FPWR RESEARCH SYMPOSIUM AND ANNUAL FAMILY CONFERENCE 
OCTOBER 1-3, 2020
CHICAGO IL
Clinical Trials Panel
Interview with Gillian Segall
Standards of Care Ages 0-2
Sensory Solutions
The Importance of Self Care
Fireside Chat with Researchers
Research Symposium Summary
IEPs with Katy Chambers
MAD Diet and Microbiome

About The Event

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FPWR's Annual Family Conference, held in conjunction with our PWS Research Symposium, is a powerful experience combining education, networking and community-building. Learn the latest in PWS research from experts in the field and have the opportunity to engage one-on-one with the researchers that have a deep interest in finding treatments for our loved ones with PWS.  In addition to presentations by PWS clinical experts, you will learn the latest in clinical trials and updates from the most promising research studies.

Join us in 2020 in downtown Chicago, October 1-3! 

A room block is available at the W Chicago Hotel - City Center with a discounted room rate of $196/night. This rate is only available until September 11, 2020. A link with the discounted rate will be provided in your registration confirmation email.

 

Register Now!

 

This conference is made possible by the generous support of our presenting sponsor:

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Featured 2020 Speakers

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Patrice Carroll
PWS Behavior Specialist
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Jessica Duis
Associate Professor of Pediatrics
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Stuart Libman
ACT Expert and Psychologist
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Elizabeth Roof
Senior Research Specialist
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Lauren Schwartz
Mental Health Programs
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Theresa Strong
Director of Research Programs
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Harold Van Bosse
Orthopaedic Surgeon
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Janice Forster
Developmental Neuropsychiatrist

Family Conference Day 1 - Friday, October 2, 2020

08:00
-
10:00
First Timers Meet and Greet
Come join us for coffee and croissants.
09:00
-
12:00
New Parent Session and Luncheon *
01:00
-
05:00
Conference Programming
07:30
-
10:30
Conference Welcome Reception

Family Conference Day 2 - Saturday, October 3, 2020

08:00
-
09:00
Rise and Shine Breakfast
09:00
-
04:30
Conference Program

Highlighted Sessions 

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Join us for a special session just for new parents
This special pre-conference session is for parents who have received the PWS diagnosis within the last 24 months. Join us the morning of Friday, October 2nd to meet other new families and learn from parents who are on this same journey. A luncheon will follow the session. Space is limited, please RSVP during ticket purchase.

 

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You won't want to miss our Clinical Trials Panel
There are more PWS clinical trials investigating treatments for PWS than ever! Stay up to date and learn the latest in current and upcoming clinical trials directly from trial representatives.

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Leading experts provide practical information you can apply to your child, and family, immediately!  

Want to take home tangible ideas that you can work on with your child?  This year’s conference is the place to be!  Sessions will be announced in early 2020!

 
Can't Get Enough of the Science?
 

Join us for the PWS Research Symposium 

Thursday, October 1- Friday, October 2, 2020 

Hear the latest breakthroughs in Prader-Willi syndrome research including genetics, molecular mechanisms, PWS models, metabolism, therapeutic development, clinical care, and clinical trials. Presentations will be given for a scientific audience (researchers an academics). Parents are welcome to attend.

Research Symposium Registration:
$300 (until 8/31)    $350 (after 9/1)

* Parents are invited to join us for FREE Friday morning!!

Learn more.

 

08:00
-
09:00
Networking Breakfast
09:00
-
05:00
Abstract Presentations
05:00
-
07:00
Scientific Reception and Poster Sharing
09:00
-
12:00
Friday Presentations

Registration Details

Standard Conference Pricing

Research Symposium: October 1-2
$300 (until 8/31)   $350 (after 9/1)
 
Family Conference: October 2-3
$350 (until 8/31)   $400 (after 9/1)

Research Symposium & Family Conference:
$650 (until 8/31)   $750 (after 9/1)
 

Family Discounted Rates:
(for parents and relatives of children with PWS/SYS/USP7)

Family Conference Only:
$175 (until 3/17)  $225 (until 8/31)   $275 (after 9/1)
 
Research Symposium & Family Conference:
$475 (until 3/17)  $525 (until 8/31)   $625 (after 9/1)
 
Childcare (children 1 year and older) 
  $175 (until 3/17)   $225 (until 8/31)

Register Now!

 

Limited financial assistance is available for families who otherwise cannot attend the conference.
Learn more and apply.

 

Refund Policy: Tickets may be refunded up to
 30 days prior to conference, less a $25 processing fee.

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The Venue

CONVENE

233 S Wacker, Chicago, IL

Accommodations

A room block is available at the W Chicago Hotel - City Center
with a discounted room rate of $196/night.
This rate is only available until September 11, 2020.
A link with the discounted rate will be provided in your registration confirmation email.

 

Chid Care Program

The childcare program is open for all children ages 2-18 (younger children are welcome to attend the conference with their parents). Children with PWS and their siblings are welcome, you must register each child separately. The cost of registration covers professional childcare providers, activities, snacks and select meals. Click here for more details and answers to our frequently asked questions.

 

 
OCTOBER 1 - 3, 2020
CHICAGO, IL

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OUR 2020 SPONSORS

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