Latest News

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Aardvark news release, October 2026
FDA Lifts Clinical Hold on ARD-101 for Prader-Willi Syndrome
The FDA has lifted the clinical hold on Aardvark Therapeutics’ Investigational New Drug (IND) application for ARD-101, a potential treatment for hyperphagia in Prader-Willi syndrome (PWS). Aardvark voluntarily paused dosing in the Phase 3 HERO trial and its open-label extension
Dr. Theresa Strong and her son Daniel smiling together outdoors in front of trees.
How Your Donation Helps a New Research Idea Take Shape
Before a research idea can attract major funding, it needs evidence that it's worth pursuing. Getting that evidence takes funding, too. That's where the Foundation for Prader-Willi Research—and the people who donate and fundraise—make a difference. In a recent conversation
A smiling child wearing glasses and a bright blue T-shirt sits in a medical exam room beside a smiling healthcare provider. The child has patterned bandages on both arms, and medical equipment is visible in the background.
PWS Clinical Trials Alert
FPWR keeps you informed about clinical trial opportunities for PWS. Studies vary in their purpose and participation requirements, from drug trials and non-drug interventions to natural history studies, with some requiring in-person visits and others offering remote participation. Explore the
Child holding a sign that reads “We Trot For… My Future!” outdoors, with the Harvesting Hope Distance Challenge logo displayed beside them.
Harvesting Hope 2026: Walk, Run, and Shake Your Tailfeather
Ready to put purpose in your steps? The Harvesting Hope Distance Challenge is back starting October 15! Whether you walk, run, or waddle, every step funds critical research for Prader-Willi and Schaaf-Yang syndromes. And the best part? Thanks to a
Graphic announcing that FPWR is a 2026 NORD Rare Impact Award honoree for Global PWS Registry research. A tilted blue award card names the Abbey S. Meyers Leadership Award, above the FPWR and NORD logos.
FPWR Receives 2026 NORD Rare Impact Award
The Foundation for Prader-Willi Research has received the Abbey S. Meyers Leadership Award as part of the 2026 NORD Rare Impact Awards for its Global PWS Registry research. We’re honored by NORD’s recognition and deeply grateful to the families who
Dr. Roy, Dr. Shaheed, and Corrie Andrews smiling professionally.
The First Two Years with PWS: Expert Guidance for Families
The early years with Prader-Willi syndrome (PWS) come with a lot to learn. For families still finding their footing after a new diagnosis, questions about feeding, growth hormone, sleep, therapies, and specialist visits can come quickly — all while getting

Subscribe to hope.

If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Evan and Dr. Fallah