Donate
    Join Us

    Latest News

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Filter
    Select Category
    Research
    Stories of Hope
    News
    Parents
    Family Conference
    Global PWS Registry
    Clinical Trials
    Schaaf-Yang Syndrome
    Treatments
    Behavior
    Sleep
    Advocacy
    Resource Development
    Clinical Trials Opportunities
    hopefull
    Endocrinology/Growth Hormone
    Mental Health
    Children 0-3
    Clinical Issues
    Hyperphagia
    Learning
    Research Blog
    trial endpoints
    Children 3-6
    Genetic Therapy
    Hunger Satiety
    Scoliosis
    Therapeutic Development
    Aging
    Blood Clots
    Children 12-18
    Children 6-12
    Executive Function
    Genetics and Imprinting
    Obesity and Energy Balance
    PWS Research
    Partners
    Trial Results
    VYKAT
    Video Gallery
    Volunteer
    cognition
    hormones
    hypogonadism
    interventions
    one small step
    skin picking
    speech
    Dr. Roy, Dr. Shaheed, and Corrie Andrews smiling professionally.
    The First Two Years with PWS: Expert Guidance for Families
    The early years with Prader-Willi syndrome (PWS) come with a lot to learn. For families still finding their footing after a new diagnosis, questions about feeding, growth hormone, sleep, therapies, and specialist visits can come quickly — all while getting
    A smiling child wearing glasses and a bright blue T-shirt sits in a medical exam room beside a smiling healthcare provider. The child has patterned bandages on both arms, and medical equipment is visible in the background.
    PWS Clinical Trials Alert
    FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits, while others can be completed remotely. Some trials are testing new drugs, while others are intervention (non-drug) or natural
    Smiling baby lying on a soft blanket, wearing a floral outfit and pink headband while holding a growth hormone injection pen.
    PWS Registry Data: Growth Hormone Use in People with PWS
    Growth hormone therapy (GHT) is a standard of care for individuals with Prader-Willi syndrome (PWS) from infancy through adolescence and is recommended for adults with PWS. Data collected through the Global PWS Registry helps us better understand growth hormone use
    Built to Last: Celebrating One Small Step Legacy Hosts
    Behind every One Small Step is an unsung hero. Following up with one more sponsor. Filling prize baskets at the kitchen table. Wondering if anyone will actually show up. Arriving before sunrise to unload tables. Most people never see those
    Graphic announcing “A Letter to the PWS Community from Neurocrine Biosciences,” featuring a preview of the Neurocrine letter and FPWR and Neurocrine logos.
    Neurocrine Biosciences Shares Letter with the PWS Community
    Neurocrine Biosciences has shared a letter with the Prader-Willi syndrome (PWS) community. Earlier this year, Neurocrine Biosciences acquired Soleno Therapeutics and became the new steward of VYKAT® XR (diazoxide choline) extended-release tablets. Kyle Gano, CEO of Neurocrine, has shared a
    PWS Medical Care at Every Age graphic featuring 2026 FPWR Conference speakers Dr. Sani Roy for ages 0–2, Dr. Amy Fleischman for ages 3–9, and Dr. Diane Stafford for teens and adults.
    PWS Medical Care at Every Age | 2026 FPWR Conference
    Medical needs change as people with Prader-Willi syndrome grow, and families often have questions about what to watch for, which specialists to see, and what care should look like at each stage. At this year’s FPWR Family Conference, three experienced
    Walking With Will: One Family's Journey of Hope
    When our son Will was born in 2020, we never could have imagined how much he would teach us about strength, joy, and resilience. At just 13 days old, we received the diagnosis: Prader-Willi syndrome (PWS). I remember holding him
    1 2 3 4 5

    Subscribe to hope.

    If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

    Subscribe to FPWR News Updates

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah