It is well known that individuals with Prader-Willi syndrome (PWS) display muscle weakness, hypotonia, and decreased lean muscle mass. Those with PWS have a 25–40% decrease in muscle mass compared to non-affected individuals, and muscle strength is approximately 70% lower than that of those without...
Source: FPWR Blog
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Published: September 9 2023 - 09:15 AM
Sugar glucose is the body’s primary source of energy. Maintaining a healthy level of glucose in blood (not too high or too low), so that it can be delivered to all the other tissues of the body, is regulated by the hormone insulin. Insulin is produced in one very small part of the pancreas called...
Source: FPWR Blog
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Published: July 7 2023 - 09:00 AM
UPDATE, July 2023: We are currently contracting with potential trial sites across the US and will announce sites as they become available. Our first sites could be available as early as August/September. If you would like to join our interest list for this study, please send an email to...
Source: FPWR Blog
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Published: July 7 2023 - 07:36 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely. Some trials are testing new drugs while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: July 7 2023 - 12:21 PM
![PWS Registry Data: Dental Issues [INFOGRAPHIC]](https://www.fpwr.org/hubfs/pws-registry-data-dental-issues-3.png)
Dental issues in PWS can result from symptoms directly related to PWS, such as low saliva production, combined with challenges that individuals with special needs may have with maintaining good oral hygiene. Here, we focus on data from the Global PWS Registry exploring the incidence of common...
Source: FPWR Blog
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Published: June 6 2023 - 11:00 AM
