FPWR Blog

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Meet Team FPWR: A Dynamic Force Running the NYC Marathon for Research
Meet Team FPWR, a powerhouse group of eleven incredible individuals lacing up their sneakers to... Read more >
Source: FPWR Blog | Published: September 9 2024 - 12:30 PM
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Webinar Provides Details on COMPASS PWS Clinical Trial
In a recent webinar, Acadia Pharmaceuticals shared details of their COMPASS-PWS Clinical trial... Read more >
Source: FPWR Blog | Published: September 9 2024 - 05:35 AM
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FDA Advisory Committee to Review DCCR as Treatment for Hyperphagia in PWS
The FDA has announced its plan to conduct an Advisory Committee Meeting as part of its review of... Read more >
Source: FPWR Blog | Published: September 9 2024 - 05:15 AM
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FDA Accepts DCCR Filing and Grants Priority Review
Soleno Therapeutics announced today that the U.S. Food and Drug Administration (FDA) has accepted... Read more >
Source: FPWR Blog | Published: August 8 2024 - 08:34 AM
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Exploring Type I and II Deletions in Prader-Willi: Cell-Level Insights
70% of cases of Prader-Willi syndrome are associated with a “deletion” of 5,000–6,000 missing base... Read more >
Source: FPWR Blog | Published: August 8 2024 - 09:15 AM
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The Matesevac Family Welcomes You to Atlanta this September!
A special contribution by guest blogger Lisa Matesevac. Welcome to the ATL! We are thrilled that... Read more >
Source: FPWR Blog | Published: August 8 2024 - 09:15 AM
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PWS Advocacy Coalition Submits Petition to FDA for Priority Review of DCCR NDA
On Friday, August 2nd, the PWS Advocacy Coalition submitted a petition to the U.S. Food and Drug... Read more >
Source: FPWR Blog | Published: August 8 2024 - 10:43 AM
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FDA Grants Rare Pediatric Disease Designation to CSTI-500
The FDA has granted Rare Pediatric Disease Designation (RPDD) to ConSynance Therapeutics' new... Read more >
Source: FPWR Blog | Published: July 7 2024 - 08:45 AM
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FPWR 2024 Family Conference: Deep Dive Workshops
You won’t want to miss these speakers at the 2024 FPWR Family Conference this September in Atlanta,... Read more >
Source: FPWR Blog | Published: July 7 2024 - 08:45 AM
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22 Years of Hope: Kathryn McGhee's Dedication to Finding PWS Treatments
Kathryn McGhee has been an active member of our PWS community for 22 years, participating in... Read more >
Source: FPWR Blog | Published: July 7 2024 - 09:00 AM
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Announcing the FPWR Olympics!
Just like the elite athletes competing in the Olympic Games, our community is passionate,... Read more >
Source: FPWR Blog | Published: July 7 2024 - 04:31 PM
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FPWR Joins the Rare Disease Diversity Coalition
Improving diversity, equity, inclusion, and accessibility (DEIA) in PWS clinical research is a... Read more >
Source: FPWR Blog | Published: July 7 2024 - 08:45 AM
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Soleno Therapeutics Submits New Drug Application for DCCR
We are excited to share the news that Soleno Therapeutics has submitted its New Drug Application... Read more >
Source: FPWR Blog | Published: June 6 2024 - 06:53 AM
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Katie and Adam Larson: A Decade of Dedication to Finding Treatments for PWS
Since first tapping into our community 12 years ago, Katie and Adam Larson have been ready to do... Read more >
Source: FPWR Blog | Published: June 6 2024 - 08:30 AM
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