FPWR is pleased to offer research webinars throughout the year to present you with the latest in Prader Willi Syndrome research! A list or recorded webinars are below. For a full collection of recordings, please visit our YouTube Channel.
Research Grants Webinar, Spring 2018
FPWR announces our first round of Research Awards in 2018 totaling $615,000. In this webinar Dr. Theresa Strong will provide a review of the FPWR grants program and briefly describe each of the 7 funded grants, why we are excited about them and what their potential long term contribution could be. Watch Webinar >>
Research Grants Webinar, Spring 2017
A review of recent initiatives funded through FPWR. Includes an overview of newly funded studies, new opportunities and advances in PWS research. Watch Webinar.
Research Grants Webinar, Spring 2016
Ten outstanding projects were selected for funding, totaling $870,000 in support. These projects address a variety of topics important in PWS, including mental health, behavior, diet, hypotonia, drug development and genetic therapy via maternal chromosome activation. Information on these projects and our Research Grants Program can be viewed on our most recent Research Program Webinar.
Phase 2 Investigation of Intranasal Oxytocin, November 2015
Dr. Hollander and his team from Montefiore Medical Center and Albert Einstein College of Medicine are conducting a Phase 2 study to investigate the effects of intranasal oxytocin (OXT) in children and adolescents with PWS. They will study how OXT administration impacts eating, repetitive behaviors, and social cognition in PWS. This webinar reviews the rationale for testing OXT in PWS, describes the study protocol and outcome measures, and reviews eligibility criteria. Click here to view the Webinar
Rhythm RM-493, May 2015
Learn more about clinical trial participation opportunities. This webinar will spotlight Rm-493: a phase II study. An overview of the trial will be given by Rhythm and will include the study design and purpose, inclusion criteria and logistics and learn about study logistics from Dr. Jennifer Miller the principal investigator at University of Florida, one of the Rhythm study sites. Watch the Webinar.
Patient Voices Survey Summary, November 2014
A summary of over 700 responses from the PWS community weighing in on our greatest challenges. Patient Voices Webinar Slides
Research Grants Webinar, Spring 2014
A review of the initiatives funded through the FPWR and One SMALL Step programs. Includes an overview of newly funded studies, and new opportunities and advances in PWS research. Webinar Slides – Research Grants 2014 Final
Clinical Trials Webinar, January 2014
2014 promises to be an exciting year for PWS research as new clinical trials get off the ground. Several new studies around the country will be evaluating potential therapies in children and adults with PWS. In this webinar, Theresa Strong Ph.D and Jennifer Miller MD. take you through the clinical trial process. You will learn more about the goals of clinical trials, what you should expect and the questions you should be asking.
Research Grants Webinar, Spring 2013
A review of the initiatives funded through the FPWR and One SMALL Step programs. Includes an overview of newly funded studies, outcomes from previously funded projects as well as new opportunities and advances in PWS research.