Families raising a child with Prader-Willi syndrome know how difficult temper outbursts can be. In the study “The Characteristics of Temper Outbursts in Prader-Willi Syndrome,” Drs. Rice, Einfeld, and Woodcock, experts in the field of PWS, took a closer look at these behaviors to better understand...
Source: FPWR Blog
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Published: April 4 2026 - 05:45 AM
Parents of children with Prader-Willi syndrome don’t need to be told that caregiving is hard — you live it every day. You juggle medical complexity, behavioral challenges, constant vigilance around food, and the emotional weight of advocating for your child in systems that don’t always understand...
Source: FPWR Blog
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Published: March 3 2026 - 05:45 AM
When it comes to dermatological or skin issues in PWS, the first things that may come to mind are sensitivity to the sun due to fair skin and skin picking. However, there are a variety of additional skin-related concerns for individuals with PWS.
Source: FPWR Blog
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Published: March 3 2026 - 09:00 AM
Families living with Prader-Willi syndrome are changing how PWS is understood, studied, and treated.
Source: FPWR Blog
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Published: February 2 2026 - 06:00 AM
Sleep is a common challenge among people with PWS. Whether it is daytime sleepiness, getting up at all hours of the night, early waking, or another sleep-related issue, sleep challenges not only affect the individual with PWS but the entire family. The PWS Global Registry has gathered useful survey...
Source: FPWR Blog
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Published: February 2 2026 - 07:44 AM
