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A Game Changer for PWS Genetics

A fascinating new paper has turned PWS genetics on its head, and has important implications for understanding the underlying disruptions that cause PWS. As anyone who is familiar with PWS knows, the genetics of this disorder is very complex.

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Skin picking in PWS: an overview of incidence and therapies

It is well accepted that self injurious skin picking is a major struggle among those with PWS, and is an upsetting challenge for parents and caregivers as well. However, there are few studies in this area and statistics are lacking regarding the frequency, severity, cause, and effective therapies.

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From discovery to therapeutic…learning about the FDA process

Knowlege is empowering! For those who are interested in learning more about the drug discovery and approval process, the FDA (Federal Drug Administration) has a new informational website directed specifically at patient education and involvement.

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Potential for a future prenatal therapy for autism

A recent publication in Science raises a number of interesting questions regarding the potential for prenatal and perinatal (newborn) therapies in the prevention and treatment of autism spectrum disorder (ASD). This type of treatment would be a decade or...

March 27, 2014 read more

The gut-brain connection: bacteria naturally carried in the gut may influence brain chemistry and behavior

Those with PWS often battle a variety of gastro-intestinal (GI) issues. Beyond general GI function and quality of life, there is a growing field of research exploring how GI composition and health is intricately connected to other systems in...

March 27, 2014 read more