FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely. Some trials are testing new drugs while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: June 6 2023 - 12:21 PM
UPDATE, MAY 2023: FPWR is preparing to launch our VNS4PWS clinical trial. We are currently contracting with potential trial sites across the US and will announce sites as they become available. We plan to begin screening volunteers (ages 10 - 40) this summer. If you would like to join our interest...
Source: FPWR Blog
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Published: May 5 2023 - 04:33 PM
FPWR is pleased to announce that we have recently awarded 13 project awards totaling $1.963M to support research aimed at advancing our understanding of Prader-Willi syndrome (PWS) and developing much-needed treatments. PWS is a complex genetic disorder that affects an estimated 1 in 15,000 people...
Source: FPWR Blog
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Published: May 5 2023 - 05:35 AM
Mice have long been the preferred mammal model in research labs due to their cost, size, and tractable genetics. Their behavioral simplicity, however, limits a researcher’s options for studying the component features that may serve as surrogate measures of intellectual disability (ID), autism...
Source: FPWR Blog
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Published: May 5 2023 - 09:00 AM
![Schaaf-Yang Syndrome Across the Lifespan [2022 CONFERENCE VIDEO]](https://www.fpwr.org/hubfs/Conference/2022%20Conference/SYS%20with%20Dr%20Schaaf.png)
In this one hour and 22-minute video, Dr. Christian Schaaf, Department Chair of Human Genetics at Heidelberg University, discusses current research into Schaaf-Yang syndrome (SYS). Click below to watch the video. If you're short on time, scroll down for timestamps to find the portions you're most...
Source: FPWR Blog
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Published: April 4 2023 - 09:00 AM
