.png)
ATTEND OUR ANNUAL CONFERENCE
FPWR's conference is held annually on the last weekend of September or the first weekend of October. The event brings together the world's leading scientists in the field of PWS for two days of sharing and collaboration at our PWS Research Symposium, followed by our two-day Family Conference with research topics and workshops to help families manage the challenges of PWS.
STAY UP TO DATE
Stay up to date on the latest research by subscribing to our monthly newsletter, blog, and clinical trial alerts.
RESEARCH HAPPENS WHEN YOU TAKE ACTION!
When you fundraise for FPWR, you are joining a team of parents around the world who are committed to improving the lives of their loved ones with PWS. Finding treatments, and a cure, requires a significant investment of time and funds, and you can help!
PARTICIPATE IN A STUDY OR CLINICAL TRIAL
In our quest for treatments and a cure, it is critical for people with Prader-Willi syndrome and their family members to participate in research studies. Learn how you and your loved one can participate.
ENROLL IN THE GLOBAL PWS REGISTRY
The Global PWS Registry is an invaluable resource for gaining insights into the medical concerns of those with PWS while supporting research and the advancement of clinical trials. Learn more and enroll today.
BE PART OF THE GRANT REVIEW PROCESS
The grant selection process at FPWR is based on a collaborative approach, with scientists and parent advocates both playing critical roles. Community members are needed each grant cycle to review grants for their importance to our community. Learn more about being an advocate reviewer.
The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).
