Research Blog

In this 50‑minute video, Dr. Tony Holland, Dr. Lauren Schwartz, and Dr. Deepan Singh discuss two promising studies of therapies for Prader-Willi syndrome: Vagus Nerve Stimulation (VNS) and bright light therapy. The session includes Q&A from participants in the 2022 Family Conference.
Source: FPWR Blog | Published: November 11 2022 - 09:00 AM
The time immediately following a diagnosis of PWS can be very difficult, and parents typically are dealing with an overwhelming amount of new information. It's important to take the time you need to process what is happening and connect with others for support. That said, early interventions should...
Source: FPWR Blog | Published: November 11 2022 - 10:00 AM
Today, Harmony Biosciences announced topline data on the primary outcome, excessive daytime sleepiness, from their Phase 2 proof-of-concept trial in patients with Prader-Willi syndrome, or PWS. The study included 65 volunteers, ages 6 to 65, who were randomized 1:1:1 to low-dose pitolisant,...
Source: FPWR Blog | Published: November 11 2022 - 10:49 AM
The Foundation for Prader-Willi Research announces our second round of Research Awards in 2022, exceeding $1,800,000. Representing the largest single round of funding in FPWR history, we are excited to fund a robust group of 14 grants that encompass projects that will increase our foundational...
Source: FPWR Blog | Published: October 10 2022 - 08:00 AM
Thanks to almost 900 PWS families who completed multiple surveys in the Global PWS Registry, a new study examining sleep disorders, seizures, and psychiatric behaviors provides a great deal of valuable data and new insights into the relationship between these important aspects of PWS. 
Source: FPWR Blog | Published: October 10 2022 - 07:00 AM
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