Research Blog

PWS Registry Data: GI Issues in Prader-Willi Syndrome [INFOGRAPHIC]
PWS Registry Data: GI Issues in Prader-Willi Syndrome [INFOGRAPHIC]
Individuals with PWS suffer from a variety of digestive and gastrointestinal issues (GI), some of which can lead to surgery. Here, we focus on data from the Global PWS Registry to provide information on the prevalence of gastroparesis (delayed stomach emptying), as well as the frequency and types...
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Source: FPWR Blog | Published: June 6 2021 - 10:00 AM
PWS Clinical Trials Alert
PWS Clinical Trials Alert
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely.  Some trials are testing new drugs while others are intervention (non-drug) or natural history studies. Details of...
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Source: FPWR Blog | Published: June 6 2021 - 10:53 AM
Pitolisant for Excessive Daytime Sleepiness in PWS [2020 CONFERENCE VIDEO]
Pitolisant for Excessive Daytime Sleepiness in PWS [2020 CONFERENCE VIDEO]
In this 30‑minute video, Albena Patroneva from Harmony Biosciences explains what pitolisant is and how it works, and describes Harmony's Phase 2 clinical trial of pitolisant in patients with PWS. The session includes Q&A from participants in the 2020 FPWR Virtual Conference.
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Source: FPWR Blog | Published: June 6 2021 - 10:00 AM
Next Steps In PWS Advocacy
Next Steps In PWS Advocacy
For more than a decade, FPWR has partnered with families and other PWS groups (PWSA|USA, IPWSO) to advocate for PWS treatments. We've worked diligently to build resources that address the FDA’s call for patient experience data, demonstrating high disease burden and the need for effective therapies...
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Source: FPWR Blog | Published: June 6 2021 - 09:00 AM
FPWR Announces First Round of 2021 Grant Awards for PWS Research [VIDEO]
FPWR Announces First Round of 2021 Grant Awards for PWS Research [VIDEO]
The Foundation for Prader-Willi Research announces our first round of Research Awards in 2021 totaling $359,100. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, has awarded over $15,00,000 in research grants...
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Source: FPWR Blog | Published: June 6 2021 - 09:00 AM
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