Research Blog

Dr. Theresa Strong Joins Scientific Advisory Board of Saniona
Dr. Theresa Strong Joins Scientific Advisory Board of Saniona
  FPWR works closely with several clinical trial sponsors in order to help companies understand the medical needs and challenges of PWS, provide input into study protocols and educate the community about trial opportunities. Most recently, FPWR Director of Research Programs, Dr. Theresa Strong, was...
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Source: FPWR Blog | Published: June 6 2019 - 07:39 AM
FPWR Announces First Round of 2019 Grant Awards for PWS Research [VIDEO]
FPWR Announces First Round of 2019 Grant Awards for PWS Research [VIDEO]
The Foundation for Prader-Willi Research announces our first round of Research Awards in 2019 totaling $786,000. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, has awarded over $12,000,000 to research since 2003.
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Source: FPWR Blog | Published: May 5 2019 - 06:25 AM
PWS Clinical Trial Webinar: Mindfulness for Temper Outbursts in PWS
PWS Clinical Trial Webinar: Mindfulness for Temper Outbursts in PWS
A new study is now enrolling people with PWS ages 13 to 30 years old and their caregivers to participate in a study to evaluate the use of Mindfulness-based intervention for the treatment of temper outbursts. A live webinar was conducted May 6th which shared details of the study, what you can...
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Source: FPWR Blog | Published: May 5 2019 - 02:50 PM
Improving Clarity of Speech: [2018 CONFERENCE VIDEO]
Improving Clarity of Speech: [2018 CONFERENCE VIDEO]
This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also watch the full set of conference videos on YouTube.
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Source: FPWR Blog | Published: May 5 2019 - 01:14 PM
May is #PWSAwareness Month | We Have Your PWS Awareness Resources
May is #PWSAwareness Month | We Have Your PWS Awareness Resources
Visit our PWS Awareness month page on the FPWR website for inspiration, educational resources and fundraising ideas to help you with your awareness activities! And don't forget to sign up for our PWS Awareness Month emails to receive a daily PWS fact that you can share to help build awareness.
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Source: FPWR Blog | Published: April 4 2019 - 09:00 AM