Fundraise for PWS and SYS Research

Everything we do, we can do because of YOU. Since our launch in 2003, we have invested over $20M into groundbreaking research. Nearly every dollar has come from affected families and their networks of relatives, friends, colleagues, and neighbors. Do you want treatments, and a cure, for PWS & SYS? If so, we invite you to join us and play a vital role by raising funds for research.



Get Started Fundraising

Run with Team FPWR


Set up a fundraiser on Facebook


Art Auction


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Our loved ones with PWS work so hard for every achievement. They don't give up, and neither will we.


Take ACTION while doing what you LOVE.

FPWR's mission is to eliminate the challenges PWS and SYS through the advancement of research and therapeutic development. By raising funds, you can help make this mission a reality.

What do you love to do? Run, cook, host parties, play music? Fundraising for PWS research is all about the love. Just pick an activity you love — and we'll help you turn your idea into a fundraiser that helps find treatments for our loved ones.

From kickball tournaments to birthday celebrations, from karaoke nights to chili cook-offs, and everything in between, FPWR's team is here to help you every step of the way! 



Your Impact

With the support of thousands of donors and fundraisers, FPWR has invested millions of dollars into critical PWS research. We've energized the field of PWS research, developed tools that have been used in labs around the world, and have attracted nearly a dozen PWS clinical trials. We have much to be proud of in our accomplishments but much work left to do. Until treatments have been found that eliminate the challenges of PWS, we must continue on.

Our work is only made possible by the incredible movers and shakers who take action for PWS research. 

Impact Info


When you fundraise for FPWR, your dollars:

  • Support innovative gene therapy research
  • Investigate novel PWS treatments
  • Improve clinical trial measures
  • Generate critical knowledge of PWS
  • Develop new therapeutic approaches
  • Repurpose existing drugs for use in PWS
  • Improve standards of care for people with PWS
  • Develop resources that facilitate FDA review of new treatments for PWS
  • And more!



Download our 2021 Annual Report to learn more about the impact our fundraising family is having on PWS research!


Fundraiser Resources

Our motto at FPWR is to work smarter, not harder, so we have created a number of resources to help make fundraising easy! Visit our toolkit and get started today! Need a resource that you don't see here? Contact our team and we can help!

Visit the FPWR Fundraiser Toolkit:

Fundraisng Toolkit Cover


When you fundraise for FPWR, you are joining a team of parents around the world who are committed to improving the lives of their loved ones with PWS. As part of our team, you never have to go it alone. We are here to help you every step of the way and can help bring your fundraising idea to life. Our team can help you with graphic design, save the dates/invitations, e-blasts, event webpages, and more.

Contact Us

Need help getting started? Want to brainstorm fundraising ideas? We want to hear from you! Give us a call at 888-322-5487, email or complete the short form below, and a member of our team will reach out to you!

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