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    FPWR Annual Research Symposium

    Where the PWS research community shares what’s new, explores what’s next, and moves promising science closer to better treatments.

    Register for the Symposium

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    Learn About Family Conference

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    New findings, emerging therapies, and the questions shaping the field are at the center of the FPWR Research Symposium. Scientists, clinicians, industry partners, and research trainees from around the world present data, exchange ideas, and identify opportunities to accelerate progress in Prader-Willi syndrome and Schaaf-Yang syndrome research.

    Research Symposium
    Family Conference
    Live Life Full Gala

    Annual Research Symposium

    Wednesday, Oct 7, & Thursday, Oct 8

    Marriott Philadelphia Downtown

    Register Now

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    Two attendees discussing a research poster about psychiatric symptoms in Prader-Willi syndrome.

    Annual Family Conference

    Friday, October 9 and Saturday, October 10 

    Marriott Philadelphia Downtown

    Learn More

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    Seven FPWR conference attendees gathered together

    Live Life Full Gala

    Saturday, October 11
    7 - 10 pm


    Ballers, Philadelphia 

    Learn More

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    What To Expect

    Two days of scientific presentations will highlight the latest advances in Prader-Willi syndrome and Schaaf-Yang syndrome research, spanning genetics, neuroscience, endocrinology, metabolism, behavior, clinical trials, translational science, and more.

    The conversation continues beyond the presentations. Researchers, clinicians, industry scientists, trainees, and patient advocacy partners will have dedicated opportunities to exchange ideas, make connections, and explore potential collaborations. A poster reception gives researchers the chance to share and discuss their work, while breakfast roundtables create space for deeper conversation around timely topics in the field.

    Attendees will leave with a clearer view of where PWS and SYS research stands today, what’s coming next, and new connections that can help move promising research toward meaningful therapies.

    Registration

    Deadline for Registration:  September 18th
    academics and clinicians

    Research Symposium:
    $600

    Research Symposium + Family Conference:
    $1100

    Live Life Full Gala:
    $175

    Buy Tickets

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    industry

    Research Symposium:
    $800

    Research Symposium + Family Conference:
    $1600

    Live Life Full Gala:
    $175

    Buy Tickets

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    Accomodations

    A discounted room rate of $221/night is available at the Marriott Philadelphia Downtown through September 15, 2026. Rooms in the FPWR block are limited, so early booking is encouraged. You’ll receive the reservation link in your registration confirmation email.

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    Frequently Asked Questions

    What is your refund policy?

    Refund Policy: Tickets may be refunded up to 30 days prior to the conference, less a $25 processing fee.

    Who should I contact if I have questions?

    Questions should be directed to Melissa Demand. Email: melissa.demand@fpwr.org.

    Will the symposium be recorded?

    No. The symposium will not be recorded. 

    When will the agenda be released?

    The agenda will be released 3 weeks from the event.  

    When will the abstract booklet be available?

    All registered attendees will receive the abstract booklet the week of the symposium.  

    How do I sign up for breakfast roundtables?

    You will sign up for breakfast roundtables during registration. If you would like to change your table topic, or you didn’t select topics and would like to attend the breakfast roundtables, please email melissa.demand@fpwr.org 

    Do you have an outline of the symposium program?

    Day 1: Wednesday, Oct 7th


    Breakfast Roundtable Discussions
    7:30 AM - 9:00 AM

    Research Symposium Presentations
    9:00 AM - 5:00 PM

    Poster Viewing Reception
    5:00 PM - 7:00 PM

     

    Day 2: Thursday, Oct 8th


    Breakfast Roundtable Discussions
    7:30 AM - 9:00 AM

    Research Symposium Presentations
    9:00 AM - 5:00 PM 

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