Research Blog

Self-Care for PWS Caregivers — Elisabeth Dykens [2019 CONFERENCE VIDEO]
Self-Care for PWS Caregivers — Elisabeth Dykens [2019 CONFERENCE VIDEO]
In this 41-minute video, Dr. Elisabeth Dykens presents on the results of stress and the importance of self-care when parenting a child with special needs. Dr. Dykens is Professor of Psychology and Human Development at Vanderbilt Unversity and has done extensive research to understand PWS behaviors...
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Source: FPWR Blog | Published: December 12 2019 - 06:14 AM
FPWR Receives award from the Moriah Foundation to support the development of a Mental Health Guidebook for Prader-Willi Syndrome
FPWR Receives award from the Moriah Foundation to support the development of a Mental Health Guidebook for Prader-Willi Syndrome
The Foundation for Prader-Willi Research is excited to announce the receipt of a financial award from the Moriah Foundation which will be used to support the development of a Mental Health Guidebook for Prader-Willi Syndrome (PWS). Mental health and behavior challenges affect a large percentage of...
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Source: FPWR Blog | Published: December 12 2019 - 01:30 PM
Interview with the FPWR Research Team [2019 CONFERENCE VIDEO]
Interview with the FPWR Research Team [2019 CONFERENCE VIDEO]
In this 57- minute video, FPWR Executive Director Susan Hedstrom moderates as the FPWR research team provides an update on PWS research, achievements to date, and what we are doing to develop treatments for our loved ones with PWS. This session includes Q and A with conference attendees. Panelists...
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Source: FPWR Blog | Published: November 11 2019 - 03:28 PM
Gillian Segall Inspires PWS Community With Message of Hope [2019 CONFERENCE VIDEO]
Gillian Segall Inspires PWS Community With Message of Hope [2019 CONFERENCE VIDEO]
Gillian Segall is an 18-year-old high school senior from Chicago, who loves to swim and take care of animals and also happens to have PWS. In this inspiring 15-minute interview, Gillian kicks off the 2019 FPWR Family Conference in New Orleans. Click below to watch the video, and scroll down for a...
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Source: FPWR Blog | Published: November 11 2019 - 07:30 AM
What's Happening in PWS Research? [2019 CONFERENCE VIDEO]
What's Happening in PWS Research? [2019 CONFERENCE VIDEO]
In this 50-minute video, Theresa Strong and other FPWR research team members sum up the presentations given at the 2019 PWS Research Symposium. This overview provides a great synopsis of PWS research developments and work in progress, including PWS genetic therapy research, caring for people with...
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Source: FPWR Blog | Published: November 11 2019 - 11:40 AM