Research Blog

October is Mental Health Screening Month, and we're encouraging our PWS community to learn more about how to identify mental health challenges early.
Source: FPWR Blog | Published: October 10 2021 - 12:00 PM
Would you like to be part of our community-wide effort to advocate for new treatments for PWS? The FDA is now accepting comments from the public regarding a new drug application currently under review for LV-101 (intranasal carbetocin), a potential treatment for PWS. Comments submitted by October...
Source: FPWR Blog | Published: October 10 2021 - 06:45 AM
Hyponatremia is a condition where the sodium (salt) levels in the body are too low. If sodium levels get low enough, the person may become confused, experience a seizure, or even slip into a coma and (rarely) die. A few cases of hyponatremia due to excessive fluid intake have been previously...
Source: FPWR Blog | Published: September 9 2021 - 09:00 AM
  FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely.  Some trials are testing new drugs while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog | Published: September 9 2021 - 09:12 AM
Data from the PATH for PWS study, an ongoing natural history study of individuals with PWS sponsored by the Foundation for Prader-Willi Research, supports the benefits observed in the open-label study (C602) of DCCR.  Analysis of trial data has shown a statistically significant reduction in...
Source: FPWR Blog | Published: September 9 2021 - 01:00 PM
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