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Foundation for Prader-Willi Blog | Stories of Hope

Once She Sets Her Mind to Something, Nothing Can Stop Her!

A special contribution by guest blogger Alice Shapley Our beautiful and amazing 7‑year‑old daughter Anna has Prader‑Willi syndrome (PWS). There are so many things for which I am incredibly, deeply proud of Anna, but today I want to talk about the rol...

Topics: Stories of Hope

Fundraising for PWS Research Has Empowered Our Family

A special contribution by guest blogger Felicia DiMuccio Growing up, I was never quite sure what I wanted to be, but I always knew I wanted to be a mom. Finding out I was pregnant with Siena was a dream come true, and I couldn't wait for her to enter...

Topics: Stories of Hope

PWS Research Provides the Hope We Desperately Needed As New Parents

A special contribution by guest blogger Natalie Brenneman Evan emerged into the world lifeless and blue. I remember watching my husband shifting back and forth on his tiptoes behind the medical team working to resuscitate him. “It’s a boy!” he finall...

Topics: Stories of Hope

Two Moms Harvest Hope With 5K for PWS Research

While most of us spend Thanksgiving Day, relaxing, watching football or entertaining family, Rachael Fischer and Julie Foge rise before the sun to host the Harvesting Hope 5K run.  Since 2015 these two amazing, determined women have hosted this famil...

Topics: Stories of Hope

Aaron Dunn and Family: Hugging Our Way to a 'Hopefull' Future

A special contribution by Amanda Dunn, Host of HopeFull: Funding a Cure for Prader-Willi Syndrome, Cincinnati, OH For our 5-year-old son Aaron, it all starts with a hug. Not just any hug. He has a signature, enthusiastic hug. It’s clear just how capa...

Topics: Stories of Hope

Our Challenges Are Opportunities To Be Better People, Says PWS Mom

A special contribution by guest blogger Laura Achlabach Laura shared her story via our Stories of Hope questionnaire.

Topics: Stories of Hope

'My Life Was Enriched By Having a Sibling With PWS'

A special contribution by guest blogger Deb Cooper Deb shared her story via our Stories of Hope questionnaire.

Topics: Stories of Hope

Uncle Paul Cycles America to Build Awareness of PWS

Paul Golub’s 30th anniversary working for Walmart in Athens, GA, was just around the corner, when his upper management approached him and asked what he would like to do to celebrate the occasion. After spending some time thinking about it, he remembe...

Topics: Stories of Hope

Camaraderie & Joy : Walking in Washington, DC

I recently had the joy of attending the One SMALL Step walk in Washington, D.C. on June 1, 2019.  Being that I am involved daily in the One SMALL Step community, often helping in the background with technology, logistics, communications and coaching,...

Topics: Stories of Hope

Two Silver Medals: A Child's Achievement Inspires Strength and Hope

A special contribution by guest blogger Allison Shelton Allison shared her story via our Stories of Hope questionnaire.

Topics: Stories of Hope