Get Involved with FPWR

The Foundation for Prader-Willi Research was established in 2003 by a small group of parents who saw the need to foster research that would help their children with Prader-Willi syndrome lead more healthy and fulfilling lives. Today, FPWR is composed of hundreds of parents, family members, researchers, and others who want to find treatments and a cure for PWS and SYS.

ATTEND OUR ANNUAL CONFERENCE
FPWR's conference is held annually on the last weekend of September or the first weekend of October. The event brings together the world's leading scientists in the field of PWS for two days of sharing and collaboration at our PWS Research Symposium, followed by our two-day Family Conference with research topics and workshops to help families manage the challenges of PWS.

STAY UP TO DATE
Stay up to date on the latest research by subscribing to our monthly newsletter, blog, and clinical trial alerts.

When you fundraise for FPWR, you are joining a team of parents around the world who are committed to improving the lives of their loved ones with PWS. Finding treatments, and a cure, requires a significant investment of time and funds and you can help!

SET UP A FUNDRAISING PAGE
Create a fundraising page to share with your family and friends in less than 5 minutes!

Fundraising for SYS research? Click here!

TAKE ONE SMALL STEP
Attend a One SMALL Step walk or host one in your own neighborhood.

FACEBOOK FUNDRAISERS
A simple and impactful way to leverage social media to raise money for research. 

OTHER FUNDRAISING ACTIVITIES
Host a fundraising event! Run the NYC marathon! Check out our other fundraising opportunities.

PARTICIPATE IN A STUDY OR CLINICAL TRIAL

In our quest for treatments and a cure, it is critical for people with Prader-Willi syndrome and their family members to participate in research studies. Learn how you and your loved one can participate.

ENROLL IN THE GLOBAL PWS REGISTRY

The Global PWS Registry is an invaluable resource for gaining insights into the medical concerns of those with PWS while supporting research and the advancement of clinical trials. Learn more and enroll today.

BE PART OF THE GRANT REVIEW PROCESS

The grant selection process at FPWR is based on a collaborative approach, with scientists and parent advocates both playing critical roles. Community members are needed each grant cycle to review grants for their importance to our community. Learn more about being an advocate reviewer. 

There are many ways that YOU can get involved with the Foundation for Prader-Willi Research! No matter how big or how small, every effort helps us come closer to the day that our loved ones will lead FULL and independent lives.

Have an idea for how you can get involved?
Contact us at research@fpwr.org!