FPWR Blog

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FPWR Welcomes Natalie Brenneman to the Team!
Natalie is a veteran to our community of dedicated movers and shakers and has been involved with... Read more >
Source: FPWR Blog | Published: November 11 2021 - 01:00 PM
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FPWR, FAST, ASF, and Dup15q Unite to Fund Newborn Screening Grant
The Foundation for Prader-Willi Research (FPWR), Foundation for Angelman Syndrome Therapeutics... Read more >
Source: FPWR Blog | Published: November 11 2021 - 09:00 AM
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How to Identify Mental Health Challenges in Your Loved One with PWS
October is Mental Health Screening Month, and we're encouraging our PWS community to learn more... Read more >
Source: FPWR Blog | Published: October 10 2021 - 12:00 PM
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Carbetocin Approval: Your Comment Could Make the Difference
Would you like to be part of our community-wide effort to advocate for new treatments for PWS? The... Read more >
Source: FPWR Blog | Published: October 10 2021 - 06:45 AM
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Hyponatremia In PWS Is Rare But Fluid Intake Should Still Be Monitored
Hyponatremia is a condition where the sodium (salt) levels in the body are too low. If sodium... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:00 AM
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PWS Clinical Trials Alert
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:12 AM
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PATH for PWS Data Supports Positive Findings From DCCR Trial
Data from the PATH for PWS study, an ongoing natural history study of individuals with PWS... Read more >
Source: FPWR Blog | Published: September 9 2021 - 01:00 PM
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FDA Advisory Committee to Review Carbetocin (LV101) as PWS Treatment
Levo Therapeutic’s New Drug Application (NDA) for carbetocin as a treatment for PWS has been... Read more >
Source: FPWR Blog | Published: September 9 2021 - 11:30 AM
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Unique MAGEL2 Findings Point to Potential PWS and SYS Genetic Therapy
Dr. Rachel Wevrick and her team have just published a new paper looking at the function of the... Read more >
Source: FPWR Blog | Published: September 9 2021 - 09:00 AM
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PWS Registry Added 208 Participants In Past Year [INFOGRAPHIC]
The Global PWS Registry continues to grow and strengthen as a valuable resource and research tool... Read more >
Source: FPWR Blog | Published: September 9 2021 - 01:00 PM
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Grandma Takes One SMALL Step for PWS Research
A special contribution by guest blogger Diane Schantin When Austin was born, our whole family was... Read more >
Source: FPWR Blog | Published: August 8 2021 - 12:00 PM
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New Paper Provides Data on Vision Problems in People with PWS
Thanks to the participation of so many in our community, our team was able to share the largest... Read more >
Source: FPWR Blog | Published: August 8 2021 - 10:36 AM
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Dispelling the Myths Of Our Life With PWS
A special contribution by guest blogger Lisa Matesevac Our youngest child, Evan, was born in 2006.... Read more >
Source: FPWR Blog | Published: August 8 2021 - 10:45 AM
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PWS Clinical Trial Opportunity: Pitolisant
A phase 2 study of Pitolisant is enrolling patients ages 6 to 65  years old to evaluate the safety... Read more >
Source: FPWR Blog | Published: August 8 2021 - 11:05 AM
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