FPWR Blog

Back by popular demand is FPWR's Harvesting Hope Distance Challenge! Nearly 100 virtual trotters... Read more >
Source: FPWR Blog | Published: September 9 2022 - 08:30 AM
Twenty paintings are available to the highest bidders in a unique art auction benefiting the... Read more >
Source: FPWR Blog | Published: September 9 2022 - 06:01 AM
A special contribution by guest blogger Claire Carucci. Our 17-month-old daughter Caroline has... Read more >
Source: FPWR Blog | Published: September 9 2022 - 09:00 AM
A special contribution by guest blogger Lisa Matesevac This summer, my family made our annual... Read more >
Source: FPWR Blog | Published: September 9 2022 - 07:37 AM
A special contribution by guest blogger Julie Foge Eliza turned eight this month, and it’s hard to... Read more >
Source: FPWR Blog | Published: August 8 2022 - 07:00 AM
Temper outbursts are a common challenge for many people with Prader-Willi syndrome. The published... Read more >
Source: FPWR Blog | Published: August 8 2022 - 09:05 AM
In July 2022, FPWR’s Executive Director Susan Hedstrom, Director of Research Programs Theresa... Read more >
Source: FPWR Blog | Published: August 8 2022 - 09:00 AM
This September 29 - October 1, parents, caregivers and medical professionals from across the... Read more >
Source: FPWR Blog | Published: August 8 2022 - 07:00 AM
A special contribution by guest blogger Will Greene When our son Ari was diagnosed with... Read more >
Source: FPWR Blog | Published: August 8 2022 - 10:24 AM
Join us September 30-October 1 for our annual gathering of movers, shakers, thinkers, and doers at... Read more >
Source: FPWR Blog | Published: August 8 2022 - 08:00 AM
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:12 AM
You won’t want to miss these speakers at the 2022 FPWR Family Conference this September and October... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
People with PWS have a higher risk for developing blood clots than the general population, but the... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
A tremendous amount of work has been done by The PWS Clinical Trials Consortium to understand and... Read more >
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM