Get Involved

Together, We Can Move PWS Research Forward

Whether you have a few minutes to share your experiences, want to help shape the research FPWR funds, or are ready to rally your community to raise money for research, there’s a way for you to make a difference.

Every breakthrough in Prader-Willi syndrome research starts with people willing to take part, speak up, and take action.

 

Participate in Research

Your Experience Shapes the Future of PWS

By participating in research, you can help researchers better understand PWS, develop new treatments, and improve clinical care.

There are many ways to participate. You can join the Global PWS Registry, explore clinical trials, or take part in other research opportunities that help advance our understanding of PWS.

Explore Research Opportunities →

Smiling young woman with glasses sits beside her doctor in a medical exam room, with bandages visible on both arms.

 

Become an Advocate Reviewer

Help Choose the Research We Fund

FPWR is committed to funding research that has the greatest potential to make a difference for people with PWS. Our community plays an important role in helping us decide which projects should receive funding.

As an Advocate Reviewer, you can review research proposals and share your perspective as a member of the PWS community. Your insights help ensure that the research we support addresses the needs and priorities of the people it is intended to serve.

Learn About Advocate Reviewing →

Seven FPWR researchers sit around a table with laptops, phones, and notebooks during a collaborative team meeting in a bright room.

 

Fundraise for PWS Research

Turn Your Passion Into Action

From hosting an event to taking on a personal fundraising challenge, there are many ways to raise money for PWS research. When you fundraise for FPWR, you’re helping fuel research that changes the future for people with PWS.

Start Fundraising →

Group of adults and children wearing matching blue fundraising shirts pose together outdoors with bicycles and a city skyline in the background.

 

Every Action Matters

You don't have to be a scientist, a major donor, or an experienced fundraiser to make a difference. Your participation, your perspective, and your willingness to take action moves PWS research forward.

Join our mission of eliminating the challenges of PWS through research.