The Foundation for Prader-Willi Research (FPWR), Foundation for Angelman Syndrome Therapeutics (FAST), Angelman Syndrome Foundation (ASF), and Dup15q Alliance announce a collaborative initiative to fund the addition of chromosome 15 conditions to Early Check, a flexible framework amenable to...
Source: FPWR Blog
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Published: November 11 2021 - 09:00 AM
October is Mental Health Screening Month, and we're encouraging our PWS community to learn more about how to identify mental health challenges early.
Source: FPWR Blog
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Published: October 10 2021 - 12:00 PM
Would you like to be part of our community-wide effort to advocate for new treatments for PWS? The FDA is now accepting comments from the public regarding a new drug application currently under review for LV-101 (intranasal carbetocin), a potential treatment for PWS. Comments submitted by October...
Source: FPWR Blog
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Published: October 10 2021 - 06:45 AM
Hyponatremia is a condition where the sodium (salt) levels in the body are too low. If sodium levels get low enough, the person may become confused, experience a seizure, or even slip into a coma and (rarely) die. A few cases of hyponatremia due to excessive fluid intake have been previously...
Source: FPWR Blog
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Published: September 9 2021 - 09:00 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely. Some trials are testing new drugs while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: September 9 2021 - 09:12 AM
