FPWR RESEARCH SYMPOSIUM AND ANNUAL FAMILY CONFERENCE 
OCTOBER 1-3, 2020
CHICAGO IL
Clinical Trials Panel
Interview with Gillian Segall
Standards of Care Ages 0-2
Sensory Solutions
Self Care and the PWS Profile
Fireside Chat with Researchers
Research Symposium Summary
IEPs with Katy Chambers
MAD Diet and Microbiome

About The Event

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FPWR's Annual Family Conference, held in conjunction with our PWS Research Symposium, is a powerful experience combining education, networking and community-building. Learn the latest in PWS research from experts in the field and have the opportunity to engage one-on-one with the researchers that have a deep interest in finding treatments for our loved ones with PWS.  In addition to presentations by PWS clinical experts, you will learn the latest in clinical trials and updates from the most promising research studies.

Join us in 2020 in downtown Chicago, October 1-3! 

A room block is available at the W Chicago Hotel - City Center with a discounted room rate of $196/night. This rate is only available until September 11, 2020. A link with the discounted rate will be provided in your registration confirmation email.

Register Now!

Featured 2019 Speakers

2020 speakers will be announced in early 2020
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Elisabeth Dykens
Elisabeth Dykens
Professor of Psychology
Nirbhay N. Singh
Nirbhay N. Singh
Professor of Psychiatry
Patrice Carroll
Patrice Carroll
PWS Behavior Specialist
Ashley Waguespack
Ashley Waguespack
Occupational Therapist
Jessica Boudreaux
Jessica Boudreaux
Occupational Therapist
Katy Chambers Updated
Katy Chambers
School Principal
Jessica Duis Headshot square
Jessica Duis
Asst. Professor of Pediatrics
theresa_s
Theresa Strong
Director of Research Programs, FPWR

Family Conference Day 1 - Friday, October 2, 2020

08:00
-
10:00
First Timers Meet and Greet
Come join us for coffee and croissants.
09:00
-
12:00
New Parent Session and Luncheon *
01:00
-
05:00
Conference Programming
07:30
-
10:30
Conference Welcome Reception

Family Conference Day 2 - Saturday, October 3, 2020

08:00
-
09:00
Rise and Shine Breakfast
09:00
-
04:30
Conference Program

Highlighted Sessions 

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Join us for a special session just for new parents
This special pre-conference session is for parents who have received the PWS diagnosis within the last 24 months. Join us the morning of Friday, October 2nd to meet other new families and learn from parents who are on this same journey. A luncheon will follow the session. Space is limited, please RSVP during ticket purchase.

 

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You won't want to miss our Clinical Trials Panel
There are more PWS clinical trials investigating treatments for PWS than ever! Stay up to date and learn the latest in current and upcoming clinical trials directly from trial representatives.

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Leading experts provide practical information you can apply to your child, and family, immediately!  

Want to take home tangible ideas that you can work on with your child?  This year’s conference is the place to be!  Sessions will be announced in early 2020!

 
Can't Get Enough of the Science?
 

Join us for the PWS Research Symposium 

Thursday, October 1- Friday, October 2, 2020 

Hear the latest breakthroughs in Prader-Willi syndrome research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience (researchers an academics). Parents are welcome to attend.

Research Symposium Registration:
$300 (until 8/31)    $350 (after 9/1)

* Parents are invited to join us for FREE Friday morning!!

Learn more.

 

08:00
-
09:00
Networking Breakfast
09:00
-
05:00
Abstract Presentations
05:00
-
07:00
Scientific Reception and Poster Sharing
09:00
-
12:00
Friday Presentations

Registration Details

Standard Conference Pricing

Research Symposium: October 1-2
$300 (until 8/31)   $350 (after 9/1)
 
Family Conference: October 2-3
$350 (until 8/31)   $400 (after 9/1)

Research Symposium & Family Conference:
$650 (until 8/31)   $750 (after 9/1)
 

Family Discounted Rates:
(for parents and relatives of children with PWS/SYS/USP7)

Family Conference Only:
$225 (until 8/31)   $275 (after 9/1)
 
Research Symposium & Family Conference:
$525 (until 8/31)   $625 (after 9/1)
 
Childcare (children 1 year and older) 
$225

Register Now!

 

Refund Policy: Tickets may be refunded up to
 30 days prior to conference, less a $25 processing fee.

 

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The Venue

CONVENE

233 S Wacker, Chicago, IL

Accommodations

A room block is available at the W Chicago Hotel - City Center
with a discounted room rate of $196/night.
This rate is only available until September 11, 2020.
A link with the discounted rate will be provided in your registration confirmation email.

 
 
OCTOBER 1 - 3, 2020
CHICAGO, IL

Sign-up for Conference Updates

OUR 2019 SPONSORS

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