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Foundation for Prader-Willi Blog | Research

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PWS Clinical Trials Alert

FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely.  Some trials are testing new drugs while others are intervention (n...
June 5, 2023 Read More

Topics: Research

Exciting New Treatment May Reduce Disruptive Behaviors in PWS

UPDATE, MAY 2023: FPWR is preparing to launch our VNS4PWS clinical trial.  We are currently contracting with potential trial sites across the US and will announce sites as they become available. We plan to begin screening volunteers (ages 10 - 40) th...
May 17, 2023 Read More

Topics: Research

FPWR Announces 1st Round of 2023 Grants Exceeding $1.9M in Funding

FPWR is pleased to announce that we have recently awarded 13 project awards totaling $1.963M to support research aimed at advancing our understanding of Prader-Willi syndrome (PWS) and developing much-needed treatments. PWS is a complex genetic disor...
May 10, 2023 Read More

Topics: Research

A New Rat Model for the Study of Features Underlying Schaaf-Yang Syndrome

Mice have long been the preferred mammal model in research labs due to their cost, size, and tractable genetics. Their behavioral simplicity, however, limits a researcher’s options for studying the component features that may serve as surrogate measu...
May 9, 2023 Read More

Topics: Research, SYS

Schaaf-Yang Syndrome Across the Lifespan [2022 CONFERENCE VIDEO]

In this one hour and 22-minute video, Dr. Christian Schaaf,  Department Chair of Human Genetics at Heidelberg University, discusses current research into Schaaf-Yang syndrome (SYS). Click below to watch the video. If you're short on time, scroll down...
April 25, 2023 Read More

Topics: Research, SYS

Possible Link Found Between Erythritol and Risk of Thrombosis

You are probably aware that individuals with PWS have a slightly elevated risk for thrombosis (blood clot formation), with 8.4% of respondents aged 30-61 years reporting a history of one or more in our 2018-2022 survey, compared to <1% in the non-...
April 11, 2023 Read More

Topics: Research

A Link Between Exercise Motivation and the Gut Microbiome

Do you ever wonder why you’re so strongly motivated to exercise while it seems that some others inexplicably aren’t?  The answer may lie in the differences between your gut microbiomes! Nature, the world’s leading multidisciplinary science journal, r...
March 7, 2023 Read More

Topics: Research

PWS Registry Data: Mental Health Therapies [INFOGRAPHIC]

As a rare disorder, PWS is most well-known to the medical community and general population for hyperphagia, or intense food-seeking behavior. However, family members, caregivers, and individuals with PWS know that behavior difficulties and mental hea...
March 6, 2023 Read More

Topics: Research

Medical Devices Offer New Opportunities to Alleviate Symptoms of PWS

FPWR is investigating several devices that have been proven effective in treating a myriad of symptoms associated with other medical conditions & have considerable potential to relieve symptoms of PWS. Devices offer many advantages including an e...
February 22, 2023 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Phone: 888-322-5487
Email: info@fpwr.org

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