We are pleased to announce the recipients of our first round of grants for 2024, totaling more than $1,000,000 in awards, as part of the Foundation for Prader-Willi Research's (FPWR) ongoing commitment to advancing research in Prader-Willi (PWS) and Schaaf-Yang (SYS) syndromes. These grants support...
Source: FPWR Blog
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Published: May 5 2024 - 08:15 AM
PWS impacts many aspects of our children’s lives. The hallmark struggle for those affected by PWS is hyperphagia, or excessive appetite. But beyond hyperphagia, individuals with PWS are susceptible to other behavioral and emotional problems that affect both their quality of life and that of their...
Source: FPWR Blog
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Published: May 5 2024 - 10:00 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits while others can be completed remotely. Some trials are testing new drugs while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: May 5 2024 - 09:05 AM
![Clinical Trials Panel [2023 Conference Video]](https://www.fpwr.org/hubfs/clinical%20trial%20panels%202023.jpeg)
In this one hour and 8-minute video, Dr. Theresa Strong, FPWR’s Director of Research Programs, explores PWS clinical trials that are already underway or enrolling participants.
Source: FPWR Blog
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Published: April 4 2024 - 08:45 AM
![PWS Registry Data: Skin Picking in PWS [INFOGRAPHIC]](https://www.fpwr.org/hubfs/Skin%20Picking%20Registry%20Infographic%20-%20March%202024-1.png)
Individuals with PWS often exhibit a variety of self-injurious behaviors, and one of the most common of these is skin picking. Individuals typically start with a fixation on some imperfection in the skin. This can be a rough or dry patch of skin, an insect bite, scab or a scratch. Picking at this...
Source: FPWR Blog
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Published: April 4 2024 - 08:45 AM
