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Registration is open for our 2026 Research Symposium and Family Conference—four powerful days of learning, sharing, and connecting with the Prader-Willi syndrome community. Whether you're a parent, caregiver, researcher, or clinician, this unique event offers opportunities to hear the latest in PWS research, participate in practical workshops, and build lasting connections with others who truly understand the journey.
The FPWR Family Conference is more than just a conference—it’s a place to find connection, understanding, and inspiration. Yes, you’ll hear from leading researchers and experts in Prader-Willi syndrome, but the experience goes far beyond traditional information sessions.
Here, you'll find a welcoming space where meaningful relationships are formed and strengthened. Through interactive workshops and community-led discussions, you'll have the chance to learn from one another, share real-world strategies, and gain support in navigating the challenges you're facing today.
Expect to leave with the latest updates in research, treatments, and care—and with renewed energy, deeper connections, and a stronger sense of hope for the future.
Here's a sneak peek of just a few of our sessions and workshops you can expect:
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Join us on Wednesday, October 7, and Thursday, October 8, 2026, for our Annual PWS Research Symposium, highlighting the latest findings in Prader-Willi Syndrome research, and leave inspired with new research ideas and collaborations. Symposium topics will include genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials.
Interested in presenting at the symposium?
Abstracts are now being accepted for oral presentations as well as a poster session. Download the abstract form below and submit to Jessica.Bohonowych@fpwr.org on or before May 31st, 2026.
Travel Awards
FPWR is offering a limited number of $1000 travel awards (complimentary registration + $425 in travel funds) to trainees and junior faculty members presenting their research at FPWR’s 2026 PWS Research Symposium. Travel funds can be applied to airfare, hotel, meals, and ground transportation. Travel Award applications will be accepted until May 31st, 2026.
Eligibility:
Join us at Ballers Philadelphia on Saturday, October 10th, for a night you won’t want to miss. This is your chance to dress up, show off your elevated style, and keep it comfy with your favorite footwear. The evening will be filled with great food and drinks, entertainment, interactive activities, and plenty of surprises, all in support of PWS and SYS research Dress up, lace up, and meet us on the turf for a night that scores big for research. Learn more about Live Life FULL Philadelphia>>
While this event is designed as an adults' evening, we know many families will be attending the conference together. If your child is traveling with you, they are welcome to join us. Guests under the age of 18 do not need a ticket. We simply ask that you send us a quick note in advance (riley@fpwr.org) with the number of children attending and their ages.
Event Environment & Accessibility Notes
Non-reserved seating will be available throughout the venue on a first-come, first-served basis.
Ramp access is available down to the field for guests who need it.
The event will take place on an open-air turf field. Music, announcements, and program audio may be loud due to the space's acoustics.
Food will be served via open-access grazing stations and will be visible and accessible throughout the event. We will offer a variety of options to accommodate common dietary needs and preferences.
We look forward to welcoming you and your family for a wonderful evening!
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The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).
