Research Blog

Results have now been published on a study looking at eye tracking and hyperphagia in younger children with PWS (ages 3-11 years old). The study found that children with PWS who had higher hyperphagia questionnaire scores and more advanced nutritional phases also showed greater attention to food as...
Source: FPWR Blog | Published: July 7 2020 - 11:47 AM
Two recent papers address an area that has received very limited attention to date, aging in PWS. Both papers point to differences in aging in young adults with PWS compared to typical individuals and suggest that this is an area that is in need of further investigation.
Source: FPWR Blog | Published: June 6 2020 - 09:00 AM
When it comes to dermatological or skin issues in PWS, the first things that may come to mind are sensitivity to the sun due to fair skin, and skin picking. However, there are a variety of additional skin-related concerns for individuals with PWS. Data from the Dermatology Survey in the Global PWS...
Source: FPWR Blog | Published: June 6 2020 - 12:00 PM
Soleno Therapeutics has announced top-line results from the company’s phase 3 trial, DESTINY PWS (C601), evaluating once-daily diazoxide choline controlled release (DCCR) tablets for patients with Prader-Willi syndrome (PWS). The results of the study are mixed, with some potential bright spots, but...
Source: FPWR Blog | Published: June 6 2020 - 07:21 AM
  The Foundation for Prader-Willi Research announces our first round of Research Awards in 2020 totaling $912,251. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, has awarded over $14,000,000 to research since...
Source: FPWR Blog | Published: May 5 2020 - 08:25 AM
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