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Foundation for Prader-Willi Blog | Research

2023 PWS Research Symposium - Sharing Progress, Fostering Collaborations

One of the most important roles FPWR serves is that of a ‘convener’, bringing together those with an interest in advancing the science of PWS, and the care of those living with PWS. On Oct 5-6, 2023, FPWR held its annual PWS Research Symposium – our ...

Topics: Research, Learning

FPWR Announces 2nd Round of 2023 Grants

We are pleased to announce the recipients of the second round of grants for 2023, totaling $1,000,000 in awards, as part of the Foundation for Prader-Willi Research's (FPWR) ongoing commitment to advancing research in Prader-Willi (PWS) and Schaaf-Ya...

Topics: Research, SYS

Recordings from FPWR’s Annual Family Conference: What’s Next for DCCR?

Soleno Therapeutics recently shared data from their DESTINY PWS study, an international, placebo-controlled Phase 3 study of DCCR (Diazoxide Choline Controlled-Release) drug trial. To further establish the effects of DCCR administration on hyperphagi...

Topics: News, Hunger Satiety, Research

Progressive Resistance Training in Young People With PWS: Protocol for a Randomized Trial (PRESTO)

It is well known that individuals with Prader-Willi syndrome (PWS) display muscle weakness, hypotonia, and decreased lean muscle mass. Those with PWS have a 25–40% decrease in muscle mass compared to non-affected individuals, and muscle strength is a...

Topics: Research

New PWS β-Cell Model Reveals Details Underlying Insulin Secretion Defects

Sugar glucose is the body’s primary source of energy. Maintaining a healthy level of glucose in blood (not too high or too low), so that it can be delivered to all the other tissues of the body, is regulated by the hormone insulin. Insulin is produce...

Topics: Research

Exciting New Treatment May Reduce Disruptive Behaviors in PWS

UPDATE, July 2023: We are currently contracting with potential trial sites across the US and will announce sites as they become available. Our first sites could be available as early as August/September. If you would like to join our interest list fo...

Topics: Research

PWS Clinical Trials Alert

FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely. Some trials are testing new drugs while others are intervention (no...

Topics: Research

PWS Registry Data: Dental Issues [INFOGRAPHIC]

Dental issues in PWS can result from symptoms directly related to PWS, such as low saliva production, combined with challenges that individuals with special needs may have with maintaining good oral hygiene. Here, we focus on data from the Global PWS...

Topics: Research

FPWR-Funded Postdoc Will Investigate the MAGEL2 Gene

Drug development for new therapies begins with research and discovery. To treat PWS (Prader-Willi syndrome) and SYS (Schaaf-Yang syndrome), we need to understand the differences between individuals with these conditions and typical individuals, right...

Topics: Research, SYS