Advice for Caregivers During COVID-19 [PODCAST]

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In our latest podcast, Patrice Carroll, Director of PWS Services at Latham Centers in Cape Cod, shares how to how to help our loved ones with PWS through this unusual time of social distancing and isolation due to COVID-19. To listen, just click above.

Many of us are struggling with increased stress and anxiety during today’s time of social distancing. Most, if not all, of our lives have been turned upside down. Routines and schedules provide comfort for people with PWS, and we can expect that until new routines are in place, our loved ones will experience increased anxiety, which can be a stressor on us all.

Recently, I sat down with Patrice Carroll, Director of PWS Services at Latham Centers in Cape Cod, to get her advice on how to help our loved ones through this unusual time of social distancing and isolation. In this 20-minute podcast, we talk about implementing a schedule at home, motivating our loved ones to take part, and "home schooling."

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Topics: Research

Susan Hedstrom

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Susan Hedstrom is the Executive Director for the Foundation for Prader-Willi Research. Passionate about finding treatments for PWS, Susan joined FPWR in 2009 shortly after her son, Jayden, was diagnosed with Prader-Willi Syndrome. Rather than accepting PWS as it has been defined, Susan has chosen to work with a team of pro-active and tireless individuals to accelerate PWS research in order to change the future of PWS. Inspired by her first FPWR conference and the team of researchers that were working to find answers for the syndrome, she joined the FPWR team in 2010 and led the development of the One SMALL Step walk program. Under Susan’s leadership, over $15 million has been raised for PWS related research.

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