Planned Giving: Give the Gift that Matters

When you give to the Foundation for Prader-Willi Research, you are making a difference.

Currently, there are no treatments for the most challenging aspects of PWS. At FPWR, we are working to change that. We are uniquely focused on research and developing new therapies. Our devotion to finding new forms of treatment, and ultimately cures, is what drives us.

By including the Foundation for Prader-Willi Research in your estate plans, you will help advance innovative research that will develop new treatments for Prader-Willi syndrome. Your legacy can be a world where individuals with Prader-Willi syndrome live FULL and independent lives.

What is Planned Giving?

Planned giving allows you to provide for your loved one with PWS beyond your lifetime. For most of us, our planned gift is the largest and most impactful gift we will make. Through a planned gift, you can share financial assets that you no longer need and continue to advance new treatments that will help our loved ones with PWS live full and independent lives.

Planning Your Gift

Planning a gift to the Foundation for Prader-Willi Research allows you to make a lasting impact on PWS research while offering many tax advantages. By incorporating a planned gift into your financial and estate plans, you can reduce your tax liability and potentially increase the amount you have available for charitable giving. Some of the more common gifts you may consider include:

Bequest: Make a gift after your lifetime through your will or trust. This can be a fixed dollar amount, a specific asset, or a percentage of your estate. By directly transferring assets to beneficiaries, they may be excluded from your taxable estate, potentially reducing the overall estate tax liability.

Retirement Account: Retirement accounts, such as traditional IRAs or 401(k)s, are generally funded with pre-tax dollars and when funds are withdrawn, or passed on to heirs, they are subject to taxes. By donating a retirement account directly to a qualified charity, the donor can avoid paying income tax on the funds. This can result in significant tax savings,

Beneficiary Designation: Giving a financial account or insurance policy after your lifetime may be as simple as completing a beneficiary form.

Caring for estates and assets merits professional expertise. In order to make sure a particular planned gift fits your situation, we suggest that you consult with your professional advisor on how this gift would fit into your plans.

Planned Giving (1)


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Your Lasting Impact

FPWR is dedicated to driving progress in research from discovery through the development and optimization of safe and effective treatments, while also fostering the creation of valuable resources that facilitate and accelerate the entire drug development pathway. Our primary focus is on supporting research endeavors that hold translational potential, meaning they have the capacity to lead to the development of effective treatments or even a cure.

When you give to FPWR, you are supporting:

  • Innovative gene therapy research
  • Development of novel PWS treatments
  • Improved clinical trial measures
  • Generation of critical knowledge of PWS
  • Development of new therapeutic approaches
  • Repurposing existing drugs for use in PWS
  • Improving standards of care for people with PWS
  • Developing resources that facilitate FDA review of new treatments for PWS
  • And more!



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