Research Blog

FPWR Announces Second Round of 2019 Grant Awards for PWS Research [VIDEO]
FPWR Announces Second Round of 2019 Grant Awards for PWS Research [VIDEO]
The Foundation for Prader-Willi Research announces our second round of Research Awards in 2019 totaling $708,577. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, has awarded over $13,000,000 to research since...
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Source: FPWR Blog | Published: November 11 2019 - 10:59 AM
2019 PWS Clinical Trials Panel [VIDEO]
2019 PWS Clinical Trials Panel [VIDEO]
The PWS Clinical Trials Panel presentation in the video below took place at FPWR’s 2019 Annual Research Symposium and Family Conference. The 90-minute session opens with a quick overview of the drug development process and is followed by presentations about five PWS clinical trials. Each panelist...
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Source: FPWR Blog | Published: October 10 2019 - 11:00 AM
DCCR Clinical Trial Should Continue, Says Data Safety Monitoring Board
DCCR Clinical Trial Should Continue, Says Data Safety Monitoring Board
Based on the review of data from more than 50% of patients enrolled, the Data Safety Monitoring Board has recommended continuing a  phase III clinical trial of DCCR for PWS. The trial, called DESTINY PWS, is a randomized, double-blind, placebo-controlled study of once daily oral administration of...
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Source: FPWR Blog | Published: October 10 2019 - 09:00 AM
Stages of PWS Drug Development Overview [VIDEO]
Stages of PWS Drug Development Overview [VIDEO]
Drug development is a long and costly process that can take up to 15 years and cost up to one billion dollars! In this 7-minute video, Dr. Theresa Strong discusses the stages of PWS Drug Development. Don't have time for the full presentation? We've captured the key points in the notes below.
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Source: FPWR Blog | Published: October 10 2019 - 09:25 PM
Phase 2 Study Results Published: Diazoxide Choline Controlled-Release
Phase 2 Study Results Published: Diazoxide Choline Controlled-Release
In 2015 FPWR co-funded a phase 2 study to investigate diazoxide choline controlled-release in patients with PWS. Results from the study were recently published in PLoS ONE and are summarized below.
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Source: FPWR Blog | Published: October 10 2019 - 09:00 AM