FPWR Blog

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Harvesting Hope Distance Challenge Returns
Back by popular demand is FPWR's Harvesting Hope Distance Challenge! Nearly 100 virtual trotters... Read more >
Source: FPWR Blog | Published: September 9 2022 - 08:30 AM
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Unique Art Auction Benefits PWS Research
Twenty paintings are available to the highest bidders in a unique art auction benefiting the... Read more >
Source: FPWR Blog | Published: September 9 2022 - 06:01 AM
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‘She’s Changed Our Family Forever’: Claire Carucci’s Story of Hope
A special contribution by guest blogger Claire Carucci. Our 17-month-old daughter Caroline has... Read more >
Source: FPWR Blog | Published: September 9 2022 - 09:00 AM
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Visiting PWS Researchers Inspires Hope
A special contribution by guest blogger Lisa Matesevac This summer, my family made our annual... Read more >
Source: FPWR Blog | Published: September 9 2022 - 07:37 AM
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“Change Invites Us to Reimagine, and That’s Such a Gift” Says PWS Hero
A special contribution by guest blogger Julie Foge Eliza turned eight this month, and it’s hard to... Read more >
Source: FPWR Blog | Published: August 8 2022 - 07:00 AM
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Study Sheds Light on Temper Outbursts in Prader-Willi Syndrome
Temper outbursts are a common challenge for many people with Prader-Willi syndrome. The published... Read more >
Source: FPWR Blog | Published: August 8 2022 - 09:05 AM
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Learnings from the Global PWS Community at the 2022 IPSWO Conference
In July 2022, FPWR’s Executive Director Susan Hedstrom, Director of Research Programs Theresa... Read more >
Source: FPWR Blog | Published: August 8 2022 - 09:00 AM
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2022 PWS Research Symposium and Family Conference
This September 29 - October 1, parents, caregivers and medical professionals from across the... Read more >
Source: FPWR Blog | Published: August 8 2022 - 07:00 AM
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​​Why I’m Crossing the Globe for FPWR’s Annual Conference
A special contribution by guest blogger Will Greene When our son Ari was diagnosed with... Read more >
Source: FPWR Blog | Published: August 8 2022 - 10:24 AM
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Top 10 Reasons to Attend the 2022 PWS Family Conference
Join us September 30-October 1 for our annual gathering of movers, shakers, thinkers, and doers at... Read more >
Source: FPWR Blog | Published: August 8 2022 - 08:00 AM
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PWS Clinical Trials Alert
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:12 AM
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FPWR 2022 Conference Speakers Announced
You won’t want to miss these speakers at the 2022 FPWR Family Conference this September and October... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
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D-dimer Study Yields Important Findings on PWS and Blood Clots
People with PWS have a higher risk for developing blood clots than the general population, but the... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
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People With PWS Share Their Hopes and Struggles In New Study
A tremendous amount of work has been done by The PWS Clinical Trials Consortium to understand and... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
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