Mental health and behavioral problems are a major challenge for individuals with Prader-Willi syndrome (PWS), with significant impacts on quality of life and independence for both the person with PWS and their family. In 2015, FPWR conducted a two-day workshop bringing together approximately 45 top...
Source: FPWR Blog
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Published: September 9 2018 - 07:21 AM
We’re in the home stretch before the 2018 FPWR Family Conference, and the only thing missing is you! From Oct. 4-6 in Las Vegas, we’ll bring together families, caregivers, researchers and PWS experts for education, networking and community-building. We’re also excited to welcome parents of...
Source: FPWR Blog
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Published: August 8 2018 - 10:00 AM
Several NEW PWS trial opportunities are now available. FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely. Some trials are testing new drugs while others are...
Source: FPWR Blog
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Published: August 8 2018 - 09:00 AM
We hope that every parent walks away from the FPWR Family Conference with new information they can use in their everyday lives, and our two sessions on PWS Applied Behavior Analysis (ABA) will be packed with practical tools. Board Certified Behavior Analyst Cindy Szapacs and Associate Behavior...
Source: FPWR Blog
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Published: August 8 2018 - 10:00 AM
We are in an exciting time in PWS research. More clinical trials evaluating new drugs for PWS are taking place this year than in the last 10 years combined! For the first time ever, families will be able to choose from multiple clinical trials enrolling patients across the United States. More than...
Source: FPWR Blog
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Published: August 8 2018 - 05:32 AM