we're encouraging our PWS community to learn more... Read more >
Source: FPWR Blog | Published: October 10 2021 - 12:00 PM
Would you like to be part of our community-wide effort to advocate for new treatments for PWS? The... Read more >
Source: FPWR Blog | Published: October 10 2021 - 06:45 AM
Hyponatremia is a condition where the sodium (salt) levels in the body are too low. If sodium... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:00 AM
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:12 AM
Data from the PATH for PWS study, an ongoing natural history study of individuals with PWS... Read more >
Source: FPWR Blog | Published: September 9 2021 - 01:00 PM
Levo Therapeutic’s New Drug Application (NDA) for carbetocin as a treatment for PWS has been... Read more >
Source: FPWR Blog | Published: September 9 2021 - 11:30 AM
Dr. Rachel Wevrick and her team have just published a new paper looking at the function of the... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:00 AM
The Global PWS Registry continues to grow and strengthen as a valuable resource and research tool... Read more >
Source: FPWR Blog | Published: September 9 2021 - 01:00 PM
A special contribution by guest blogger Diane Schantin When Austin was born, our whole family was... Read more >
Source: FPWR Blog | Published: August 8 2021 - 12:00 PM
Thanks to the participation of so many in our community, our team was able to share the largest... Read more >
Source: FPWR Blog | Published: August 8 2021 - 10:36 AM
A special contribution by guest blogger Lisa Matesevac Our youngest child, Evan, was born in 2006.... Read more >
Source: FPWR Blog | Published: August 8 2021 - 10:45 AM
A phase 2 study of Pitolisant is enrolling patients ages 6 to 65  years old to evaluate the safety... Read more >
Source: FPWR Blog | Published: August 8 2021 - 11:05 AM