We’re happy to offer these free resources to help you get the information you need about Prader-Willi syndrome.
This overview of hyperphagia covers research, management, and treatments. It will help you know what to expect and how best to help your child with PWS.
Understand how PWS affects social skills for children, youth, and adults. Learn about setting target areas for improvement and specific ways to help.
Mental health challenges in PWS include depression, bipolar disorder, psychotic symptoms, and more. Learn about diagnoses, treatments, and how to get care.
Learn about approaches that researchers are taking toward genetic therapy for Prader-Willi syndrome.
This guide is designed to help parents and clinicians understand some of the social challenges people with PWS face and provide an overview of the ways that the Building Our Social Skills (BOSS) curriculum can help.
Are you a facilitator ready to use the Building Our Social Skills (BOSS) curriculum in virtual or in-person settings? Download the 80-page curriculum to get started.
Learn what Applied Behavior Analysis is and how it can be used with adults and children with PWS. Presenter Cindy Szapacs is a Board Certified Behavior Analyst and the parent of a son with PWS.
Learn about optimal nutrition for all ages in PWS, and how diet recommendations have changed. Melanie Silverman is a pediatric registered dietitian who has been treating Prader-Willi syndrome for more than 10 years.
Get information and insights on caring for your loved one with PWS from Dr. Jessica Duis, who established the multidisciplinary clinic for PWS at Vanderbilt University.
Learn about diagnosis and treatment of orthopedic challenges in PWS, including osteoporosis and scoliosis, from Harold van Bosse, MD, and Janice Agarwal, PT.
There is hope for children with PWS. Written by parents of children with Prader-Willi Syndrome, this ebook provides crucial information, strategies, and next steps.
These 18 slides, with graphics, help raise awareness of the symptoms, causes, and challenges of Prader-Willi syndrome, and how research provides hope.
If you've just received a diagnosis of Prader-Willi syndrome for your child, read this fact sheet about PWS and getting started on growth hormone therapy.
Prader-Willi syndrome is the number-one genetic cause of life-threatening childhood obesity. Research offers hope for the future. Get the facts with this fact sheet.
This toolkit gives you the talking points, research facts, and links you need to successfully advocate and fundraise for PWS research.
There is hope for children with SYS. Written by parents of children with Schaaf-Yang Syndrome, this ebook provides crucial information, strategies, and next steps.
Schaaf-Yang syndrome is a rare genetic disorder caused by a disruption of the MAGEL2 gene. Research offers hope for the future. Get the facts with this free fact sheet.