Rhythm Pharmaceuticals recently shared encouraging six-month results from its ongoing Phase 2 clinical trial of setmelanotide in people with Prader-Willi syndrome (PWS). The findings, presented at ENDO 2026, suggest that treatment with setmelanotide may help improve not only weight and body...
Source: FPWR Blog
|
Published: June 6 2026 - 09:44 AM
The night before One Small Step Maryland, Jen Lieberman was worried nobody would come. By the next morning, her family was scrambling to find more raffle tickets. "My brother-in-law literally ran to Staples," Jake laughed. "We were looking around thinking, 'Oh no... do we even have enough?'" Jen...
Source: FPWR Blog
|
Published: June 6 2026 - 08:45 AM
When you’re caring for someone with Prader-Willi syndrome (PWS), you become an expert at navigating complex medical and behavioral needs. But even with the best care, emergencies can still happen. A new study, funded by FPWR and led by Dr. James Luccarelli, examines why individuals with PWS visit...
Source: FPWR Blog
|
Published: May 5 2026 - 06:30 AM
We are pleased to announce the recipients of FPWR's first round of grants in 2026, totaling more than $1 million in funding to support innovative research and bold initiatives in Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome (SYS).
Source: FPWR Blog
|
Published: May 5 2026 - 06:15 AM
In January 2008, The Dallas Morning News published an article titled “Parents Seek Answers.” At the center of the story was Kathryn McGhee, a mother navigating the daily realities of Prader-Willi syndrome while also helping shape a growing research movement that would become the Foundation for...
Source: FPWR Blog
|
Published: May 5 2026 - 05:45 AM
