Get Involved
Together, We Can Move PWS Research Forward
Every breakthrough in Prader-Willi syndrome starts with people willing to take part, speak up, and take action.
Participate in Research
Your Experience Shapes the Future of PWS
Your participation helps researchers better understand PWS, develop new treatments, and improve clinical care.
Join the Global PWS Registry, explore clinical trials, or check out our entire list of research opportunities.
Explore Research Opportunities →

Become an Advocate Reviewer
Help Choose the Research We Fund
Our community plays an important role in helping us decide which research projects receive funding.
As an Advocate Reviewer, you review research proposals and share your perspective. Your insights ensure that the research we support addresses the needs and priorities of the PWS community.
Learn About Advocate Reviewing →

Fundraise for PWS Research
Turn Your Passion Into Action
From hosting an event to taking on a personal fundraising challenge, there are all kinds of ways to raise money for PWS research. When you fundraise for FPWR, you’re helping fuel research that changes the future for people with PWS.

Every Action Matters
You don't have to be a scientist, a major donor, or an experienced fundraiser to make a difference. Your participation, your perspective, and your willingness to take action moves PWS research forward.