Let's be frank: our loved ones, like all of us, are spending more and more time online. Some PWS features—such as obsessional thinking, compulsive behavior, and poor impulse control—make keeping an eye on your loved one with PWS while online even more important. In a recent webinar, Elizabeth Roof,...
Source: FPWR Blog
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Published: April 4 2021 - 08:00 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely. Some trials are testing new drugs while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: April 4 2021 - 07:00 AM
![Acceptance and Commitment Training for PWS Parents [2020 CONFERENCE VIDEO]](https://www.fpwr.org/hubfs/Blog_Images/Acceptance-and-Commitment-Training-for-PWS-Parents-Feature.jpg)
In this 90‑minute workshop, Drs. Janice Forster and Stuart Libman provide Acceptance and Commitment Training (ACT) to help PWS parents build skills for living with greater awareness, openness, and engagement in valued life pursuits. The session includes Q&A from participants in the 2020 FPWR...
Source: FPWR Blog
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Published: April 4 2021 - 08:00 AM
![PWS Registry Data: Thyroid Issues in PWS [INFOGRAPHIC]](https://www.fpwr.org/hubfs/Registry%20Infographics/pws-registry-data-thyroid-issues-in-pws-feature-image.png)
When it comes to hormone imbalances in Prader-Willi syndrome (PWS), growth hormone deficiency and growth hormone therapy are at the forefront of the conversation. However, the levels of several other hormones are also more frequently different in PWS as compared to the general population. Data from...
Source: FPWR Blog
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Published: March 3 2021 - 08:21 AM
![Social Skills and Cognition Challenges in PWS [2020 CONFERENCE VIDEO]](https://www.fpwr.org/hubfs/Blog_Images/Social-Skills-and-Cognition-Challenges-in-PWS-Feature.jpg)
In this 75-minute video experts Elizabeth Roof, Anastasia Dimitropoulos, Louise Gallagher, and Lauren Schwartz-Roth discuss what we have learned about social skills and social cognition challenges in PWS and what we can do to address the them so that people with PWS can be more successful. The...
Source: FPWR Blog
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Published: March 3 2021 - 09:00 AM
