Families living with Prader-Willi syndrome are changing how PWS is understood, studied, and treated.
Source: FPWR Blog
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Published: February 2 2026 - 06:00 AM
Sleep is a common challenge among people with PWS. Whether it is daytime sleepiness, getting up at all hours of the night, early waking, or another sleep-related issue, sleep challenges not only affect the individual with PWS but the entire family. The PWS Global Registry has gathered useful survey...
Source: FPWR Blog
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Published: February 2 2026 - 07:44 AM
Excessive daytime sleepiness (EDS) is one of those symptoms of Prader-Willi syndrome (PWS) that often does not get the attention it deserves. EDS can profoundly undermine success in older children and adults with PWS. It is hard to learn anything in school if you cannot stay awake for class, and it...
Source: FPWR Blog
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Published: January 1 2026 - 08:59 AM
You have probably heard of GLP-1 receptor agonists (GLP-1s). You may even know someone who has successfully lost weight using one of these popular medications. But what about their safety and effectiveness for people with Prader-Willi syndrome (PWS)?
Source: FPWR Blog
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Published: January 1 2026 - 09:00 AM
Families and caregivers in the Prader-Willi syndrome (PWS) community whose loved one experiences excessive daytime sleepiness (EDS) know just how challenging it can be in daily life. Data from the Global PWS Registry show that 55% of participants experience significant daytime sleepiness, which...
Source: FPWR Blog
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Published: December 12 2025 - 09:00 AM
