Research Blog

  More than 30 unique paintings are available to the highest bidders in a unique art auction benefiting the Foundation for Prader-Willi Research (FPWR).
Source: FPWR Blog | Published: July 7 2021 - 06:01 AM
As any parent of loved ones with PWS can attest, defining the spectrum of symptoms of PWS can be a challenge! To help solve that problem, a paper has been published that provides consistent descriptions of common PWS–related behaviors. The paper provides consensus definitions of 6 key PWS...
Source: FPWR Blog | Published: July 7 2021 - 11:00 AM
Dr. Gua-Li Ming from the University of Pennsylvania has developed a new cellular model of PWS: a 3D organoid that mimics the arcuate nucleus found in the hypothalamus. This organoid, derived from stem cells with PWS, was compared to a typically developing organoid to discover several significant...
Source: FPWR Blog | Published: July 7 2021 - 11:00 AM
A new long-term study on scoliosis and growth hormone has been published. The publication, Effects of 8 Years of Growth Hormone Treatment On Scoliosis In Children With Prader-Willi Syndrome shows that 8 years of growth hormone treatment has no adverse effects on the prevalence or severity of...
Source: FPWR Blog | Published: July 7 2021 - 10:00 AM
Individuals with PWS suffer from a variety of digestive and gastrointestinal issues (GI), some of which can lead to surgery. Here, we focus on data from the Global PWS Registry to provide information on the prevalence of gastroparesis (delayed stomach emptying), as well as the frequency and types...
Source: FPWR Blog | Published: June 6 2021 - 10:00 AM
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