Jeannine Kowal (2014)
“When my then-seven month old daughter Caitlin was diagnosed with PWS in July 2011, I had two questions, the first one was, ‘How can there not be medicine for the hunger?’ the second one was, ‘When I start fundraising for research where do I send the money?’ Both answers led me to the Foundation for Prader Willi Research.”
Jeannine grew up and currently lives in Los Angeles, California. She attended U.C.L.A. and received her B.A. in History and thereafter attended the University of Michigan Law School where she received her J.D. She is currently a practicing attorney and cultivating her fundraising skills. She has been an active fundraiser at previous non–profits and her children’s schools and is now applying those skills for the FPWR. She co-founded Prader Willi Angels, a 501(c)(3) which seeks to raise funds to support research initiatives geared toward solving the challenges of PWS, with a particular focus on curing hyperphagia.
Jeannine spends what little free time she has left with her husband Jerry, her son Andrew and daughter Caitlin.
Brent Snyder (2019)
Brent Snyder and his wife, Renee, are passionate about doing all they can to help raise awareness and funds for PWS research, and they believe that supporting the FPWR’s dedication to advance research is the best way to help their 6 year old daughter, Peyton, live the happiest and healthiest life as possible. “When we received the diagnosis that our daughter had PWS, we were overwhelmed with information. The FPWR was a ray of light and hope and positivity for us during a difficult time in our lives.”
Brent has a Bachelor’s Degree in Biology from Cal Poly, San Luis Obispo. He has18 years of experience in Sales and Marketing, where he spent his early years as a pharmaceutical sales rep, and transitioned to the insurance industry in 2003. He has held many Sr. Level sales positions with several different insurance companies and has received dozens of awards for his sales successes over the years.
Brent and Renee live in Orange County, CA, with their daughter, Peyton, and their 8 year old son, Chad. Brent enjoys coaching his son’s basketball team where he currently serves on the Board of Directors for the league, playing pick up basketball on a weekly basis, golfing, and martial arts.
Daniel Chorney (2014)
After Brandon’s diagnosis in 2012, Dan and his wife Samantha went looking for answers. “With so much out of our control, we searched for an outlet to help us better understand the challenges that lay ahead. It did not take long for us to recognize that supporting the advancement of PWS research was the best possible way to help our son. The commitment and focus of FPWR, and the group of families that support the organization, are truly outstanding. It gives us hope for a better future for Brandon and all those families affected by PWS.”
Dan Chorney is a Financial Advisor in the New York office of Bernstein Global Wealth Management. He is responsible for advising high net-worth families and institutions, as well as their respective trusts, estates, foundations, endowments and pension plans. Dan, in conjunction with Bernstein’s Wealth Management Group, works closely with each client’s trusted tax and legal advisors on all matters, including tax and estate planning, concentrated stock positions and sales of privately held businesses.
Dan holds a BA in psychology from the University of Vermont and an MBA in finance and management from New York University’s Stern School of Business.
Ian Alberg (2019)
Scott Arant (2019)
Scott W. Arant is a distinguished healthcare executive with over 25 years of experience in executive management, business development, mergers and acquisitions and strategic finance and planning. He currently serves as Chief Executive Officer of American Health Imaging, Inc., a company he founded in 1998.
Under Mr. Arants leadership, American Health Imaging, Inc. has grown significantly in outpatient diagnostic imaging expanding to 30 imaging centers operating in 4 states. AHI’s successful model of cutting edge equipment, highly qualified staff and superior customer service has made them a trusted leader in their various markets.
Mr. Arant recently served as the Chairman of the Board for the Association for Quality Imaging in Washington, D.C. During his Chairmanship, he regularly met with Members of the US Congress, US Senate and The White House advocating for safety, quality and appropriate use in the imaging space and also helps steer the policy agenda for the outpatient imaging industry on Capitol Hill. Mr. Arant has also served as Chairman of the Board for the NeuroScience Foundation and a member of the board of directors for the Physicians Care Clinic, Texas IDTF Association and the Prader-Willi Syndrome Association of Georgia.
While best known for his work in diagnostic imaging, Mr. Arant has an ownership interest in other healthcare oriented businesses ranging from Primary Care to patient automation software. Additionally, he has recently developed medical office buildings in Georgia and Florida.
A business graduate of Auburn University, Mr. Arant lives in Atlanta, Georgia with his wife Deborah and their three children.
Brian Dula (2015)
Dr. Brian Dula is a board certified Anesthesiologist with the Palo Alto Medical Foundation Group in Palo Alto, California. Brian received his professional education at Penn State College of Medicine and completed his residency at the University of California, San Francisco.
Brian and his wife, Kelly, have become active fundraisers and incredible advocates for FPWR’s mission since the birth of their youngest child, Alaina Willow, in 2014. Their first fundraising event, held in 2015, raised over $30,000 for PWS research and brought together more than 250 members of their community in northern, California.
Drew Harman (2020)
Jack Jones (2017)
“When our daughter Brooke was born in 2011 and diagnosed with PWS, we made a vow to ‘Keep Moving Forward’ and not let the disorder define her. When we looked for ways to help support research, our search quickly led us to FPWR, and the amazing community of parents and supporters that are involved with it. We started fundraising a few months later, and have continued to support the organization ever since.”
Jack Jones and his wife Belinda live near Toronto Canada with their son Jordan, and daughters Izabella and Brooke. Jack is President of the Canadian FPWR organization, and the two of them have been heavily involved in supporting FPWR events since 2012.
Jack is a software executive with over 15 years in senior leadership roles in technology companies worldwide. Jack attended the US Military Academy at West Point, and studied Computer Science at Northeastern University.
Guy Niedorkorn (2018)
Guy is retired from a long career that spanned over 50 years in the electrical construction industry. He is a former Vice President of Aldridge Electric based in Libertyville, Illinois and a retired member of the International Brotherhood of Electrical Workers (IBEW).
With a strong commitment to charitable giving, Guy and his wife, Judy, are active fund raisers in Chicagoland. They have hosted the annual I Gotta Guy Sausage Festival for the last ten years, raising over half million dollars to date. He is also a former member of the Cystic Fibrosis Advisory Board and a long-time supporter of JDRF.
Guy and Judy became involved with FPWR when their granddaughter, Emma, was diagnosed with Schaaf-Yang syndrome in 2016. They reside in Palestine, Illinois, where they enjoy spending time with their 6 grandchildren.
Dave Pfeiffer (2016)
Dave Pfeiffer is a biopharmaceutical executive with more than 25 years of experience as a senior executive at both large and small life science companies. He is currently President and CEO of Ralexar Therapeutics, Inc., a private venture capital-backed company developing treatments for atopic dermatitis and psoriasis. Dave has served on the senior management teams at a number of biopharma and medical device companies, including Ellman International, NB Therapeutics, and CollaGenex Pharmaceuticals. He began his career working at large pharmaceutical companies such as Zeneca and SmithKline Beecham.
Dave is currently a member of the BOD of Ralexar Therapeutics, Inc. He was also was a member of the Board of Directors a CD Diagnostics, a diagnostic company with an initial focus on orthopedic procedures recently sold to Zimmer Biomet, and Ellman International. He received his B.S. in Physiology from Rutgers University and his Masters of Management from the J.L. Kellogg Graduate School of Management at Northwestern University.
Dave lives with his wife Anina and their four children Gillian, Paige, Brooke (PWS) and Scott in Blue Bell, PA.
Alicia Secor, MBA (2016)
Alicia Secor joined Juniper Pharmaceuticals as Chief Executive Officer in August 2016 and serves as a Director of the Company. Ms. Secor brings more than 25 years’ of leadership experience as a life sciences executive, with a track record in leading businesses and advancing products from clinical development through regulatory approval, commercialization, and global expansion across several therapeutic areas.
Ms. Secor joined Juniper from Zafgen, Inc., where was Chief Commercial Officer and played a key role in advancing the company to a Phase 3 pre-commercialization status. Previously Ms. Secor served 15 years at Genzyme Corporation in diverse leadership roles, most recently as the Global General Manager for the Metabolic Disease Business.
During her tenure at Genzyme, Ms. Secor led fully integrated businesses, successfully launching products and achieving sustained revenue growth. Ms. Secor spearheaded several strategic transactions and built high performance teams, resulting in consistent growth and profitability across multiple Genzyme businesses including biomaterials, surgical devices, and injectable therapeutics.
Prior to Genzyme, Ms. Secor held positions at Alkermes in business development, at Centocor (a Johnson & Johnson Company) in clinical and commercial operations. She began her career at Pfizer as a hospital-based sales representative.
Ms. Secor received an M.B.A. from Northeastern University, and a B.S. in Healthcare Administration from the University of New Hampshire.
Jason Waldrop (2015)
Alice Viroslav (Founding Member)
Dr. Viroslav received dual BA’s in Psychology and Biology from Southern Methodist University and received her MD degree from The University of Texas Southwestern Medical School. She completed her residency and fellowship training at Emory University, where she served as Chief Resident in Radiology. She is board certified in Diagnostic Radiology with added qualification in Neuroradiology, is a senior member of the American Society of Neuroradiology, and is a member of Radsource, a private practice specialty radiology group based in Nashville, Tennessee. She also has a teaching appointment at the University of Texas Health Science Center at San Antonio.
Dr. Viroslav is a co-founder of the Foundation for Prader-Willi Research and has served as president of the organization twice. In addition to her work with the FPWR, Dr. Viroslav holds multiple local and national non-profit positions. Locally, she serves on the board of the Bexar County Performing Arts Center and is currently the co-chair of the Capital Campaign for San Antonio’s new Tobin Center for the Performing Arts. She is a past Chair of the Board of Trustees of Saint Mary’s Hall School and recently completed her tenure as co-chair of the school’s successful $26 million dollar Capital Campaign. She is Immediate Past Chair of the Board of the Jewish Federation of San Antonio and is a previous recipient of the Federation’s Young Leadership Award, the Community Relations Council Award, and the Israel Bonds Star of David Award. She is currently a member of the boards of the Playhouse San Antonio, the San Antonio Chamber Choir, the San Antonio Symphony Mastersingers, and the Mind Science Foundation, and is a past Chair of the Board of the Winston School San Antonio, a private school for children with learning differences.
Nationally, Dr. Viroslav is a former member of the Board of Trustees of The Jewish Federations of North America and served on JFNA’s Executive Committee. She is a current member of the Executive Committee of JFNA’s National Women’s Philanthropy Board and is a past co-chair of JFNA’s National Young Leadership Department. She is a past board member of the Jewish Council for Public Affairs and co-chaired JCPA’s National Plenum in 2010.
Dr. Viroslav’s husband, Sergio, is an orthopaedic surgeon with The San Antonio Orthopaedic Group. They have three children – Hannah, 21, who is a senior at Vanderbilt University and who volunteers with the PWS clinic at Vanderbilt’s Kennedy Center, Olivia, 18, who is a senior at Alamo Heights High School, and Evan, 15, who is a sophomore at Saint Mary’s Hall. Olivia was diagnosed with PWS at age 5 on September 11, 2001.