Get Involved

Together, We Can Move PWS Research Forward

Every breakthrough in Prader-Willi syndrome starts with people willing to take part, speak up, and take action.

 

Participate in Research

Your Experience Shapes the Future of PWS

Your participation helps researchers better understand PWS, develop new treatments, and improve clinical care.

Join the Global PWS Registry, explore clinical trials, or check out our entire list of research opportunities.

Explore Research Opportunities →

Smiling young woman with glasses sits beside her doctor in a medical exam room, with bandages visible on both arms.

 

Become an Advocate Reviewer

Help Choose the Research We Fund

Our community plays an important role in helping us decide which research projects receive funding.

As an Advocate Reviewer, you review research proposals and share your perspective. Your insights ensure that the research we support addresses the needs and priorities of the PWS community.

Learn About Advocate Reviewing →

Seven FPWR researchers sit around a table with laptops, phones, and notebooks during a collaborative team meeting in a bright room.

 

Fundraise for PWS Research

Turn Your Passion Into Action

From hosting an event to taking on a personal fundraising challenge, there are all kinds of ways to raise money for PWS research. When you fundraise for FPWR, you’re helping fuel research that changes the future for people with PWS.

Start Fundraising →

Group of adults and children wearing matching blue fundraising shirts pose together outdoors with bicycles and a city skyline in the background.

 

Every Action Matters

You don't have to be a scientist, a major donor, or an experienced fundraiser to make a difference. Your participation, your perspective, and your willingness to take action moves PWS research forward.