Research Blog

Temper outbursts are a common challenge for many people with Prader-Willi syndrome. The published study "The characteristics of temper outbursts in Prader-Willi syndrome" sheds light on temper outbursts in PWS. Drs. Rice, Einfeld and Woodcock, all very experienced researchers in the area of PWS,...
Source: FPWR Blog | Published: August 8 2022 - 09:05 AM
In July 2022, FPWR’s Executive Director Susan Hedstrom, Director of Research Programs Theresa Strong, and Lauren Schwartz, FPWR’s leader of the Mental Health & Behavior Research Programs, attended the International Prader-Willi Syndrome Organisation (IPWSO) meeting in Limerick, Ireland. IPWSO hosts...
Source: FPWR Blog | Published: August 8 2022 - 09:00 AM
This September 29 - October 1, parents, caregivers and medical professionals from across the country will once again be coming together to connect, learn, and be inspired at the Foundation for Prader-Willi Research’s Annual Research Symposium and Family Conference!
Source: FPWR Blog | Published: August 8 2022 - 07:00 AM
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely.  Some trials are testing new drugs while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog | Published: July 7 2022 - 09:12 AM
People with PWS have a higher risk for developing blood clots than the general population, but the risk is poorly understood. A recent study explored whether testing for a protein called D-dimer could be an informative tool for predicting blood clot risk in the asymptomatic PWS population. Although...
Source: FPWR Blog | Published: July 7 2022 - 09:00 AM
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