In this 6-minute video, Drs. Theresa Strong and Caroline Vrana-Diaz review data and findings from the PWS Weight Study conducted by the Foundation for Prader-Willi Research. This study has been published in the Orphanet Journal of Rare Diseases.
Source: FPWR Blog
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Published: September 9 2020 - 09:00 AM
![PWS Registry Data: Impact of COVID-19 on PWS Families [INFOGRAPHIC]](https://www.fpwr.org/hubfs/Registry%20Infographics/pws-registry-data-impact-of-covid-19-on-pws-families-feature-image.jpg)
The Global PWS Registry recently launched a survey to capture the impact of COVID-19 on PWS families. The results reveal families' challenges, concerns, and successes in this unprecedented time.
Source: FPWR Blog
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Published: August 8 2020 - 07:26 AM
FPWR and the Prader-Willi Syndrome Association | USA (PWSA | USA) have partnered to conduct a study to measure interest in telehealth as a way of increasing access to care from Prader-Willi syndrome specialists. In addition, the project aims to better understand the demographic makeup of the PWS...
Source: FPWR Blog
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Published: August 8 2020 - 07:02 AM
Today, Levo Therapeutics announced the promising results of their Phase 3 Clinical Trial of carbetocin for treating symptoms of PWS.
Source: FPWR Blog
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Published: August 8 2020 - 05:40 AM
Children and adults with PWS frequently show impairments in their social interactions. New research on how people with PWS process visual and auditory cues could lead to social interventions that help.
Source: FPWR Blog
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Published: July 7 2020 - 09:00 AM
