When it comes to dermatological or skin issues in PWS, the first things that may come to mind are sensitivity to the sun due to fair skin and skin picking. However, there are a variety of additional skin-related concerns for individuals with PWS.
Source: FPWR Blog
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Published: March 3 2026 - 09:00 AM
Families living with Prader-Willi syndrome are changing how PWS is understood, studied, and treated.
Source: FPWR Blog
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Published: February 2 2026 - 06:00 AM
Sleep is a common challenge among people with PWS. Whether it is daytime sleepiness, getting up at all hours of the night, early waking, or another sleep-related issue, sleep challenges not only affect the individual with PWS but the entire family. The PWS Global Registry has gathered useful survey...
Source: FPWR Blog
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Published: February 2 2026 - 07:44 AM
Excessive daytime sleepiness (EDS) is one of those symptoms of Prader-Willi syndrome (PWS) that often does not get the attention it deserves. EDS can profoundly undermine success in older children and adults with PWS. It is hard to learn anything in school if you cannot stay awake for class, and it...
Source: FPWR Blog
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Published: January 1 2026 - 08:59 AM
You have probably heard of GLP-1 receptor agonists (GLP-1s). You may even know someone who has successfully lost weight using one of these popular medications. But what about their safety and effectiveness for people with Prader-Willi syndrome (PWS)?
Source: FPWR Blog
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Published: January 1 2026 - 09:00 AM
