Get Involved
Together, We Can Move PWS Research Forward
Every breakthrough in Prader-Willi syndrome research starts with people willing to take part, speak up, and take action.
Whether you have a few minutes to share your experiences, want to help shape the research FPWR funds, or are ready to rally your community to raise money for research, there’s a way for you to make a difference.
Explore the ways you can get involved with FPWR and help move research forward.
Participate in Research
Your Experience Can Help Shape the Future of PWS
Research depends on people with PWS and their families. By participating in research, you can help researchers better understand PWS, develop new treatments, and improve care.
There are many ways to participate. You can join the Global PWS Registry, explore clinical trials, or take part in other research opportunities that help advance our understanding of PWS.
Explore Research Opportunities →
Help Choose the Research We Fund
Become an Advocate Reviewer
FPWR is committed to funding research that has the greatest potential to make a difference for people with PWS. Our community plays an important role in helping us decide which projects should receive funding.
As an Advocate Reviewer, you can review research proposals and share your perspective as a member of the PWS community. Your insights help ensure that the research we support addresses the needs and priorities of the people it is intended to serve.
Learn About Advocate Reviewing →
Fundraise for Research
Turn Your Passion for PWS Into Action
FPWR’s research is made possible by people who believe that better treatments are possible—and who are willing to do something about it.
From hosting an event to taking on a personal fundraising challenge, there are many ways to raise money for PWS research. When you fundraise for FPWR, you’re helping fuel research that could change the future for people with PWS.
Every Action Matters
You don't have to be a scientist, a major donor, or an experienced fundraiser to make a difference. Your participation, your perspective, and your willingness to take action all help move PWS research forward.
Find the opportunity that's right for you—and join us in building a future with better treatments and a better quality of life for people with PWS.