Everything we do, we can do because of YOU. Since our launch in 2003, we have invested over $16M into groundbreaking research. Nearly every dollar has come from affected families and their networks of relatives, friends, colleagues and neighbors. Do you want treatments, and a cure, for PWS? If so, we invite you to join Team FPWR and to play a vital role by fundraising for PWS research.
FPWR is funding game-changing research that could transform PWS as we know it. From investigating new drugs to treat the relentless hunger our loved ones face to developing genetic therapies for PWS, the work we are doing will be transformational in the lives of people with PWS! Dollars raised through your fundraising efforts:
When you fundraise for FPWR, you are joining a team of parents around the world who are committed to improving the lives of their loved ones with PWS. As part of our team, you never have to go it alone. We are here to help you every step of the way and can help bring your fundraising idea to life. Our team can help you with graphic design, save the dates/invitations, e-blasts, event webpages and more.
Anyone can fundraise for PWS research - parents, grandparents, brothers and sisters, aunts and uncles, or family friends. It can be as simple as setting up a fundraising page and sharing with your network through email and social media. Or it can be an in-person event such as a gala, a happy hour, a picnic, or cocktails in your home. Here are a few fundraising activities that our community members are undertaking:
As you can see, the fundraising options are endless! Want to talk to an FPWR team member about fundraising? Contact firstname.lastname@example.org and she can help you get started.
We have the resources you need to make fundraising easy and fun! Need a resource that you don't see here? Contact our team and we can help!
There are many ways that YOU can get involved with the Foundation for Prader-Willi Research! No matter how big or how small, every effort helps us come closer to the day that our loved ones will lead FULL and independent lives.
Make a donation
Host a fundraiser
Celebrate with a Facebook Fundraiser
Send a donation request letter
Participate in a clinical trial
Participate as an advocate reviewer
Participate in the Global PWS Registry
Attend our annual conference
Listen to a webinar
Make a planned gift
Have an idea for how you can get involved?
Contact us at email@example.com!