Get Involved with FPWR

Everything we do, we can do because of YOU. Since our launch in 2003, we have invested over $16M into groundbreaking research. Nearly every dollar has come from affected families and their networks of relatives, friends, colleagues and neighbors. Do you want treatments, and a cure, for PWS? If so, we invite you to join Team FPWR and to play a vital role by fundraising for PWS research.

Set Up Your Fundraising Page

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About Fundraising with FPWR

FPWR is funding game-changing research that could transform PWS as we know it. From investigating new drugs to treat the relentless hunger our loved ones face to developing genetic therapies for PWS, the work we are doing will be transformational in the lives of people with PWS! Dollars raised through your fundraising efforts:

  • Support innovative gene therapy research
  • Develop new therapeutic approaches to treat PWS
  • Publish a new resources like the PWS Mental Health Guidebook
  • Ensure the continuation of the PATH for PWS study of serious medical events in PWS
  • Generate critical knowledge of PWS to guide the development of new drugs
  • And so much more!

 

Take One SMALL Step for PWS Research

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Need a little inspiration?
Watch this video.

Our loved ones with PWS work so hard for every achievement. They don't give up, and neither will we.

 

When you fundraise for FPWR, you are joining a team of parents around the world who are committed to improving the lives of their loved ones with PWS. As part of our team, you never have to go it alone. We are here to help you every step of the way and can help bring your fundraising idea to life. Our team can help you with graphic design, save the dates/invitations, e-blasts, event webpages and more.

Set Up Your Fundraising Event

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Download our 2019 Annual Report to learn more about the impact our fundraising family is having on PWS research!

Getting Started

Anyone can fundraise for PWS research - parents, grandparents, brothers and sisters, aunts and uncles, or family friends. It can be as simple as setting up a fundraising page and sharing with your network through email and social media.  Or it can be an in-person event such as a gala, a happy hour, a picnic, or cocktails in your home. Here are a few fundraising activities that our community members are undertaking:

  • The 15 for 15 Challenge - You can help support research  and set a goal to improve your own health and wellbeing. Choose your challenge, then perform that activity every day for 15 days. Share your challenge with your family and friends and ask them to support you with a contribution to FPWR. Learn more >>
  • Virtual Fundraising - fundraising for PWS research can be as simple as setting up a fundraising page and sharing it with your network. Check out our fundraising tips to turn this easy fundraiser into a success! Create you page today >>
  • DIY Fundraising - take action doing what you love! Any activity can become a fundraising event. Let us know if you need help! Create your fundraiser >>
  • One SMALL Step - Our One SMALL Step walks are taking place across the US and Canada. You can host a virtual or in-person walk, or join another community member for an event near you as we walk to raise funds and awareness  for PWS research! Learn more >>
  • Run with Team FPWR - FPWR has multiple event opportunities for you to run in! From a 5k to the New York City Marathon, you can choose the perfect distance for your training goals! Get running >>

As you can see, the fundraising options are endless!  Want to talk to an FPWR team member about fundraising? Contact sarah.peden@fpwr.org and she can help you get started. 

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Your Impact

 

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Fundraiser Resources

We have the resources you need to make fundraising easy and fun! Need a resource that you don't see here? Contact our team and we can help!

 

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Fundraising Download Covers

 

Other Ways to Get Involved

There are many ways that YOU can get involved with the Foundation for Prader-Willi Research! No matter how big or how small, every effort helps us come closer to the day that our loved ones will lead FULL and independent lives.

Make a donation
Host a fundraiser
Celebrate with a Facebook Fundraiser
Send a donation request letter
Participate in a clinical trial
Participate as an advocate reviewer
Participate in the Global PWS Registry

Attend our annual conference 
Listen to a webinar
Make a planned gift

Have an idea for how you can get involved?
Contact us at research@fpwr.org!

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Contact Us!