Join the Movement

Across the country, families and supporters are coming together through One Small Step, a simple, community-led way to support Prader-Willi syndrome research.

What started as small local walks has grown into a nationwide movement, raising over $7.5 million to fuel real progress.

Treatments are happening. Momentum is building. And there’s still more work to do.

One Small Step events look different in every community, shaped by the families and supporters behind them.

Want to be part of it?

Join a walk near you or start an event of your own. We’ll support you with the tools, resources, and one-on-one guidance you need every step of the way. Every action helps move research forward and reminds families they’re not alone.

OSS MAP-Jan-14-2026-01-37-14-6798-AM

 🆕 Palm Harbor Florida | January 10, 2026
🆕 Baltimore, Maryland  | May 2, 2026
🆕 Baton Rouge, Louisiana | May 9, 2026
Sewell, New Jersey | May 30, 2026
Elizabethtown, KY | May TBD
Washington DC | June TBD
Deerfield, Illinois | June TBD
Hillsboro, OR | August TBD
Rochester Hills, Michigan | September 12, 2026
 Avon, Indiana | September 12, 2026
Lincoln, Nebraska | Date TBD
Cleveland, Ohio | Date TBD
Somonauk, Illinois | October 3, 2026
San Antonio, Texas | October TBD
Lawrenceville, Georgia | November 7, 2026

 

Thank you to our sponsors

 

Soleno.chromo.logo.horz_Large Res_CC

harmony biosciences

 

 

Contact Us

Want to host an event in your neighborhood? It's as easy as setting a date and inviting your family and friends!
Send an email to natalie@fpwr.org or fill out the form below and we will help you get started. 

Send a message to our team: